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TOPIC: Re:DLA review & the HIV+ Community
#583
John ()
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Re:DLA review & the HIV+ Community 8 Months, 2 Weeks ago  
We have received a personal message from June Brown - Actress, EastEnders.

From http://www.hivbenefits.co.uk

"I am worried that the Disability Living Allowance Review is unfair as the form is tailored towards physical disabilities only-not Mental Illness, HIV/AIDS, Cancer sufferers, nor does it take into account the side effects of the medication on their general health.

Not only will people lose entitlement to Incapacity Benefit, their free travel. motability vehicle but also the Severe Disability Premium of Income Support so they will be forced into the utmost poverty, which can do nothing but harm their condition.

Employers will be reluctant to offer work due to the necessity of frequent hospital visits, periods of admission and bouts of prolonged ill health.

I would ask you all to support this petition in the hope this review is reassessed and to endorse the TCell campaign."

The http://petitions.pm.gov.uk/DLA-Review/ closes on 2nd May 2008 please encourage all those you know to sign it.

Thanks,

John.
 
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Last Edit: 2008/04/25 10:08 By jima1. Reason: Corrected link.
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#724
John ()
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Re:DLA review & the HIV+ Community 8 Months, 1 Week ago  
From http://www.hivbenefits.co.uk

This may be of interest -

" As you may have gathered from previous posts. I have been greatly concerned that during the review process. If you list several specialist consultants that deal with other medical issues you have developed alongside or by virtue of your HIV, especially mental health issues. The DWP typically only approach your HIV Consultant. Where they will not wait for this report they may approach your GP. Therefore only one aspect of your health is evidenced.

I was also concerned. Minded of the DWP guidance & that Mental Health issues were seemingly being ignored.

In my case. I have engaged in correspondence questioning the DBD551 I submitted. Specifically how or why a decision could be reached without medical reports covering ALL my health issues from ALL my consultants.

The response states;

"..... decisions are made based on a persons mobility and care needs and not the disability itself"

so why require any medical report if it is not required to reach a judgement on entitlement?

it then continues;

"You state that I implied that mental health would not be considered part of your current disabilities - this was not my intention. It is fully accepted that the facts you present with regard to your mental health are accurate and correct. You are quite right to say that not to approach other consultants you have mentioned would not give a complete picture of your HIV."

The Decision Maker then states she is to seek additional medical reports from my other consultants.

Why is this important?

Your HIV consultant or GP may refer you to other specialists, including mental health, that have more direct knowledge, history & understanding of additional illnesses you experience. They will of course be keeping your referring medic up to date. Though in my experience this is usually by letter and in very general terms.

Where a decision made has been made on the strength of a GP report only or your mental health or any other health issue you feel has not been properly evaluated. You may want to consider the above.

Apparently my original DS1500 was supplied from the St. Peter's Clinic. This is worrying as I have never been to any clinic of that name and checking my copy of that document it is not mentioned. This being one of several errors that, as you can imagine, is generating more correspondence.

I also mentioned in my previous letter. An error made on the medical report submitted, no fault of my current consultant, relating to my date of diagnosis. I wrote asking for this data to be corrected under the obligations of the Data Protection Act. I also copied this to my clinic for correction. The response implies that the DWP will not be changing this. That I should write to my clinic. So whereas this has been done and the error raised and changed. The DWP will not be asking for another medical report nor changing existing data. A complaint to the Information Commissioners Office I think now.

As I am completing my DLA556 I am concerned that information I am providing is not being treated correctly or in fact that the information is accurate."
 
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#914
John ()
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Re:DLA review & the HIV+ Community 7 Months, 3 Weeks ago  
 
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#998
John ()
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Re:DLA review & the HIV+ Community 7 Months, 2 Weeks ago  
Updates availible at http://www.hivbenefits.co.uk.

We have received a message of support from Ann Mitchell, Actress you may be interested in reading.

Most of what we do is in the background writing, lobbying and challenging.

I read with interest every day the posts from other on here. Thanks for that it all helps and of course my best wishes are with everyone who comes up against the DWP.

Keep well!

John
 
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Last Edit: 2008/05/24 18:04 By Gareth56.
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#1242
John ()
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Gender: Male Location: London
Re:DLA review & the HIV+ Community 6 Months, 4 Weeks ago  
Hello All,

Well it's been a busy time. My partner and I both received positive results on our DLA review.

We are pursuing some legal stuff at the moment. As Jim suggested in an earlier post, TCell.org.uk (the group formed from the HIVbenefits Website), is engaged with Lawworks to find a "pro bono" lawyer.

I will post more on here as this progresses.

Having spoken with Lawworks I found them very approachable and the paperwork not to bad.

June Brown who has been a friend to us all received and MBE today.

Currently engaged with lobbying as per the website http://www.hivbenefits.co.uk

Best wishes to you all, you are never far from my thoughts.

John.
 
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#1359
John ()
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Gender: Male Location: London
Re:DLA review & the HIV+ Community 6 Months, 3 Weeks ago  
Hello All,

Good to read about the recent court case.

This week we heard of someone with HIV & other medical issues having their DLA completely removed from High Care / Mobility.

They saw a benefits advisor who provided them with a questionaire for them to have completed by their doctor.

This was then sent to the DWP where they challenged a decision on the basis that they would go to appeal.

They then heard very quickly from the DWP that they had completely reversed this decision and re-awarded High Care / Mobility.

Avoiding an oral appeal on the detail and thus a judgement.

http://hivbenefits.tcell.org.uk/content/dla-stopped-1 if you want to read the story and access the information.

Best wishes to all,

John
 
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