Complex cancer surgery 15 years ago ongoing proble

Apologies this is very complicated and long. Please could someone advise me. I was diagnosed with a rare cancer 15 years ago and had to have extremely invasive surgery to get rid of the cancer. Due to the rarity of the cancer type I had they did actually misdiagnose me for approx 18 months, hence the extensive surgery I had to have. I have been on DLA since August 2001 and my last claim I was given high rate mobility and middle rate carers which was a life long award. I am 63 now.
I have received a letter to say I have to ring them if I wish to claim PIP which I do.
I have just been reading some of the information about making the claim and the telephone call.
From 2001 to 2007 I saw a few pain specialists to see if they could give me anything for the extensive nerve damage which I have been left with, I also have a copy of the letter the Pain Specialist wrote to my GP where he states the nerve damage and pain will never improve and I will have this for life, this letter is dated 2007. I have just seen a comment where the say they want as much evidence as possible and this has to be within the last 2 years?
Due to the fact no one can give me any help with the many problems my GP was left to try and help me. I have not been to see anyone regarding my problems since 2007 as there is no medical help out there for me. I did have to have biopsies done on 2012 and 2014 for possible recurrences, thankfully they both came back clear.
I have serious concerns about my claim for PIP now, more so as it is such a rare cancer and if the Gynae's missed it due to lack of awareness of it, how will I get on at a medical and with the form? The ongoing problems can sometimes be treated with some nerve pain medication which my old GP tried me on but unfortunately I could not tolerate the medication. It is also an extremely sensitive cancer which is already causing me distress knowing I will have to go into detail with a complete stranger. I also suffer with depression, anxiety and panic attacks along with other health issue.
My GP of 30 years who looked after me all this time retired 18 months and he had managed to get me sorted with a self management pain plan with meds and other aids. My new GP has no idea about all ongoing problems.
Do you think I should go and speak to my new GP and make him aware of my ongoing problems so he can look back in my file? I wondered if I should write a list of all my problems so he could look into my records?
I am confused and extremely stressed about this as everyone else has been, and where do I stand with not having any recent medical treatment for my problems?
Apologies for this being so long but I am desperate for some advice on these issues and hope someone can give me some answers, I found this site last night and joined it. Thank you

Carol
If you cannot talk about all you medical problems it might be a good idea to type up a medical life history document with dates. I had a Giant Cell Tumour removed from my tibia(1985) and lots of further operations over the years the hospital can not do anything more for me regarding the pain so I am on supported discharge since 2012. When I went to the medical I gave my medical history to the assessor and said "if I get upset please read this please" It also helps with dates.
Just send any copies of hospital letters reports with your PIP form and tell them all the medication you have tried.
I have this document on my telephone and its been very helpful when I have to go to hospital.
My GP has also got a copy with my medical file.
Assessment was only a couple of weeks ago so I'm waiting.
All the best for you PIP journey.

Thank you Gordon, I am just in the process of making a list of all my problems and then I will make an appointment to see the GP and take a list for him. In the mean time I have have been reading your info which has been extremely helpful when I fill my form in. There is deadline on the letter to call them, Is it ok to leave this till about 10 days before so I can look at all the information I have found so I can get my head around all the info? I have done the self assessment and with both I had a lot more points than I need according to what I have read Thank you again Carol

Hi Carol,

We don't recommend leaving it to the last minute to initiate the claim - but 10 days should be fine.

Thank you Janice, Sorry to hear you of your diagnosis. You will understand the psychological trauma this brings along with life long problems and more so when they tell you they cannot do anything for your pain. Being in constant pain is so debilitating but sadly but not a lot of people realise this.
Thank you for your excellent advice I think the life history document would be very useful to have and it would give a much fuller picture of what I have been through. I never got any kind of supported discharge but glad you did. My GP at that time tried every possible to help me to no avail. I have a lot of info dating back to the early years after surgery and I have decided I am going to send it all to them so they can see clearly, I doubt they will be too pleased when they see them all but I think its important they do as all my ongoing problems are related to the surgery in 2001. I will also be taking copies to my new GP so he doesn't have to look through all my notes.
I hope you get some good news about your assessment and soon. Good Luck! I will keep an eye open for your results Carol