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5 years 6 months ago #218240 by Gill
M.E. was created by Gill
Hi.
I am at the moment in the ESA WRAG but I need to be in the ESA support Group. I really suffer with ME, and very severe Depression and and anxiety. I have completed your Support group questionaire and, according to this I do qualify for the support group.

The question is, is there any members who have M.E and have gone from the ESA WRAG to the Support Group? If so are there any tips?
Gill

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5 years 5 months ago #218564 by lou.q
Replied by lou.q on topic M.E.
I also have ME. I have been in the support group for quite a few years now. I was taken off ESA over 3 years ago and asked for mandatory reconsideration and I remained in the support group. I then got a ability to work questionnaire back in June this year and now its the end of September and have not heard anything from them. I did ring them couple of weeks ago but they couldn't tell me anything so I am still sat here worrying whether I have another fight on my hands. If the Government hadn't changed the age of pension entitlement I would have been getting my state pension over 4 years ago. As it stands now I have to wait until January 2020 before I can get it. At the end of the day I think a lot has to do with who assesses you get at the face to face. The last medical I went to the lady also had ME and it was like "if I can work so can you". But I was diagnosed with COPD and Bronchiectasis just before the face to face and this was not taken into account when I saw her but it was taken into account when I asked for a mandatory reconsideration. All I can say is you have to fight and do not give up the fight and try to stay strong even though it is hard at times. Good luck

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5 years 5 months ago #218793 by LITTLEBAY
Replied by LITTLEBAY on topic M.E.
Hi

Action for ME has a helpline for benefits if you wish to have a chat with Anna the benefits advisor. There might as was my case be other things you are missing.....taxicard, energy payment or PIPS.

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5 years 5 months ago #218859 by canttrusthesystem
Replied by canttrusthesystem on topic M.E.
Hi - I've got ME / CFS (which usually have other conditions associated with them - it's probably worth listing those too) and have been in the Support Group since transferred from Incapacity Benefit. I've followed the 'Guides' on here in detail - making sure I explain everything in detail - particularly noting all the stuff re safely, reasonable time, repeatedly, reliably etc. and what pain and abnormal levels of physical and mental exhaustion prevent me from doing and what activities aggravate my condition , and repeating everything in each question, as necessary, and also making a very clear and detailed statement about how my condition affects my everyday life. It's tedious and laborious, and punitive, but it's worked - so far. I also send in supporting medical evidence from my consultant etc., documentation of aids etc.

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5 years 5 months ago #218863 by canttrusthesystem
Replied by canttrusthesystem on topic M.E.
Another thought - the NHS, NICE and the WCA handbook tend to refer to it as 'Chronic Fatigue Syndrome' or 'Chronic Fatigue' - at the moment, anyway - perhaps changing your terminology could prove useful?

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5 years 5 months ago #218864 by canttrusthesystem
Replied by canttrusthesystem on topic M.E.
Re lou q's medical assessor also stating she has ME etc. - there are very clearly medically accepted different 'levels' of CFS / ME - if you 'google' 'NICE CFS' you should find the 'official' stance on this. Just like many illness or disabilities, it can affect someone mildly, moderately or severely - the assessor's statement was clearly ludicrous - but the NICE info should give some clarity if anyone needs info to 'argue' on this.

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