PIP Declined for Rare Syndrome

Hello, I suffer from a rare and extremely violent form of aggressive Vomiting, which has been medically defined as (Cyclical Vomiting Syndrome). This condition has plagued me for over 11 years and counting now. I am in need of advice as to how to challenge years of DWP decision not to allow me onto PIP? This, due to only receieving two points! The last challenge i did in mid 2015 (if memery serves) caused me to be hit extremely hard by the DWP Work Capacity Assessment process which only made my Cyclical Vomiting and (mental) health worse!

Any help and advice much appriciated... Lex

Gorden

I have problems with all the activities describe as descriptors, only scoring 2 points for Washing and Bathing. All other tasks i scored 0!

The assessment only took into consideration as to the time when i come out of Cyclical Vomiting attacks which the Cyclical Vomiting attacks have always mainly occurred during the early hours of the morning. Approximately from the hours of 1am onwards, and now mainly on weekends. This means i never get any sleep during normal sleeping hours, which in turn after 3-5 days over continuous vomiting, or more depending, i am completely fatigued, dehydrated and of extreme low mood and have no desire to motivate myself; all due to being deprived of continuous sleep, adding to the on-going continuous aggressive vomiting, painful retching and extreme nausea leaving me in what i describe as a delusional and void state of mind.

Moreover, the fact that during Cyclical Vomiting Attacks i have to sleep on the floor which ‘eases’ the sensation of the strong nausea attacks, as laying low opposed to laying “high” on a ‘raised bed’ (bed base and mattress) helps a little to rescind the sensation of nausea. This means i am in added bodily pain after the current cycle of vomiting attacks occur, due to the floor being ‘hard’ on my body which during recovery leaves my entire back, abdomen, neck and chest in much long aching pains.

The entire Cyclical Vomiting process means my recovery takes a long time before i am able to bath to relax my aching internal organs, muscles and mind and then come to ‘rational terms’ as to what has just happened. I then have to go without solids foods between 5-6 days due to stress, pain and what feels like internal bruising, extreme loss of appetite and the thinking of food making me feel the sensations of ‘sickness’ (potential vomiting). At this point, i cannot do anything but lay on the floor for the next 5-6 days straight.

Gorden

Thank you for the information.

My attacks are occuring every 1 to 2 weeks on average. At the time i submitted my first PIP application mid 2015, i was currently in supported housing, specifically due to my CVS and Homelessness caused by the CVS. The support staff supported my application to explain and describe my inability to look after myself for most days, during and after CVS attacks for up to three weeks after CVS attacks occured. So am unsure what else i could have done to explain and support my application.

I am no longer in supported housing and currently have no support in place to help me cope with my CVS condition. I will read the Descriptors as suggested for more guidence.