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Can you help us to inspire people to claim PIP for themselves or, perhaps more importantly, to help other people claim PIP?

Many years ago, not long after the turn of the century, we wrote a guide to claiming DLA. As part of that process we asked claimants what difference getting DLA had made to their life.

We got answers like these:

‘Since getting DLA my confidence has definitely improved’.

‘DLA pays for me visiting the hairdresser once every six weeks and has made me “rich” enough to be generous, i.e. the odd bunches of flowers for friends’.

‘Getting DLA makes it easier for me to travel a lot more, because I can go by taxi’.

‘DLA has got me to Turkey, France, Wales, Scotland, London, etc. In other words – a new life’.

‘Before I got DLA I didn’t have enough to live on, so it has made an enormous difference to my life. I now feel more independent too and life has become less of a struggle’.

‘Since getting DLA I feel more dignified being able to pay for help’.

We’re currently working on an online training course for would-be moderators for the site.

It will be a hard slog completing the training and we realised it would help if people doing the training had a vivid picture of the difference they could make to other people’s lives, if they help them with a successful claim or appeal.

So, we’d be really grateful if you could tell us in a sentence or two what getting PIP means to you.

You can add a comment below this article or email us at info@benefitsandwork.co.uk

We will change your name, if you give one, and we will not disclose your email address to anyone.

But please give us your quote on the understanding that you are also giving us the right to edit it (only to correct spelling or shorten a quote) and to reproduce it on the site or in any other documents we produce, such as guides to claiming PIP or training guides.

Comments  

#17 Asbo 2019-07-12 12:38
Oh I meant to say that PIP also helps me with heating. My conditions make me damp and cold so I need extra warmth much of the year and for drying clothes. I don't have to worry about heating and that helps me enormously. Thank you to everyone on this site. I have been a member for years and find the help and the guides invaluable and also use what i have learned to help others
#16 ELE1 2019-07-11 22:42
Having recently applied for PIP and now receiving this extra money has made such a difference to my life. For some 25 years I have been living on what can only be described as a tiny income, hardly enough to cover my utility bills.
I have relied heavily on friends and family for which I have been lucky to have at all. Now I am able to be independent in my own right and it has taken a lot of stress away. Having a long term illness is bad enough in itself but struggling financially on top of it is intolerable.
Any extra worry serves to exacerbate my symptoms, now I am able to call a taxi if I have to make a necessary journey . It has literally given me a better quality of life.
I would advise anyone who feels daunted by the form filling to use your guides as the system is complicated and not fair. The knowledge I have gained on this site has been invaluable and I thank all of you for your constant help.
#15 Asbo 2019-07-10 20:09
PIP enables me to pay for transport and help to go on holiday once a year, to see family members by paying for a lift by enabler or to get a taxi. It enables me to stop worrying. It helps me to pay for help in the house or garden, altering clothes or being more expensive things that I need online without worry. I need adaptations to my house and it will help with those too. I had the mobility taken away after having it for twenty years but I got it back at MR.
#14 jacky 2019-07-06 13:37
When I changed from DLA to PIP I was initially refused enhanced award for mobility and care(which I had been receiving for 10 years), but this was overturned after an appeal. Having a mobility car , which carries my mobility scooter, means I can retain my independence and not have to sit at home all day.
#13 Camly91 2019-07-05 11:10
DLA means survival. It means i can pay my carer, so i can get a proper meal 3 nights a wk, get my hair washed & manage my meds. It means I can leave the house for a couple of hrs once a wk (if well enough) & be around people safely, so am not quite so isolated.

Am terrified what will happen if i lose it in the transfer to PIP as i have no family to help me. Life is pretty grim already, I am so very lonely & isolated... without my carer it would be.... well.... not worth living really.
B&W forum & guides have already helped me so much, i know i have given myself the best possible chance of success.

If you use this quote & need a name, please call me Beverley :)
#12 David1953 2019-07-04 12:39
Great Site Here!
P.I.P. enables treating the many Grand children!
Plus it gives an income, which takes some of the worry off daily living.
I get middle care and lower mobility,as ever the points were all wrong for me, but added ok so I left it!
I have neck pain, arthritis, blue badge stuff.
With mental health struggles with the usual tedious depression and anxiety.
I get good care, go NHS!
#11 Squirrel 2019-07-03 23:39
PIP has changed my life. I was medically retired but only have a very small pension not enough to live on. I live alone so have to support myself. PIP has allowed me to be self sufficient and I just could not do without it. I was so afraid about how I was going to manage that I became suicidal, I was petrified when they came for the home visit,
especially because I had had such a dreadful experience with my ESA face to face to the point where I am still upset by it years later. This assessment went ok though and I was hopeful and then so relieved when I was awarded high on both components. I can pay all my bills and pay for someone to cut the grass etc and buy some of the things my daughter needs for university. They are no longer legally classed as dependants but they are, and they have to be fed when they come home. I am so very grateful to have PIP. I just hope the small improvements in attitude towards benefit claimants continues to grow and influence the system for the better.
#10 RedRed 2019-07-03 21:56
I was eventually awarded lifetime DLA, high rate mobility, low rate care, in 2013. The peace of mind of no more assessments for DLA was priceless.
I knew the 'transfer' to PIP was coming and it did in 2018. It was extremely hard, not least because I didn't know what they wanted. I gave them highly detailed full answers, following the guides here, but turned out a sentence or two would have been sufficient, as it was for someone else I know who had help from the CAB.
I failed every step of the way, no surprises there. I have done these assessments long enough to ignore what happens at these early stages. The most important stage is the appeal tribunal where a judge decides. Usually, they are fair, but once I had a nasty hostile one, they are out there. But it didn't get that far this time, someone at the DWP reviewed my claim before it went to appeal and passed me.
I am told I will be reassessed for PIP, it's not lifetime, but it will be 'light'. Let's see. In the meantime, I don't have to worry about money, I can eat, pay my bills, buy the occasional treat or present. I feel like a normal person again. I've got my self respect back.
#9 Ortrud 2019-07-03 20:14
Since managing to increase my DLA award to middle rate care and high rate mobility back in 2002, I have been able to pay off my mortgage and now have a much easier life.
The battle now is to go through appeals procedures to get enhanced rate for both parts of PIP instead of standard!!!
#8 Linnty 2019-07-03 17:34
Using your guides I have successfully claimed DLA, then transferred to PIP with an ongoing award for standard care and enhanced mobility. Without your help I would have found it almost impossible to fill in the forms correctly. The extra money has allowed me to stay in my home and not worry about how I would pay my mortgage. In the beginning I used my PIP to buy a small powered wheelchair; it has opened up the world to me and given me back my independence. All thanks to Benefits and Work and the guides and assistance from the moderators.
#7 giddy 2019-07-03 12:57
I Have been extremely lucky to have been awarded the enhanced rate in both care and mobility as im autistic and suffer other mental health problems as well as severe osteoarthritis making walking very difficult i had the dreaded brown envelope through my door in January it took 6mths before i heard anything then i got a f2f assessment appointment luckily i got a really nice lady and 6 weeks later i got confirmation i don't have to face assessment for 3yrs my benefits mean i can keep warm eat healthy and treat myself to a trip to the cinema now and again it makes the world of difference to me
#6 Denah 2019-07-03 12:10
For my husband, who suffers very much that his condition is one that people don't see, being awarded PIP is a validation for himself that he actually IS disabled with his illness.
+1 #5 spinner48 2019-07-03 10:49
Hi. PIP has changed my life because;
a. was frightened about filling in the form and getting it wrong
b. I was frightened by the idea of a face to face interview
c. I was frightened, too, about how I could manage without the award.
I am a 69 year old woman, for goodness' sake, with good degrees and a working lifetime in public service - why on earth would I struggle when I hadn't even received the form!
Now it's over and I have been awarded the enhanced rates for care and mobility needs. Even more stupid I feel that I'm validated with needs because of my disabling conditions. AND NOT A FRAUD !!!!!!!!!!!!!!! !!!! When they gave me the award they wiped my "lifetime" DLA and have me 2 years before my next assessment "to see if I still needed the award! Great!
+1 #4 jackie50 2019-07-03 10:35
PIP has enabled me to afford to adopt & keep a rescue dog. Georgie has done more for my mental health and wellbeing than anything else. We are rescuing each other.
+1 #3 Pat Balshaw 2019-07-03 10:13
After struggling to pay bills and put food in the cupboard for a long time, PIP is a godsend. My mental health has also improved because of the fact I have peace of mind now. I can also pay someone to come in once a week to do the heavy housework for me like changing the bed, doing the washing, hoovering etc. It has definitely improved my life - without it, I probably would'nt still be here tbh!
+1 #2 Glenis 2019-07-03 10:02
I'd been awarded lifetime DLA in 1985, but as I was only 63 when the new legislation came in in 2003, I had to apply for PIP. I was extremely worried about this as I'd read so many horror stories. Even though I was then much worse that when I'd first got DLA, that didn't fill me with confidence. Eventually, with help from the Benefits and Work guides, and my local Welfare Rights, I was awarded Enhanced rate for both Care and Mobility, albeit for only four years. I felt so lucky to get this, although it shouldn't feel like luck, it should be justice! The reason I was so elated was that I'd been worried sick because I'd relied on the DLA to help pay my rent. Now, having got PIP, I knew I could carry on paying my rent. The fear of not knowing how I was going to pay my rent, and what would happen to me, if my PIP claim had been denied, had made me ill, but now it felt like such a big weight had been lifted off me.
I'm now two years into my award, and know that any time within the next 12 months, I will be called to repeat this process, does not sit easily with me, and is never far from my mind.
I think a major flaw to this whole system was if a person was already on a lifetime award of DLA, they shouldn't have had to go through all this trauma for PIP, and after some questions had been asked, should have been left to stay on DLA.
I can only hope that before I'm next called to go through this process again, that some rulings will have been changed. I really believe that anyone who has chronic illnesses that will not improve, should only have to fill in a short statement saying nothing had changed for them, and that will be enough for their claim to continue. I know this is in the pipeline for some conditions, like MS, but it should go further as there are so many more conditions that affect people in this way, that we'll never get better from. Personally, I have a total of 23 conditions, many of them Autoimmune, from which I'll never recover.
#1 CLINE 2019-07-03 09:57
DLA has enabled me to pay for alternative treatments to help my general well-being. Without it I would have nothing but medication which is great but doesn't help your mind and soul, when living with chronic pain.

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