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PIP and chronic pain

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6 years 3 weeks ago #229040 by totsima
PIP and chronic pain was created by totsima
Hi, I'm applying for PIP for my chronic pain conditions (persistent headaches and facial pain, migraines, fibromialgia and many more...). I wrote a draft of the application and I'm now analysing descriptors. I feel like most of them don't apply to me at all. When I have flare ups I don't do things at all and I need help but I not always get it. How can you "manage this task safely, reliably and repeatedly for the majority of the time" when you spend most of the time in bed? I force myself to do things because I have son with special needs. I often drag myself out of bed but is that normal? Does that mean that if I manage to get out of bed I'm managing that task well enough? Whatever I do, I do it in pain, but I feel that descriptors don't take it into account. What if I clean the bathroom on one day and for the next three days I'll have to stay in bed because of pain and fatigue? I had a look at the consultation report form and I realised that it all depends on how I describe my difficulties. What's the best way to approach it when writing about chronic pain?

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6 years 3 weeks ago #229051 by Gordon
Replied by Gordon on topic PIP and chronic pain
Magda

Welcome to the forum, you might want to have a look at the following FAQ which explains where everything is

Welcome to Benefits and Work

First of all, if you haven't already done so have a look at our PIP Claim guide.

www.benefitsandwork.co.uk/help-for-claimants/pip

Next, you need to concentrate on the PIP activities, I can understand the impact that cleaning the toilet might have on you but it is not anything that is considered for PIP and won't help you to score points.

If you do things for your son then it is going to count against you, so as an example; if you prepare and cook a meal for him every day it will be difficult for you to show that you cannot do this, although not impossible.

So think about the things you do for him, perhaps make a list and then cross-reference it against the PIP activities that you are being assessed against, highlight where there is a conflict but also consider where there could be; again as an example; if you wash his hair, is this the same as you washing your own hair and if not why?

Break each activity down into tasks, so you could separate preparing food and cooking it, then think about the problems you have with each task, they may be the same but they may also be different. For each problem, explain why you cannot do it and why. You need to also explain why a suitable aid would not help and why assistance from someone else would not. If this is because you cannot get out of bed then explain this.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: totsima, jakkijax

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6 years 3 weeks ago #229062 by totsima
Replied by totsima on topic PIP and chronic pain
Thank you Gordon. I'm already following the guide. I really like the idea of breaking each activity down into tasks. My son has just turned 16 and I'm his carer. He needs mental support but he is the one who helps me physically (if he is in the mood). He cannot cook unsupervised and he needs my instructions but sometimes I can't talk because of pain. On days like that we don't cook but I use frozen meals made in advance by my mum or my son gets some ready meals and I eat a sandwich (I have food intolerances so I can't have ready meals). If my condition varies, should I write about my good (or worse, as I never have good days) and bad days or only bad days as many people suggest? I'm often in bed for 4-5 days out of 7.

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6 years 3 weeks ago #229079 by Gordon
Replied by Gordon on topic PIP and chronic pain

Magda wrote: If my condition varies, should I write about my good (or worse, as I never have good days) and bad days or only bad days as many people suggest? I'm often in bed for 4-5 days out of 7.


I would explain how you are at your worst, on average and at your best, the latter does not have to mean without problem, make sure you explain how long you are affected in each way, you should be assessed on how you are limited on the majority of days. There's a section in the guide that covers fluctuating conditions.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: totsima

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