Fewer than 4 in 10 new PIP claimants in England and Wales got an award of PIP over the last five years, according to statistics released by the DWP this month.  The figures also show that there is a 32% chance of being worse off after your award is reviewed.

The latest statistics cover England and Wales, with separate statistics to be produced for Scotland as adult disability payment (ADP) begins to replace PIP.

Five year figures

The figures show that for the five years from August 2017 to July 2022, just 39% of claims for PIP resulted in an award.

Out of a total of 2.5 million claims, 600,000 were disallowed or withdrawn before the claimant had an assessment.

Of those who actually got as far as an assessment, 50% got an award of PIP.

The DWP also produced figures for planned award reviews for the five year period:

  • 18% award increased
  • 49% award unchanged
  • 10% award decreased
  • 22% award disallowed

So, the chances of being better off as a result of your award being reviewed are 18%, whilst the chances of being worse off are 32%.

Latest quarterly figures

As well as five year statistics, the DWP also provided  data for the quarter ending in July 2022:

180,000 new claims were registered, the highest level since PIP began and 21% higher than the same period last year.

44% of all claims, excluding withdrawn claims, got an award.

50% of all claims that got as far as an assessment received an award.

Of claimants who got an award:

  • 78% of claims awarded were short term (0 to 2 years)
  • 11% were longer term (over 2 years)
  • 10% were ongoing

 60,000 mandatory reconsiderations were registered in the latest quarter and 80,000 were cleared.

Only 23% of mandatory reconsiderations led to a change in the award.

The average time taken for a mandatory reconsideration was 26 days, down from a high of 79 days in September 2021.

120,000 planned award reviews were registered in this quarter, but just 70,000 were cleared.  So the backlog of award reviews which has caused claimants such difficulty and has led to automatic 12 month PIP extensions continues to grow.

You can read the full statistics on the .gov website.

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    Ruzi · 23 hours ago
    Iam one of disabled person   this reform on pip  will be big punishment for us i totally do not agree with this ,they should make changes on assessment  system which make us so stressful to go to Assessment, 
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    Cat · 1 days ago
    Where have the comments on the MM judgement gone??
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    Raj · 2 days ago
    I am a Pensioner 68 with PPMS, I worked as a care worker 10 years supporting people with severe challenging behavior's. (believe me its tough when you have MS, fatigue, balance problem, frequent urine runs, Constipation. Anyway applied for PIP and accepted. Now 68 with MS progression and pensioner with only 400 a month and with PIP payments am able to survive. I don't know what and how coupon's will help me. As my partner is also disabled with a similar size pension as me and gets a small amount PIP we manage, We are both pensioners. Now  we are all worked up how we will manage financially . Its always the deprived and disabled who pay so that the wealthy can accumulate more. Very concerned. 
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      John · 2 days ago
      @Raj I am not sure you will be affected by this reform if you are a pensioner as you will have been given a 10 year award with a light touch review. As I understand it the proposals are focused on those of working g age.

      Of course I nay be wrong.

      I know the proposals do not affect Attendance Allowance.

      I ha e found little reference to thos of us who have pensioner PIP and who qualified as a result of the "timing" of our award.

      I can't see that we would be targeted whilst not targeting those on AA.

      Clarification would be helpful 
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    Mags Seaside · 2 days ago
    I tried to complete but got confused all the asking me to provide evidence for my reply.     It just frazzled my brain so heavens knows how bad any new rocess will be but hopefully Ill be six foot under before that happens and they force me to an early grave,
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    MR BUSY HEAD · 9 days ago
    to evryone in this chat, it is lost on me that nobody advises (eligibility re benifits) that even though i can hold down
    a job ,care for my mum who has bi-polar, care for other people when needed but i live like a tramp in my own flat which was an impulse buy to be near my mother . 2007 then after the credit crunch the following year i lost 25g lol ! my issue is not that however over the years since i was diagnosed 2018/19 with ADHD
    and obviously with covid taken into account ... the state of the amht has been shocking and five years on im still struggling heavily with lack of support and no regular doctor to have any kind of rapport with bar one who is now retired... if i have to explain to yet another stranger who has not checked my files and get upset explaining my suicidal thoughts ,depression,anxiety and agrophobic traits not to mention recently 
    started having spontanious ticks,,,,,,, ive lost any hope, plenty of money due to being hopeless managing 
    bills etc .....and the icing on the cake is that i am still getting no suitable medication , i am 47 and been looking after my wee mam since 15....... THE SYSTEM IS BROKE like my head. gonna apply for PIP, just dont 
    know where to start.  we all have our circumtances but i'm sure some people will have similar issues....
    my last boss shrugged his shoulders and said i just don't get it... like that appeal judge.... Morons! 
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    G T · 18 days ago
    Hi I was diagnosed at 6 with adhd at GOSH. I used to receive DLA until I was 16 but stopped taking my meds etc due to feeling controlled as a minor. Since then I have struggled and affected my mental
    Health etc. I am now 36 ,can I still apply for PIP . ?
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      ravenmiss · 18 days ago
      @G T Yes, you don't need to be on meds to claim. It's about how your condition affects you. 
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    Rhea · 22 days ago
    My transgender daughter has just been diagnosed with adhd i don't know if she should apply for sdp she is already on it due to mental health or do i not bother telling them?
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      Mossington · 1 days ago
      @Rhea I read today that they are going to change the "how it affects you" thing not sure how or what to
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    C · 28 days ago
    Hi all, I have been diagnosed with adhd and anxiety and I have done the pre assessment for autism
    I am a late diagnosis, female on my 30s.

    I am considering apply for pip as a have plenty of extra expenses with therapy, or not have more sick pay left because everytime there is no medication I go into a downward spiral or getting back gives me initially side effects... I have papers, from my home country and UK too.
    I am scared to make a phone call and go blank as usual.
    Could anyone explain me a little bit better the process? 
    Shall I wait for my autism assessment? I might have to go back home to get it done because here takes 33555 years or you think it's irrelevant? 

    Thanks 
    C
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      Elaine · 1 days ago
      @C I think you need to either join the membership on here or go to CAB for a better explanation of what your asking 
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    Jase · 2 months ago
    Had my tribunal yesterday, it was horrendous. They used me going to the gym very early morning or very late at night against me and the same with walking my dogs. They also said “do you leave your children unattended when you go to the gym or walk your dogs” which for me was a ridiculous question because they’re old enough, i was close to completely losing my temper then. The judge kept saying he didnt understand my struggles and didnt seem interested in adhd, he seemed to be one these that doesn’t ‘believe’ in it! He yawned, rubbed his eyes, looked at the clock and huffed and puffed the ENTIRE hour i was in there. He also said he couldn’t understand why i can drive a car but not cook, just kept sayin it made no sense to him. Im awaiting the decision via post. I’m expecting to be disappointed after yesterday. Im thinking of getting welfare rights involved and complaining about the judge, what do you guys think? 
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      Mossington · 1 days ago
      @Sharon I think I've been fortunate to get my PIP. I didn't think I would going on what people tell me. I can walk my dogs some days but have to stop and rest, I use the pip to pay for a dog walker. I'm a competent cook or was however I leave pans on the stove because I forget I'm cooking or I have gone out and left them on. Again I think it's about how our issues affect us. I have to sit to chop veg etc because of chronic back ache it's not the cooking perse but the organisation and lack of motivation. So maybe going out in the car is getting you out of the house. I haven't worked for four years because of my back...I was a waitress in a busy hotel. I moved to reception work but I couldn't do the computer stuff so I was "let go" I don't like being at home alone. The general public have this idea that people on benefits are lazy layabouts, this is far from the truth. My support worker suggested recently that she thinks I may have ADHD I'm 66 years old why has nobody ever picked up on this before?
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      Sharon · 26 days ago
      @Jase How do they know of the gym?
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      VikingMermaid · 29 days ago
      @Jase Gosh, that sounds so bad.  I would definitely seek advice from CAB (Citizens Advice Bureau).  I think I would be absolutely rubbish having to go through a tribunal, because my impaired memory means I can't recall appropriate examples of what I struggle with, and would give overly wordy explanations of whatever first jumped into my mind.  

      It sounds like you have definitely been unfairly treated, and I would definitely go to CAB to see what right of redress you have.  Best of luck :)
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    David · 2 months ago
    I am 58 years old now and I am on esa and adp scotland I'm on the enhanced rate for both elements I was in special education in school all through my schooling and not one Dr has ever diagnosed me with adhd as my neice has said that I should be getting a diagnosis for how do I get my Dr to agree that I have adhd?
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      VikingMermaid · 29 days ago
      @David Your GP can't assess you for ADHD (unless he/she is qualified as an ADHD assessor).  Online you'll find lists of ADHD traits - so write out a list of all the ones you feel apply to you, and the difficulties they cause you in your day-to-day life.  Then take this to your GP, and be very specific about asking to be referred for an assessment (as long as your GP has good reason to refer you - which he/she will have because of the list of symptoms/traits you've shown them - then they can't refuse to do this).

      NB, some doctors ask what you would benefit from if you were to be assessed for ADHD - some say that, if you've had it for this long, you're obviously coping.  Don't be fobbed off by this!  For some of us, the benefits are simply getting an answer as to why we have struggled so much for our whole life (and an explanation for our own low self-esteem, and/or anxiety, and/or depression). 

      For others it is knowing that you might be able to access help and support for dealing with it - with ADHD that is primarily through medication, which has a very high success rate (ca 69% after trialling the first medication they prescribe for you, up to 80% after trialling two or more medications).  That in itself is a great reason for wanting to get a formal diagnosis (for some, the meds can be like a magic bullet, though for others, like me, there was no great improvement).

      Warning.  The waiting lists for ADHD and autism can be crazily long, though (a few years ago it was 7 years for ADHD in Devon!).  You might want to look up Psychiatry UK and 'Right to Choose' - under Right to Choose (an NHS scheme) you can apply for a private assessment, which the NHS pays for.  Waiting lists for Psychiatry UK are still not short (somewhere between 6 and 12 months now, I believe; it used to be only a few weeks a couple of years ago!) - but much quicker than waiting for an NHS assessment.

      Good luck!
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      Emma · 2 months ago
      @David You will be referred and remain on a waiting list which then you will be assessed and can be given a diagnosis 
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    Michelle · 2 months ago
    I was diagnosed with bpd in 2016, iv been receiving pop since then but I only get standard daily living. I have recently also been diagnosed with asd and adhd and complex trauma and  have been told off numerous people I should be getting enhanced daily living and mobility. I’m scared to do a new assessment process after bad experience the first time around. Does anyone have experience with simply updating your diagnosis with pip? Do you need to go through a full new assessment from then? 
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      VikingMermaid · 29 days ago
      @Michelle Michelle, sorry to hear about your bad experience.  I don't know the answer, I'm afraid.  I would definitely contact your local CAB (Citizens Advice Bureau) and ask them for advice and support.   They have been fantastic for me and my daughter.  Good luck.
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    heather · 4 months ago
    Hi is there any similar information for claimants on other benefits for ADHD? I'm in the ESA support group with a qualifying disability premium and I also receive both components of PIP at the enhanced rate, it only took me 55 years to be diagnosed it's nice to relax No more sanctions.
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      B1uebe11 · 2 months ago
      @Claire How did it go, Claire? I've got mine in two days. A video call.
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      Claire · 3 months ago
      @heather Heather did you have a phone assessment can you give me any help in coping with it mine is in two days I'm so sick over it 
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    bJ · 5 months ago
    Hi, I`m new to the forum can anyone sugn post me to the ADHD webinars, I could do with some help as I have my PIP assessment on Dec 7th. After reading the posts, I am very nervous about it.
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    Anonymous · 5 months ago
    I’ve been refused twice for pip. I feel it’s very unfair. I am winging my life… I’m only just able to get myself to work. One thing at one time I am able to navigate and if anything changes game over. My home is always a bomb site. I’ve taken picture but feel they would refer me to child protection if I submitted those as evidence. The strange thing is when my child is home it’s a show home (I share residence with my child’s father) I don’t know where to turn to get help. I am in debt up to my eyeballs too because I simply can’t manage finances. Any advice/guidance would be very appreciated. 
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      VikingMermaid · 29 days ago
      @Anonymous Anonymous, please do ask for help and support from your local CAB (Citizens Advice Bureau).  They have trained workers who understand the forms, and what each descriptor (questions) needs in order to be awarded points. 

      Very importantly, they are good at being able to tease out (and put into logical sentences!) the difficulties you face in each area of daily living or getting around, things we wouldn't think to put down because they are so 'normal' to us.  I was so surprised at some of the questions asked about my daughter's struggles, and so thankful I did get help and support from CAB in filling out the form.  (NB the advisor we had would write down sentences as answers to each question/descriptor after we discussed each one in turn, then read them back to me, and I could add in bits, or say 'no, it's more like this...', so you feel happy that it is a true reflection of your difficulties.

      I totally get where you come from re 'winging' your life; that's exactly how I feel about my own.  Please do contact CAB.  Good luck :)
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      Anon · 2 months ago
      @Anonymous Did you appeal again? Please update us 'Anonymous' would be nice to know how you got on...
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    Cally warriner · 6 months ago
    I just won at tribunal, I was awarded high rate care and mobility. My award was backdated a year and extended to five. It didn’t even go to hearing. I did it online and got a notification to say it had been heard. A day later I got my letter. I went to tribunal because I had been Assessed 6 times in 5 years, the disparities in my awards we laughable. I’m currently receiving help to put together my case for a leap review. Don’t give up x 
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    Ann82 · 7 months ago
    i have claimed pip my son from being a child.then some years ago when renew  was due they said we had not had an official diognosis even though he had all the tests and had been on ritalyn untill age 16 .then without warning our GP saw fit to suddenly without warning withdraw this saying after age 16 they dont need it. then started withdrawl symptoms . at this point nothing had changed in his needs and he also had autism .from this point on we have to fight to get this help for him. i am a pentioner and its very difficult we always get  refused and have to appeal and the last two times we won but i am now 70 in poor health and i have worried all his life what will happen to him when i am not here.its heartbreaking for a mother .by the way my son is now in his 40s but cannot survive on his own without help.and help never comes unless you fight for your loved ones rights
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      Sarah · 7 months ago
      @Ann82 This is heartbreaking to read, I can totally relate to everything you’ve said.  My son is 18 now and has always refused to take medication as it didn’t agree with him, he lost far to much weight.  I think about what you’ve been through all these years together and can definitely say I will need to support my son also for when he’s in his 40’s, he just would not be able to cope with  me for example - rent / mortgage/ letters bills, working etc - I have to do everything not working but I do have to search for employment for him as he can’t do it, can’t  keep a job either, the longest job he worked at was just 4 weeks, he and I need more support.  
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    Maggie · 7 months ago
    I have enhanced rate daily living (but no mobility) PIP for ADHD, ASD and other health conditions.  I am 58.  I also supported both my daughters (aged 21 and 27) to successfully claim PIP.  They both have ADHD and one also has ASD.  They both have anxiety and other mental health issues, which is extremely common with neurodiversities.  

    I've just helped a neighbour's son with his PIP claim form  My advice is to get as many letters from specialists.  You can ask for an updated letter, even if you are not currently under their care.  You also need to give very specific examples of how the descriptors relate your condition - and expect to be turned down - always appeal!  I also subscribed to the PIP webinar, and downloaded the brilliant B&W PIP claims manual - I wish I'd subscribed before I submitted my PIP renewal form!  Both were invaluable resources.

    My biggest challenge is with getting young people to discuss the challenges and difficulties they experience with ADHD.  They often aren't aware that their difficulties are symptoms of ADHD, and the PIP form is designed to be humiliating and depressing.  It helps that I also personally have an ADHD and ASD diagnosis, and am very knowledgeable about the conditions, so often the form filling sittings (you need a lot of short, focussed stints with people with ADHD, because our concentration spans are limited!) turn into fascinating and sometimes hilarious psycho-education  sessions.  I'm really glad that Benefits and Work are tackling ADHD and PIP.  I help and advise families and young people affected by ADHD and other neurodiversities in my spare time, so I will definitely sign post them to this excellent site!
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      VikingMermaid · 29 days ago
      @M.B Your last sentence - hah!  ("I am good at giving the advice but not so much at taking it.")  I'm sure that is true for so many of us ADHDers. 

      I think very often we know what to do if we are able to actually stop and concentrate and focus (and then stay focused!) on whatever difficulty is causing us challenges... but being able to stop in the first place is half the problem, and then actually implementing what we know needs to be done is the other half, because of our procrastination and complete lack of motivation - in other words, how to get started, and how to stay on track without getting distracted.

      Add into that the often very low self-esteem (and self-loathing) many of us have, the 'learned helplessness', the depression and anxiety, the impaired working memory, it's easy to see why so many of us struggle.  Trying to complete a PIP application form without support is a nightmare scenario for us ADHDers and easy to see why many of us give up before we've even started!

      Thank you for all you are doing in helping others claim what is rightfully theirs :)
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      Mrs M · 1 months ago
      @Maggie We have our tribunal on 24th of April, my daughter has anxiety, depression, unable to keep a job due to poor mathematics and understanding instructions or directions. She would never survive independently, and she was turned down for her pip renewal due to coming across as a perfectly capable young lady. To my knowledge this is masking and is sometimes embarrassed to say that her mum washes her hair, and prepares her meals at age 23. I’m at a loss, I changed my job hours to have someone with her. Any help to get her help with this would be appreciated. 
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      M.B · 1 months ago
      @Maggie Maggie, can I just say you are the exact person people need in their lives to help navigate the minefields. I too support neurodiverse young people and their families and it is so interesting how we birds of a feather do flock to each other.  I have received standard daily living for the past 5 years due to fibromyalgia and ME/CFS and the wonderful depression/anxiety that comes with them. Now I am awaiting official diagnosis for ADHD and whilst waiting I am having a review due to my mobility becoming a bit more of a problem. 5 years ago I didn’t score high enough and didn’t have the energy to appeal but my specialist and some family support professionals I work alongside have said I need to ask for a review and if they do not grant an change in my favour I am too appeal.. I am good at giving the advice but not so much at taking it. 
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    GILLB · 7 months ago
    Went for assessment. Explained I wear earpods to distract and cut out noise. Found it hard as interviewee spoke to me and constantly typed in my answers, as I responded. Couldn't hear and concentrate on what she was saying to me. 
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    Me · 7 months ago
    Scared to actually reapply even though have plenty evidence I’m on standard daily I’m scared they’ll remove it completely so puts me off trying to get it increased for enhanced for both 
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      Sarah · 7 months ago
      @Me Please reconsider applying, I got knocked back first time then did a mandatory was successful at the lower rate mobility, I still thought I was entitled to the enhanced mobility so I put in for a paper appeal and was successful for enhanced mobility for an ongoing period 10 years.  My disability was from birth and will  get worse.  

      I also applied for pip for my son who has ADHD.  I was unsuccessful first time but then completed a mandatory and he was successful with Enhanced Daily Living.  

      Please don’t give up - give it a try I know it’s the worst form in the world to complete, I’m sure everyone can relate to this.  

      Good luck 🤞 
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    Laraine Patterson · 7 months ago
    My Neice has been waiting for a decision for 18 weeks for her 8 year old who will get DLA not PIP. she has so much evidence. My Neice also has hyper mobility and other learning difficulties. She was expelled from nursery at 3 years old as they said her behaviour was unacceptable. She had fought and fought but is still waiting for some help and support with no luck. 
    Her other 11 year old girl has severe anxiety as well as other behavioural problems. She hasn’t started anything it’s that daughter yet as the 8 year old wears mum out day and night.  Come on help her government she didn’t choose this for either girl. 
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      VikingMermaid · 29 days ago
      @Laraine Patterson Laraine, have you asked CAB (Citizens Advice Bureau) for support?  They are brilliant.  They work through each descriptor with you over the phone (book in an appointment to do this), looking at all possible scenarios that might apply to the claimant, then write down sentences for each descriptor that are applicable.  They then email this through to you.  

      They did this with me for my daughter (and her autism), and I was amazed at the things they suggested that I wouldn't have thought about, as challenges and behaviours become so 'normal' to you, you forget that they cause real difficulties in day-to-day life.

      My CAB advisor also told me to write on the 'any other information' page "I have been helped to make this claim by XX, from XX Citizens Advice Bureau".  I'm sure having this on your application makes the PIP assessor sit up and realise you mean business - and also it means that if you are turned down, your CAB advisor will automatically put in for a Mandatory Reconsideration - so they don't automatically brush you off.

      For the record, my daughter was given the Enhanced award, for both Daily Living and Mobility components :)

      Please do ask your niece to get in touch with CAB and ask for their support.  I totally get that she is worn out looking after and supporting her children.  Good luck!