No 4 point PIP descriptors results
| Submission ID: 1163019 |
| Date: 2025-04-09 10:31:30 |
| Nickname: Bella boo |
| Age: 45 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: EDS, POTS, RHEUMATOID ARTHRITIS, FIBROMYALGIA, POTS, PERNICIOUS ANEMIA, BOWEL AND BLADDER INCONTINENCE, RAYNAUDS, CHRONIC FATIGUE, HIDRADENITIS SUPERRATIVA. AUTISM AND ADHD. MAJOR DENTAL ISSUES. PLUS DEPRESSION AND ANXIETY SOLELY FROM COPING WITH THESE CONDITIONS. |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely as I had to fight to get what I have now. |
| Tasks you struggle with on a day-to-day basis: I'm unable to stand still for more than a few minutes without feeling feint so everything like showering and cooking is hard for me. My other conditions cause pain and fatigue that changes daily so even when I manage to sit in the shower or at the counter to cook in I'm pain doing so. my pip helps me retain some level of dignity and independence, without it it's not just me but our children will suffer too. They already live a different life with. Disabled mum, if I have to get worse as I can't afford the things to help me cope they'll lose yet more of their childhood and Independence. |
| Expected income you will lose if the Green Paper cuts are imposed: I will lose my higher rate daily living and my contribution based esa I think from what I can understand. If this happens not only will I struggle to cope we are likely to lose our hom, as some things I can't do without and my husband doesn't earn enough to cover everything plus what I need to cope each month. |
| Expected problems if you tried moving into work, with support from a work coach: My issues change daily, in an employed position I would be needing to rest parts of each hour which no employer will want, I have flare ups so bad that I cannot even be upright or sit up so I'd be off for long periods as well as short ones and hourly breaks. I'd like to have a small cottage business selling my crafts that I do s my physio for my hands, but I can't even begin to do this as if I start they'll assume I'll make lots and I might only make one thing a fortnight and sell even less. I've wanted to do this for a long time but I know they'd twist this to make it that I'd lose my esa and even my pip s they'd make assumptions that I was miraculously cured or as I've seen online they'd start telling me the business wasn't viable and I'd need to start seeking work and be hounded week in week out. |
| Anything else to tell us: This whole situation has driven my mental health so low, I've had times when I've even debated if my family would be better off without me which is sad as I know they wouldn't. I work hard caring for myself and managing my health. If I lose my pip I will have to rely on the NHS much more, I'll no longer muddle on I'll be there daily for new dressings, weekly for referrals and medications and I'll be needing so much more support as I won't be able to do it myself anymore. I'll cost them far more as a frequent flyer to the local NHS than I am caring for myself. |
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