Help - A-Z of medical conditions wrong info

Hi, I am new to the forum and trying to go through the process of my DLA renewal. I have just looked at the A-Z of medical conditions and straight away I am seeing something that is likely to go against me.

I have various conditions but my main problem is called Complex Regional Pain Syndrome (CRPS) also known as Reflex Sympathetic Dystrophy (RSD) in my leg. It is a very complex and painful condition, the a-z guide states "Work Related Upper Limb Disorder (WRULD) / NHS Choices and Decision Makers are advised to discuss with the Departments Medical Services provider if necessary"

Having read what it says in the link to Work Related Upper Limb Disorder I am panicking because that is nothing to do with CRPS/RSD. CRPS/RSD can affect any part of the body (quite often a limb, but frequently a lower one) and as far as I am aware it is not usually categorized as work related - it most often starts as a result of a fall, knock to limb or following surgery. Hardly work related (like RSI might be).

The a-z goes on to say "How long will the needs last?
Work related upper limb disorder (WRULD) can be a painful and distressing problem but in most cases it will not cause significant functional restrictions"
and then:
"Activities of Daily Living and Mobility needs Work related upper limb disorder (WRULD) can be a painful and distressing problem and at its very worst it may cause a sufferer to have to give up or change a job and stop a particular activity completely. Most commonly however, it is managed with conservative measures and individuals may achieve a return to the workplace.
The return to work should initially be on a part-time basis with a subsequent incremental increase in hours and activities. Severe cases of WRULD may result in significant functional problems in self care activities (such as dressing and main meal preparation) but this is only in a very small percentage of cases. There are usually no significant restrictions in the ability to be mobile as a consequence of WRULD."
Also it states:
"How long will the needs last?
.... Most commonly however, it is managed with conservative measures and considerable improvement in function would be reasonably expected in 12 months. Although it is a troublesome condition, it usually does not cause significant functional problems."

It does state that "NHS Choices and Decision Makers are advised to discuss with the Departments Medical Services provider if necessary" but I would imagine that the decision maker would have already read the Work Related Upper Limb Disorder and decided that what I am saying is a load of lies, because the pain and condition I have is nothing like that.

3 years ago I was awarded full mobility, and then on renewal 2 years ago I was refused any mobility. I am now thinking that this could have a huge part to it. Especially as the tribunal didn't seem to get how much my pain affects me (and how severe it is - which is normal with CRPS/RSD).

I now don't know where to begin with my renewal or even if I can (or should) mention in my renewal that the a-z of medical conditions is wrong.

I am sorry for such a long and rambling post. If you've managed to read it all and understand it, thank you. If anybody can give me any advice on how I should deal with it I would appreciate it. I am in such a state right now and not sure what to do.

Many thanks

Thank you Gordon for taking the time to reply to me. I know it is the effects of conditions that determine rather than the condition itself, but I think I've just panicked after reading the a-z as it basically states that my condition comes under this other condition (which it really has nothing to do with) and that condition is not really that bad. I think I just distrust everything to do with DLA/ESA now lol. Had to walk away from the forms for today as got myself in such a state, but will look at them again tomorrow hopefully feeling a lot calmer.

Thanks again for your help, it is appreciated