p.i.p.

iv been on d.l.a. highest mobility award since 1997. im now 65 years old .i have c.m.t..it is a neurological degenerative disease.there is no cure i have no help i was told years a go by a neurologist you just have to get on with it..as iv got older my problems health wise are becoming
intolerable i cant balance have difficulties walking my hands and feet are less than useless i trip fall iv had hip and knee replacement.my feet hurt when im sitting walking is agony .
this is only a small part of my problem,i am so worried about filling forms and all that go s with it.for the change from d.l.a. to pip.
i dont see a neurologist they cant do anything for me,my own g.p.has no comprehension of what c.m.t. is ,so where can i get any evidence of my disease.im going to send pictures of feet and hand s with my form .can you suggest any thing else.
this is all very worrying .
thank s

thanks for your reply.as i dont see g.p. unless i have to ,and thats not very often i cant see him
being of much help.in fact one doc asked why i had a stick i just told him ....cos i like the patten on it.i get fed up of explaining
what c.m.t. is.infact when i go for my check up for my hip the doctor asked me if i would help
with the final exam s for orthopedic surgeon s....this i have agreed to before and spent a day
at the hospital when they all ask questions look at my feet and hands to try and guess what s
wrong with me.it s only the odd one or two that get s it right.
my own g.p.cant help,[in fact no one can ] so what s the point of seeing g.p. nothing can
cure c.m.t.
sorry to ramble on thank s for your help and this site .its just that im so worried about all
this and its not helping me at all.