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Pip Re-assesment. Medical looming...........
- Andrew
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9 years 4 months ago #148714 by Andrew
Pip Re-assesment. Medical looming........... was created by Andrew
Hi, first time posting, please bear with me.
I am asking for a reassement of my Pip award, I currently receive LR care. I made the transition from DLA to PIP a while ago. I was awarded Dla back in Sept 2008 HR. Mobility LR Care. I won on appeal after being refused Dla. At the tribunal I was asked loads of questions and won the award. However there was a lady on the panel who said I did not qualify for MR or Hr. Care as my wife did not wake in the night to give me medication. I hope this reassement will see me awarded a higher rate of care, so that my wife can claim carers allowance. Not for the extra money but for recognition for all that she does. Although the extra money will help.
I accepted the award as it was then but in the 7-8 years that have passed I have got worse and rely a lot more heavily upon my wife and children to help me. I suffered a prolapsed disc in February 2005. I suffered incredible pain in my lower back as well as nerve pain down both legs. I had surgery in oct 2007. The surgery did'nt help and the pain got increasingly worse.In 2012 I was told by a neurosurgeon that there was nothing that can be done to help, it is soley down to pain management.
Eleven years on and the pain is awful, somedays is unbearable.My GP overprescribed me with Fentanyl, higher doses were never enough to control the pain and for some time I have been under the care of the local Drugs misuse service.Between them and the pain managment team I have been weaned off to a safer dosage.I am also under the care of the mental health team. I know I am a suicide risk, I rarely go a day without thinking of suicide. But for my wife and children I would not be here.
I don't leave my home, I stay in one room, my bedroom so that I am next to the bathroom. I am terrified of being alone, I have someone with me 24hrs a day. The thought of going out is overwhelming. The only time I leave my home is to attend appointments. I have to know where I am going and which route i'll take.I suffer terrible constipation and have had accidents in the past. When the feeling of needing the bathroom comes, I need to go right then. I cannot hold it. I use elbow crutches for a short distance and a wheelchair. Although I cannot propel myself in my chair, I just don't have the strength. I rarely sleep, In spite of taking 100mg Amitriptlyne and 30mg Mirtazapine each night. The pain is constant, never ending. My wife helps me shower, drying and dressing me daily. Helps me to the bathroom and stays with me to help me off the toilet when im done. The pain is so debilitating, its draining me of every ounce of energy I have. She cooks, cleans, makes sure I take medication, and cares.
I am getting worked up about the upcoming assessment, which is next Wednesday at 8.30am. Although it is at my request my mind is racing, full of what ifs. The assessment is at my home, is that a good thing or bad thing? Although I know I could get help in adapting my home to make my life easier, I am too proud to ask for help. It is stubborn pride. I'm the bloke who was gonna buy the first car, pay the deposit on a home for my kids. Be all that I could be for my family, instead I'm the bloke who has to ask his wife to help on and off the toilet. help wash me, dress me, put my underwear on, get my jeans on, put my shoes and socks on for me. She never complains, doesn't object, she does all she can to make my life that bit easier.
I've said a lot more here than I intended, please excuse me for that, not sure if its my nerves showing.
I am asking for a reassement of my Pip award, I currently receive LR care. I made the transition from DLA to PIP a while ago. I was awarded Dla back in Sept 2008 HR. Mobility LR Care. I won on appeal after being refused Dla. At the tribunal I was asked loads of questions and won the award. However there was a lady on the panel who said I did not qualify for MR or Hr. Care as my wife did not wake in the night to give me medication. I hope this reassement will see me awarded a higher rate of care, so that my wife can claim carers allowance. Not for the extra money but for recognition for all that she does. Although the extra money will help.
I accepted the award as it was then but in the 7-8 years that have passed I have got worse and rely a lot more heavily upon my wife and children to help me. I suffered a prolapsed disc in February 2005. I suffered incredible pain in my lower back as well as nerve pain down both legs. I had surgery in oct 2007. The surgery did'nt help and the pain got increasingly worse.In 2012 I was told by a neurosurgeon that there was nothing that can be done to help, it is soley down to pain management.
Eleven years on and the pain is awful, somedays is unbearable.My GP overprescribed me with Fentanyl, higher doses were never enough to control the pain and for some time I have been under the care of the local Drugs misuse service.Between them and the pain managment team I have been weaned off to a safer dosage.I am also under the care of the mental health team. I know I am a suicide risk, I rarely go a day without thinking of suicide. But for my wife and children I would not be here.
I don't leave my home, I stay in one room, my bedroom so that I am next to the bathroom. I am terrified of being alone, I have someone with me 24hrs a day. The thought of going out is overwhelming. The only time I leave my home is to attend appointments. I have to know where I am going and which route i'll take.I suffer terrible constipation and have had accidents in the past. When the feeling of needing the bathroom comes, I need to go right then. I cannot hold it. I use elbow crutches for a short distance and a wheelchair. Although I cannot propel myself in my chair, I just don't have the strength. I rarely sleep, In spite of taking 100mg Amitriptlyne and 30mg Mirtazapine each night. The pain is constant, never ending. My wife helps me shower, drying and dressing me daily. Helps me to the bathroom and stays with me to help me off the toilet when im done. The pain is so debilitating, its draining me of every ounce of energy I have. She cooks, cleans, makes sure I take medication, and cares.
I am getting worked up about the upcoming assessment, which is next Wednesday at 8.30am. Although it is at my request my mind is racing, full of what ifs. The assessment is at my home, is that a good thing or bad thing? Although I know I could get help in adapting my home to make my life easier, I am too proud to ask for help. It is stubborn pride. I'm the bloke who was gonna buy the first car, pay the deposit on a home for my kids. Be all that I could be for my family, instead I'm the bloke who has to ask his wife to help on and off the toilet. help wash me, dress me, put my underwear on, get my jeans on, put my shoes and socks on for me. She never complains, doesn't object, she does all she can to make my life that bit easier.
I've said a lot more here than I intended, please excuse me for that, not sure if its my nerves showing.
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- foss27
9 years 4 months ago #148743 by foss27
Replied by foss27 on topic Pip Re-assesment. Medical looming...........
Hi Andrew
I'm sure there are many on here in your position' my wife has been my carer for 15 years although she does get paid!! Of course its not the money, who works for £62 a week full-time?
I'm assuming you've had the chance to see our guide to claiming. You have your evidence.
Its how your health affects your ability to carry out the activities that counts.
Recently people have posred on here of increasing difficulties in getting home assessments so I think its a positive.
I'm sure there are many on here in your position' my wife has been my carer for 15 years although she does get paid!! Of course its not the money, who works for £62 a week full-time?
I'm assuming you've had the chance to see our guide to claiming. You have your evidence.
Its how your health affects your ability to carry out the activities that counts.
Recently people have posred on here of increasing difficulties in getting home assessments so I think its a positive.
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- Linz
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9 years 4 months ago #148746 by Linz
Replied by Linz on topic Pip Re-assesment. Medical looming...........
Hi Andrew,
My husband was in receipt of HR Mobility, he was 'invited' to claim PIP. We had a home visit & I can only say that it is definitely a positive. The Assessor spent about a hour with us & the decision was HR on both living & Mobility indefinitely. As it was held in our home, we knew the meter age of the living room & to the car etc Also you are in your comfort zone & please have someone with you. When I asked the DWP on the possible outcome, the fact that we had a home visit was noted & went in our favour, particularly as we did not have to fight for it!
Good Luck
x
My husband was in receipt of HR Mobility, he was 'invited' to claim PIP. We had a home visit & I can only say that it is definitely a positive. The Assessor spent about a hour with us & the decision was HR on both living & Mobility indefinitely. As it was held in our home, we knew the meter age of the living room & to the car etc Also you are in your comfort zone & please have someone with you. When I asked the DWP on the possible outcome, the fact that we had a home visit was noted & went in our favour, particularly as we did not have to fight for it!
Good Luck
x
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