DLA -PIP

I had been on lifetime DLA award, then in November last year moved over to PIP & I lost my high rate mobility, just losing out by 2 points. I felt this was very unfair, but that aside I was too tired to fight them. Even tough the assessor had lied about almost everything...I was on my mobility scooter when I drove into her room, she never saw me walk nor asked me to walk, as she saw how difficult it was for me to even get up off the scooter. I had been waiting on MRI results of a brain scan, which came through after my assessment, showing that Ishemic Small Vessel Disease was advanced for my age & that I was suffering from onset dementia. I had to give up my driving licence, but that was no real burden as I had stopped driving in 2017 due to pain of previous conditions plus severe restless legs syndrome. Which made driving very dangerous indeed.

Now that I am in the dementia club, & see a nurse every 4 weeks in my home, I was referred to a group called Care In Fife.. My dementia nurse said that they would help me get back my high rate mobility & because my husband is now my full time carer, & has to do almost everything for me, She reckoned I would get the enhanced care said as well.

Yesterday I got a call form this CARE in FIFE service, & after askiing her questions about what benefits I get, she said there is NO way I will get the high rate mobility back, because once you are 65 & over. They do not give that rate out.. I explained that I had been on the lifetime DLA award before changing to PIP. So it was not a NEW Claim.

My reason for posting here is I really wanted to know if this is the case. Because if so, I think the reason I lost the high mobility rate had to be because of my age, they knew by putting me off the high rate I could not get it back. IS this right?

I also just got my PIP reward for 14months, which means in January 2020 I am due for another assessment.. My dementia nurse seems to believe I should get the higher rate of mobility on MY dementia alone, although I had to stop driving due to several painful conditions & the severe restless leg syndrome.just getting worse..However the lady from the Care In Fife says I won’t. She said she will help me fill in my next PIP forms, but I am not sure I would would want her too...Can you enlighten me please As to who is right. My dementia nurse, or this CARE lady? I know I should have appealed at the time, but I was too tired to fight them anymore.
Kate x

Hi Gordon
Does this mean that my standard care award will not be allowed to increase either. It just doesn’t seem right that they stop allowing you enhanced rates because you have hit a certain age.. I am 10 times worse today than I was when first granted DLA due to sever arthritis, Fibro, & chronic Asthma..Thank you anyway for the reply..
Kate