- Posts: 6
× Members
Reporting a change for PIP
- Angie
- Topic Author
- Offline
Less More
6 days 15 hours ago #306637 by Angie
Reporting a change for PIP was created by Angie
Hi
I have a 10 year award for daily living PIP because I am autistic. Since my claim I have been diagnosed with ADHD but I didn't report because I covered it in my original application so nothing to add really. However, I have now been diagnosed with Fibromyalgia, COPD, Obstructive Sleep Apnea, Hypertension, NAFLD, Type 2 diabetes and hypertension. I need more support and have thought about making a new application for a long time. I have been worried because I am also in the LCWRA on UC and I know I would have to tell them too and I was scared that would trigger a reassessment on UC. Another reason I haven't done is it I don't have the time and energy and it is so soul destroying.
I have helped countless other autistic people to get a full PIP award and for 10 years. I am confident I could do the same for myself if i could just make up my mind and set-aside time to do it but I am scared of doing it now and losing it before the changes. As it stands at the moment my review isn't due until 2029.
Any advice? I know it is not a straighforward question to ask.
PS. I did want to appeal the original decision because I thought I was entitled to low mobility and enhanced daily living, but I had a full-time job at the time and I was worried about losing the 10 year award.
I have a 10 year award for daily living PIP because I am autistic. Since my claim I have been diagnosed with ADHD but I didn't report because I covered it in my original application so nothing to add really. However, I have now been diagnosed with Fibromyalgia, COPD, Obstructive Sleep Apnea, Hypertension, NAFLD, Type 2 diabetes and hypertension. I need more support and have thought about making a new application for a long time. I have been worried because I am also in the LCWRA on UC and I know I would have to tell them too and I was scared that would trigger a reassessment on UC. Another reason I haven't done is it I don't have the time and energy and it is so soul destroying.
I have helped countless other autistic people to get a full PIP award and for 10 years. I am confident I could do the same for myself if i could just make up my mind and set-aside time to do it but I am scared of doing it now and losing it before the changes. As it stands at the moment my review isn't due until 2029.
Any advice? I know it is not a straighforward question to ask.
PS. I did want to appeal the original decision because I thought I was entitled to low mobility and enhanced daily living, but I had a full-time job at the time and I was worried about losing the 10 year award.
Please Log in or Create an account to join the conversation.
- latetrain
- Offline
Less More
- Posts: 8575
2 days 9 hours ago #306855 by latetrain
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by latetrain on topic Reporting a change for PIP
Hi Angie
You have not stated if you are in receipt of the standard PIP or enhanced. If you are in receipt of enhanced then do not waste your time, if you are in receipt of the standard component of PIP then phone PIP up and report a change in circumstances, it is always to follow up your phone call in writing. You will be sent a new claims form, if you kept a copy of your original form use that as a template and make any changes as necessary. If your claim is successful and you are placed in the enhanced group, it should be backdated to the date of your phone call.
As for UC and LCWRA, you are already in the highest group so no need to report a deterioration you only have to report a change if it is for the better, i.e your health has improved.
Gary
You have not stated if you are in receipt of the standard PIP or enhanced. If you are in receipt of enhanced then do not waste your time, if you are in receipt of the standard component of PIP then phone PIP up and report a change in circumstances, it is always to follow up your phone call in writing. You will be sent a new claims form, if you kept a copy of your original form use that as a template and make any changes as necessary. If your claim is successful and you are placed in the enhanced group, it should be backdated to the date of your phone call.
As for UC and LCWRA, you are already in the highest group so no need to report a deterioration you only have to report a change if it is for the better, i.e your health has improved.
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Please Log in or Create an account to join the conversation.
- Angie
- Topic Author
- Offline
Less More
- Posts: 6
1 day 18 hours ago #306878 by Angie
Replied by Angie on topic Reporting a change for PIP
I am only in receipt of the std daily living, but with COPD I really need athe full mobility component
Please Log in or Create an account to join the conversation.
- latetrain
- Offline
Less More
- Posts: 8575
1 day 7 hours ago #306908 by latetrain
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by latetrain on topic Reporting a change for PIP
Hi Angie
Thank you for the update.
I know COPD quite well, it covers quite a large range such as emphysema.
Before you apply for a change of circumstances, make sure that your condition fits the descriptors, remember PIP is not awarded because of the condition, but rather the limitations that result and prevent a claimant from completing a range of everyday activities.
Read about the reliability element in the guide - if you cannot do something:
• Safely – in a fashion that is unlikely to cause harm to themselves or to another person.
• To a necessary and acceptable standard – given the nature of the activity.
• Repeatedly – as often as is reasonably required.
• In a reasonable time period – no more than twice as long as a person without a physical or mental health condition would take to carry out the activity.
then you should not be considered able to do the activity.
The fact that you can’t do the activity safely, to an acceptable standard, repeatedly or in a reasonable time, means you can’t do it at all for the purposes of the descriptors.
Gary
Thank you for the update.
I know COPD quite well, it covers quite a large range such as emphysema.
Before you apply for a change of circumstances, make sure that your condition fits the descriptors, remember PIP is not awarded because of the condition, but rather the limitations that result and prevent a claimant from completing a range of everyday activities.
Read about the reliability element in the guide - if you cannot do something:
• Safely – in a fashion that is unlikely to cause harm to themselves or to another person.
• To a necessary and acceptable standard – given the nature of the activity.
• Repeatedly – as often as is reasonably required.
• In a reasonable time period – no more than twice as long as a person without a physical or mental health condition would take to carry out the activity.
then you should not be considered able to do the activity.
The fact that you can’t do the activity safely, to an acceptable standard, repeatedly or in a reasonable time, means you can’t do it at all for the purposes of the descriptors.
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Please Log in or Create an account to join the conversation.
Moderators: Gordon, latetrain, BIS, Catherine, Wendy, Kelly, greekqueen, peter, Katherine, Super User, Chris, David