× Members

Pip mobility planning and following journeys repeatedly

More
1 day 16 hours ago #310251 by Marvelguy
Hi,

So Im autistic, epileptic and have ptsd and anxiety. I get mobility pip enhanced descriptor 11f for planning and following a journey. However, recently I’ve being going out a lot more alone. However, I can’t manage more than one short outing per day as I need to decompress for about 2-3 hours after an outing due to sensory overload. If I don’t do this I wouldn’t be able to go out the next day. I only go to familiar places, I can’t drive due to having epileptic myoclonic jerks. I don’t know if I need to report a change or not. As surely if I can’t make another trip out the same day this fails the repeatability test?
I don’t want to report a change and risk loosing all my pip for all the other daily living components i struggle with. My situation hasn’t changed in my eyes I just have more time and better coping strategies to deal with things now Im not employed so on the surface it looks like I’ve recovered in certain areas.

Im so stressed! I don’t want to be accused of lying when I genuinely feel I still have almost the same level of difficulty I had before but in a different way. As when I was awarded pip it was by the tribunal and I worked at the time of making my claim and my employment made it impossible for me to but coping mechanisms into place. I feel the law needs to address these sorts of catches 22s within the pip system

Please Log in or Create an account to join the conversation.

More
1 day 10 hours ago #310262 by LL26
Hi Marvelguy,
Firstly try not to panic. I don't think there is a particular problem here. You have mentioned repetition which is relevant, and I'll come back to that in a moment, but I think that there is no real problem due to Regulation 7.
Reg 7 states that you only need to consider what happens for the 'majority of days'. So theoretically if you had a weird medical problem that only affected you 4 days a week but caused sufficient disability that you couldn't manage to perform PIP descriptor activities then you could still achieve a PIP award. Reg 7 recognises that some conditions vary across the day or week.
If I explain about the way descriptors work, I am sure that your concerns will be allayed. Repetition will form part of that. - each descriptor provides a set of points according to the level if disability. However the descriptors are trying to represent what should be able to be done across a day, rather than an isolated ability to perform a random activity. There are 4 criteria that must all be satisfied. Repetition is one - If one or more of the other criteria is not met then a claimant can't fulfil the required amount of repetition. Each activity will have its own repetition rate. So eg Descriotor 1 deals with preparing and cooking a meal.It is likely that this will amount to 3 meals being required. However if you personally have always had 5 meals or due to eg diabetes needs more meals then your personal repetition rate could be 5. Similarly, a person with incontinence is likely to need the toilet a greater number of times across the day, and hence will need to be able to manage more occasions using the toilet. Whatever the activity, if any of the repetitions can't be made to the correct level then you haven't been able to repeat across the whole day as many times as reasonably required. Any day where you can't 'repeat& save for a very insignificant amount of time will be a day to count towards the 'majority of days' per Reg 7.
If one or more of the other criteria - safety, acceptable standard and reasonable time are not met - then again this indicates you can't repeat.
I would like you to think about a typical day. Forget about disability, this is anyone's average day.
Take kids to school
Go to bank on way home
After bank, go to post office to get stamps
Fill car up with petrol
Go home
Post a birthday card at the post box at the end of the road
Pick up kids
Take one child to karate
Take the other to ballet
Collect each child
Visit Granny in the way home.
None of these journeys may be very long. They could be done on foot or via car or other. Remember that all car journeys will involve a few steps at either end.
Basically these are all separate short journeys. Or of course a journey could be a very long one.
So the question is can you perform all these sort of journeys across the day? None of these would be unreasonable, and indeed other journeys could also be reasonable as well.
Avoiding going out indicates that you can't go out more often, and if you avoid going out this will certainly indicate an inability to repeat and hence points should be awarded accordingly.
Since you only ever make 1 short journey per day maximum, I very much doubt that you are properly repeating. Moreover the effort causes problems for the next day too. If your health had improved so that everyday you could if you wished make 3 or 4 of the various possible journeys then I think you would have to concede that you might no longer qualify for points, as to go from scarcely being able to go out and then being able to do multiple journeys would suggest a change of circumstances.
Going from zero journeys to one on some days does not indicate repetition. (Even though mathematically no journeys to one journey looks like 100% improvement!)
Remember also, even if you do go out, or indeed perform any PIP activity more than before, if you don't stay 'safe' or are too slow or perform non - acceptably, these days are all days you 'can't' do an activity or will show a need for help. They all count towards the majority of days.
There is no need to report a small change in health that does not lead to a change in points. So, to give another example walking ability of 50-200m is the same points. But again if you could previously walk only 51m and now your ability has increased to 197m on paper it seems like a vast improvement but in reality you still qualify for the same Pip score!
I hope you now fell less anxious about this.
LL26

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Wendy Woo, DazedandConfused

Please Log in or Create an account to join the conversation.

Moderators: GordonlatetrainBISCatherineChrisDavidKeely
We use cookies

We use cookies on our website. Some of them are essential for the operation of the site, while others help us to improve this site and the user experience (tracking cookies). You can decide for yourself whether you want to allow cookies or not. Please note that if you reject them, you may not be able to use all the functionalities of the site.