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cognitive/LD + Down's Syndrome

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12 years 2 days ago - 12 years 2 days ago #103944 by juba
cognitive/LD + Down's Syndrome was created by juba
Am attempting to complete this form for my daughter

So much of the issues are not mentioned - sensory has going out alone and not being able to cross the road but her issues are not sensory as such though they have a visual component - it is cognitive.

Is there any help anywhere for interpreting this in terms of Down's Syndrome ???
Last edit: 12 years 2 days ago by Gordon.

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12 years 2 days ago #103951 by Gordon
Replied by Gordon on topic cognitive/LD + Down's Syndrome

juba wrote: Am attempting to complete this form for my daughter

So much of the issues are not mentioned - sensory has going out alone and not being able to cross the road but her issues are not sensory as such though they have a visual component - it is cognitive.

Is there any help anywhere for interpreting this in terms of Down's Syndrome ???


I am not entirely sure which form you are referring to but

If it is an ESA50 then the questions 11-17 cover mental health and cognitive issues.

If it is for DLA then there is no distinction between the activities, you can meet the requirements due to both physical and cognitive issues.

However, in both cases it is not the underlying condition that is being looked at, it is it's effects on daily life.

The relevant guides for each benefit are available via the "Members Only Guides" link on the left of the page.

If you have more questions, please reply to this post.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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12 years 2 days ago - 12 years 2 days ago #103953 by juba
Replied by juba on topic cognitive/LD + Down's Syndrome
Sorry - it is ESA 50 and she had an indefinite award to IB when she was a teenager. She can't understand the form - I'm having trouble.

I have downloaded and read and re-read the the guides and they are very good. But the form does not cater for those whose problems stem from a cognitive deficit due to learning disabilities.

She can't cross the road because she can't judge traffic speed, or react quickly enough to take advantage of a gap. She can't easily make herself understood - or understand others due to cognitive deficit in processing - it is not a sensory thing, she can hear and see and speak (not formulate speech in the sense of putting the words together to make conventional sense but to say words out loud) but they do not seem to cover any of the big cognitive problems.

It isn't a form for someone with cognitive issues and I am somewhat at a loss.
Last edit: 12 years 2 days ago by Gordon.

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12 years 2 days ago #103958 by Gordon
Replied by Gordon on topic cognitive/LD + Down's Syndrome

juba wrote: Sorry - it is ESA 50 and she had an indefinite award to IB when she was a teenager. She can't understand the form - I'm having trouble.

I have downloaded and read and re-read the the guides and they are very good. But the form does not cater for those whose problems stem from a cognitive deficit due to learning disabilities.

She can't cross the road because she can't judge traffic speed, or react quickly enough to take advantage of a gap. She can't easily make herself understood - or understand others due to cognitive deficit in processing - it is not a sensory thing, she can hear and see and speak (not formulate speech in the sense of putting the words together to make conventional sense but to say words out loud) but they do not seem to cover any of the big cognitive problems.

It isn't a form for someone with cognitive issues and I am somewhat at a loss.


I would have thought that question 12, awareness of hazards and dangers would cover crossing the road, question 16, coping with social situations would at least in part cover any problems she has with communication.

The form is what it is and the questions are derived from the legal definitions of the ESA tests, you need to make it work for your daughter and not allow the restrictions of the form limit how you respond.

There are certainly claimants with Down's syndrome in both the WRAG and the Support Group.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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12 years 2 days ago #103959 by juba
Replied by juba on topic cognitive/LD + Down's Syndrome
Thanks for responding - I'm grateful :)

Roads : Criteria seems to be awareness of hazards - she is aware it is dangerous - the problem is not lack of awareness it is lack of ability to do it.

And coping with social situation - she does not panic or get anxious and will have a go - she just doesn't get understood too well by the general public.

However I hear what you are saying - I do believe, well I know it would be madness to let her go out alone - she has to be accompanied outside the house at all times for her own safety - indeed for the safety of others should she actually attempt a road and fail since attempting to avoid her could cause a crash. They are going to get information overload I fear from my additional evidence!

I will re-read it all again and try to get my head round it - thanks Gordon

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  • bro58
12 years 2 days ago - 12 years 2 days ago #103960 by bro58
Replied by bro58 on topic cognitive/LD + Down's Syndrome
Hi j,

Good advice from Gordon.

As he says it is the limitations as a result of any medical condition rather than the condition itself that are the important issue.

If you are filling in the "new" ESA50 01/2013, you might find it easier to use the interactive Pdf version :

Using The PDF Version Of The ESA50 Questionnaire

If it is the ESA50 03/11 let me know and I will provide a link for that one.

See also :

How long do I have to complete the ESA50?

ESA50 too big for the envelope

Sending Documents to the DWP or ATOS

You should refer to the relevant ESA Claims Guides on this page :

ESA Claims Guides

Whilst on that page you should also refer to The WCA Handbook, 2nd link from the bottom.

bro58
Last edit: 12 years 2 days ago by bro58.

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