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TOPIC: Work related or Support group for Severe M.E.?

Work related or Support group for Severe M.E.? 8 years 11 months ago #36110

  • julie stannard
Managed to come through two medicals and one appeal -finally receiving ESA for Severe Me. STill however being put into the work activity group. Dont know If I have the energy to keep on appealing against this decision.

Could I ask other M.E. sufferers if anyone has won thier case and been put into the Support group?

Would welcome feedback. jules

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Re:Work related or Support group for Severe M.E.? 8 years 11 months ago #36122

  • originaldave
julie
stannard wrote:

Managed to come through two medicals and one appeal -finally receiving ESA for Severe Me. STill however being put into the work activity group. Dont know If I have the energy to keep on appealing against this decision.

Could I ask other M.E. sufferers if anyone has won thier case and been put into the Support group?

Would welcome feedback. jules


I think that you might have a good case, but playing devils advocate, you have a problem drs cant agree on, and given people with problems drs do agree cant get in SG you have a battle on your hand and of course durring the fight to get where you think you should be you are open to them putting you in a worse group :(

at present thats not too much of a problem, might be better to save your strength for the fight when your still in that group and its time limited to one year.

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Re:Work related or Support group for Severe M.E.? 8 years 11 months ago #36160

Hi Dave
I have spoken to my MP and asked that he write to Chris Grayling to suggest that severe unrelenting ME patients be placed within the Support Group. Obviously as Julie said, without a clearcut pathology it is a very difficult area. Not fair, but sadly true.
As soon as my MP writes with the reply i will post it on here if thats any good?
Best wishes
Callisto

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Re:Work related or Support group for Severe M.E.? 8 years 11 months ago #36181

  • originaldave
Callisto wrote:

Hi Dave
I have spoken to my MP and asked that he write to Chris Grayling to suggest that severe unrelenting ME patients be placed within the Support Group. Obviously as Julie said, without a clearcut pathology it is a very difficult area. Not fair, but sadly true.
As soon as my MP writes with the reply i will post it on here if thats any good?
Best wishes
Callisto


I think you have me mixed up with original poster :)

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Re:Work related or Support group for Severe M.E.? 8 years 11 months ago #36187

  • Ranald
Callisto wrote:

Hi Dave
I have spoken to my MP and asked that he write to Chris Grayling to suggest that severe unrelenting ME patients be placed within the Support Group. Obviously as Julie said, without a clearcut pathology it is a very difficult area. Not fair, but sadly true.
As soon as my MP writes with the reply i will post it on here if thats any good?
Best wishes
Callisto


I don't think it will be possible to have an umbrella ruling for any individual condition, The WCA is supposedly to determine what an individual can do, not their diagnosis.

Ranald

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Re:Work related or Support group for Severe M.E.? 8 years 11 months ago #36192

  • cashmygold
I read somewhere on this site about the strict criteria for being placed in the support group such as those receiving or recovering from chemo, those with terminal illness, i think diaysis was on there but dont quote me on it.

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