28 March 2003

The Social Security Advisory Committee is examining a bid by the Department for Work and Pensions to remove a legal safety net designed to protect vulnerable people. The DWP is seeking to remove regulation 27(b) less than 5 months after the Court of Appeal ruled that they must put it back in place. (See previous stories: Incapacity test changed - for the better! and Incapacity for work safety net slashed again).

Regulation 27(b) says that people with a physical or mental health condition which means that there is a substantial risk to their health, or someone else's, if they are found fit for work should not be found capable of work. The regulation was removed from the statute book in 1997 after the Secretary of State deliberately misled the Social Security Advisory Committee by claiming the change would make no difference to claimants. After a lengthy court battle the regulation was finally restored on 8th November 2002. Now, however, the DWP is to strike the regulation out again by changes in the law.

Many new and repeat claimants with mental health conditions such as agoraphobia and physical conditions such as ME/CFS or heart problems are likely to be affected by the changes. You can read what welfare rights workers are saying about the changes on the Rightsnet site and also download a copy of the objections to the changes produced by Hastings Advice and Representation Centre .

Whilst SSAC can recommend that the DWP do not go ahead with the proposed changes, the government is free to ignore their recommendation, as they have done in the past. If you wish to submit evidence to SSAC, the deadline for doing so is 7th April 2003. Their email address is: This email address is being protected from spambots. You need JavaScript enabled to view it.

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    Bobby · 7 months ago
    I submitted a PIP claim in 2020 as an appointee on behalf of my adult son, who has ADHD & ASD. He was awarded the standard rate until January 2024. We have completed a review form already but not heard anything. 

    My son would not have been able to go through the claims process without my help. He struggled to understand the questions being asked. I believe having another adult acting as his appointee was crucial and was key to  achieving an award. 

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      Sarah · 7 months ago
      @Bobby I totally agree with you Bobby.  I also am an appointee for my son.  My son took one look at the pip form and said - there’s no way I can fill that in - he didn’t understand any of it.  It took me a long time for him to understand what I was doing and what pip was at first. 
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    P · 7 months ago
    I was refused PIP for ASD and ADHD in 2019 despite my psychiatrist letter, mediation s and letters from an assessment .
    The PIP assessor lied about me, called me dirty and repeated the same questions over and over again resulting in my frustration making an outburst due to my short temper. I was also asked repeatedly I had ever been in a mental institution.
    My father came with me and saw my nil points letter and was alarmed that I was lied about.
    I was called hostile,  aggressive etc
    It took me almost a year to recover from the assessment as I felt that I was wasnt worth anything.

    This year I applied for ADP (Scotland) and was awarded both  parts for ADHD and ASD, mostly ADHD 
    I wish the rest of the UK would have ADP, as Social Security were fantastic!
    I am now 49 BTW! 
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      Dale · 7 months ago
      @P I was refused and took it to tribunal. 18 months after my application for ADHD, at the start of the tribunal the presenting officer from DWP said she had reassessed and I was awarded enough points for standard in daily living and mobility. The PIP process breaches the Equalities Act 2010 and the Public Sector Bodies Accessibility Regulations 2018. Yet DWP are never taken to task for it. 
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    Lesley · 7 months ago
    My daughter in law was recently turned down for PIP with zero awards for both care and mobility even though she had a supporting letter . Assesser told that her that he would read support letter but didnt and now we are having to go through MR . 
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      Anon · 6 months ago
      @Lesley Our son AdHd ( diagnosed at 20 , now 24 under local MH team) , we're at 3rd stage of claiming Pip as initially scored 2 points , went up to 3 upon appeal , but as he's bright and answers questions as he "thinks he should" and doesn't want to take money away from others , he's not got passed yet for PIP even though he's at home and we do everything for him . We've even had letters from his MH nurse and psychiatrist say" don't believe a word the claimant says " as they believe he's entitled to Pip. Needless to say he's not on UC as he won't / cant get round to claiming this either so we're paying for everything including meds ... and we all know how expensive private ADHD meds are .... 
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    Moggie · 7 months ago
    I would say it's massively skewed towards younger people getting PIP for AdHD because many older people have gone under the radar. I was very late diagnosed with Audhd (autism and ADHD) in my 60s. More and more (particularly women) are getting late diagnosed although many older people won't know they have it and/or won't bother pursuing a diagnosis. I imagine the backlog will be reflected in the figures eventually but even so many will still go undiagnosed.
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      Paul · 1 months ago
      @Moggie Hi Maggie,

      Your an inspiration.
      I’m currently going through MR