New terminal illness rules for personal independence payment (PIP), disability living allowance (DLA) and attendance allowance (AA) came into force on Monday, meaning that the six month rule has now been replaced by a twelve month rule, in line with universal credit.

The law now says that a person with a progressive disease is considered to be terminally ill when their death as a consequence of that disease can reasonably be expected within 12 months, as opposed to 6 months.

Form DS1500 has now been replaced with form SR1.

There’s more details on the .gov website on the Get benefits if you're nearing the end of life page.

We’ve updated the PIP, DLA and AA guides in the members area of the site to reflect the changes.

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    P · 11 months ago
    Totally agree with comments life long side effects of treatment with the added stress and worry of having to constantly go through this system.  Or perhaps the big pharmas making a killing dishing out medications to apparently counteract the side effects producing more side effects should cough up. A disgraceful system aimed at punishing the sick, the sickness coming  environmental factors etc all purposely designed by governments.
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    Susan · 1 years ago
    What about people that are living with cancer? We’re never given a date when we die! It’s like living with a sword above your head plus added worry.
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      Fibrogal · 1 years ago
      @Susan Totally agree with you there I was diagnosed in Aug 22, operation in Oct and started chemo in Jan. Every course of chemo has given me different Side effects. It’s like having a ticking time bomb inside you. 
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    James h · 1 years ago
    Only just came across this site recently but glad I did lots of useful and clear information about benefits and what’s going on too will stick to this one now for my up to date information especially with the potential big changes in a few years time
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