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PIP review AR1 time frames
- zaib
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I am glad to note an indication that I may have an arguable case about managing Therapy. I may therefore think about requesting an MR I have 3 weeks time. On benefit s side If I can add 1 point for managing therapy to my 11, Award would change to enhance rate On the risk side theoretically I may lose even standard Award but reading the assessment report I do not apprehend even in the worst case scenario losing 4 points to pull back to 7. Besides home exercises mentioned in my previous post, to claim managing therapy I also have one of the prescriptions - a skin cream to use for pelvic area skin maintenance. Consultant letter adds patient to continue using it as moisturiser as well as substitute for soap. Per B&W Guide I can claim that the skin cream application is a therapy (instead of medication). The skin cream comes in a big bottle I would need assistance to manage its application because of my Right hand weakness from Right Cancer surgery. It is agreed by HP that assistance from husband to open bottles of medications is consistent with my Right hand weakness from Right Cancer surgery.
I agree my thoughts are muddled about Going Out activity yet it is a fact that I have never gone out alone to another place because I do feel so suffocated in a crowded bus or train I collapse and feel I am going to die even feel chest pain and think it is heart attack. It is scary am under hospital advice to always carry with me my heart disease file called patient passport- in case. .
I regret I had to leave a funeral service of a dear one without attending it as I got suffocated when I was in the people around. I was stopped from participation and had to be taken away by my husband. I was told it is panic attacks. But whatever it is it stops me there. It has been there for long.
However HP Assessment , “–Although GP letter. Dated ... she gets stressed, panicky confused and agitated when out, these are not symptoms of overwhelming psychological distress she does not report any current input from mental health team and she has not had any hospital admission for mental health. She does not report having any diagnosed cognitive conditions.”
As yet I do not have input from a mental health team perhaps naming these panic attacks e.g. Agoraphobia. I am still waiting for relevant appointment on NHS. I cannot help.... I don’t understand how to make/support claim .
It would be sufficient if I could claim minimum scoring 4 descriptor (b).
Please advise if it can help if I still request GP for more input on going out ? , managing therapy , reading complex text -vision gets impaired on focusiing -- left eye neuralgia - , complex budgeting - confusion - ,in/out of bathe cum shower assistance because of history of repeat serious falls after losing balance and foot hitting a hurdle /stumbling on a hurdle and dizzziness on standing from Pre Gablin known side effect And noted dizziness on standing from sitting position on BP fluctuations. .
Regards
Zaib
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- Gordon
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zaib wrote: Please advise if it can help if I still request GP for more input on going out ? , managing therapy , reading complex text -vision gets impaired on focusiing -- left eye neuralgia - , complex budgeting - confusion - ,in/out of bathe cum shower assistance because of history of repeat serious falls after losing balance and foot hitting a hurdle /stumbling on a hurdle and dizzziness on standing from Pre Gablin known side effect And noted dizziness on standing from sitting position on BP fluctuations. .
Regards
Zaib
Yes, there is no problem with you providing new evidence the only restriction is that it cannot raise any changes in your conditions since you were assessed and ideally needs to state that it applies to this time as well.
Re your Going Out, can you leave your house on your own and if not, why not? I am not asking whether you can get anywhere once you go out, just whether you can go out.
Gordon
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- zaib
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Kind regards
zaib
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- Gordon
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So you are arguing
d. Cannot follow the route of an unfamiliar journey without another person, assistance dog or orientation aid.
Your arguments need to be centred on you being unable to navigate the route and the reason for this must be that you have suffered "overwhelming psychological distress". So the order of things has to be unable to follow the route... ...due to OPD... ...caused by A.
Gordon
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- zaib
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Yes it does seem the diffficulties that I encounter are about following the route of an unfamialir journey. So it does seem it is d.
I understand from your earlier advice that b. which covers undertaking any journey and d. which covers following an unfamiliar journey are mutually exclusive.
Though b. has less points 4 so I think level of severity and threshold evidedence may be lower but it is exclusive of problems in d so I cannot claim it.
d. with higher 10 points would have a much higher thresh evidence to prove cognitive or severe enough metal health or sensory issues to result in OPD.
So do or die d. Is my only descriptor.
I don’t reckon I have evidence of cognitive issues. Though I am a slow learner could not learn driving. Very very Weak in math etc . But I am not relying on cognitive issues.
As regards sensory issues I am not blind or certified by optician as severely sight impaired. But I have sensory issue from pelagic pain in left eye that stop me from visual or mental focus I have chronic debilitating nerve pain . Among its other triggers like photophobia photopia , it comes surely on a visual or mental focussing of a minute or 2. . There for over 8 years nothing helps so I have to stop and withdraw. I can see but cannot readafter a minute or 2. I have a optician report of vision dropping once to 6/10 L/E and 6 /7.5 R/E it was then a bout of neaulagic facial pain in left eye and left sided headache. It is significant vision drop. I was not aware it happens I don’t read or watch TV or use computer or phone screen . It may be relevant to planning activity which goes with following a routine
Though HP quoted only one report 6/6 and other 6/7 and that 6/7 vision is not much below normal and not registered sight impaired. But my sensory problem is not entirely from ophthalmology( though under observation for glaucoma suspect for 5 years) but substantially from chronic neuralgic facial pain. Yet it stops me from reading or using computer/phone screen to benefit from e.g. maps .
As for mental health issues presently IPAT letter / GP letter incorporate mental health issues of anxiety depression agitation confusion panics . This would be cause of OPD that stops me.
HP says” no t anxious , f or depression Took a 2nd tier anti depressant from another country which helped . Every day is the same. Observed no OPD
My counter argument is IPAT mental health doctor diagnosed anxiety and depression routed (so deep) in complicated medical history IPAT refused to intervene with limited capacity for such chronic problem. It should overweigh HP saying no anxiety or depression always controlled by antidepressant which I took only for 2 mnths in another country 3 years ago to control my BP . Yes I said it helped then but it was before cancer and for me relevance was BP control .
I hate anti depressants didn’t want to discuss it with GP I don’t want to be labelled mad
But for the following episode I discussed with GP I am waiting Psychology appointment now I think I need help . . HP reproduces my reply to suicidal thoughts an episode I divulged that once I tried to jump out of running car which was taking me to hospital I was in such severe pain. But they relied on my second reply that I have no suicidal thought to report there are no problems . Yes I said that.
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Is the role of the companion only to avoid OPD ( what if it happens nevertheless) or is it also to keep me safe in case it is there and to reduce the probability of OPD actually setting in.
I don’t know if I can help my challenge But I know following a route I could be stopped by collapsing after panic attacks and utter confusion.
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- Gordon
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It's not Descriptors (b) and (d) that are mutually exclusive but (e) and (f), (d) is technically the same as (f) but as it scores the same ten points as (d) it's not usually an issue although this may change when the claimant is trying to get automatic qualification for a Blue Badge.
The role of the companion is to help the claimant avoid OPD, this might be by talking to them and calming them, it might simply be holding their hand but remember the Descriptors refer to "without another person" so it does not matter what support they provide and whether it is effective or not.
You are not describing your sight problems in a way that would help you score, for example; you say "I can see but cannot read", you also don't mention how often you have these attacks and whether you specifically have them when you are out. Also, how long do the attacks last? Remember it would have to stop you continuing to follow the route.
Gordon
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