Head Injury (TBI) DLA to PIP

Anybody know anyone who gone through this as a relatively well walking wounded person but one suffering the residual and hidden injuries of a head injury TBI? Also virtually managing their own condition for decades without much medical input apart from occasional various GP visits so evidence is virtually nil. I only get the mobility element so am miffed that that I have to claim for things that I don't really wish to claim for. Having got my forms it's hard to make a case not to score nil points on the motability element and as it's also very difficult to split the physical and mental disabilities as the form wants because for me, one greatly impacts on the other. It's certainly having a negative effect on my health that I didn't expect. The prospect of an assessment with some under qualified person isn't a pleasant proposition either (especially Q9 which isn't pleasant for me and could lend me to say "that's it I've had enough of this" - I know the consequences of that). I thought that I'd make a transitional claim but looking at the questions and descriptors I'm thinking what's the point and do I really need to put myself through that.

Thanks Gordon. I signed up and got the useful guides. For me though, when you know that to the visual eye things don't seem too bad and you don't personally focus your disablities then this process is so negative whereas DLA was enabling IMO. It's been several decades since my TBI and I've just been managed by my GP over that time so evidence is scarce as I say. I keep flip flopping by the day but the negative effect that it's having on my mental health and general wellbeing is leading me to think that my healthiest option (short term if not long) is not to complete the process or just withdraw my application.

So no specfic question

Hello KTM.

I’ve been ploughing my way through my first DLA to PIP application, I had to smile when I received my ‘ Invitation ‘ normally invitations are for something generally a lot nicer than the 40 page PIP questionnaire.

I’m sure you might have thought of this but, might there be a Traumatic Brain Injury organisation that might be able to offer some support and advice while you’re going through this process? I’ve had a very quick look and there are some out there, if nothing else they may be able to confirm how other TBI folk have got on with applying for benefits.

Other than that I’m just trying to follow the advice of the B&W team, so that’s why I’ve spent the last 2 weeks slowly working my way through the questionnaire, using the PIP guide at every step of the way. I’ve reached question 13b. so far, and coming back here to read as many posts as I can and asking any question when I need more help. If nothing else, the B&W site shows you that your not alone in going through this process. You never know, in time this dehumanising process may even have to change if enough people say what they have had to go through in order to be paid the disability benefits they are entitled to. Chin up Sue.