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PIP rejected because of home medical assessment

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5 years 5 months ago #241360 by BIS
Hi ET

You can break it down. Just think about the whole process of making a meal and describe what would happen if you tried, or when you last tried (even if that was years ago). You're right saying that it is impossible is not enough - you need to explain why it is impossible.

So if you can't cut up vegetables, you say why not. 1, Because of frequent bouts of dizziness you are only able to sit down for a few minutes (try and say what few is). and then you need to go and lay down. 2. Handling knives is impossible because of the lack of grip and safety issues and the real danger of hurting yourself, which is why your husband does all the cooking. (Remind them again here that when you are alone your husband leaves you cold food to eat.)3. Because of the lack of grip you are unable to move pans, as you would drop them. You don't have the balance of strength. 4. Nor could you take a ready meal and put in in the microwave (you need to say why you can't do this - balance, grip, dizziness, lifting something out - the danger of burning and hurting yourself, being unable to stand). 5. You also need to say why you cannot sit on a perching stool (because of the dizziness).

There may be more you need to say - but you need to do this with every point against the criteria. It can seem laborious - but as Gordon said in a previous post - do not assume the person reading your claim understands your condition or situation. I think this is especially important when describing variable conditions, where they seem to err on the side of the 'good days' only.

BIS

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5 years 5 months ago #241419 by Izzy13
Hi Bis,

Thank you for the reply, sorry for the constant questions. I think i'm even more confused at what to put now than i was before!

Yeah I can understand the whole process of breaking it down and describing what would happen if i tried to do the task, etc.

The problem I am struggling with in doing that is that i can do each of the the component parts of cooking a simple meal, just not all together at the same time and without help.

So am i correct in thinking i should concentrate on explaining that although i can start or complete certain parts of cooking a simple meal, i cannot do the whole thing from start to finish before my husband would have to take over, and i have to return to bed?

I'm unsure if this is enough for me to score points for needing assistance and supervision, as because i only have dizziness and no blackouts anymore, safety doesn't seem to be prevalent enough to count.

And if i read it correctly i cannot score points for cannot cook food at all because i can sometimes cook myself toast or soup etc?

Am i reading the guide correctly? or am i way off the mark?

I think if i can get my head around how to write just one of them correctly, i should be ok with the others. I'm just struggling to get my head around explaining activities that i never do.

Thanks again for all the help
izzy

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5 years 5 months ago #241423 by Gordon
ET

If you cannot prepare and cook a simple meal in its totality then you need to explain why this is the case, I can't say whether this will amount to a need for assistance but if you do not make the arguments then you certainly won't qualify :)

You cannot ignore the use of suitable aids, for example; would a perching stool allow you to remain in the kitchen, if not why is this the case?

You should treat "cannot prepare and cook food" as exactly that, so if you can cook toast or heat soup then you are not going to qualify for this Descriptor.

Gordon

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5 years 5 months ago #241427 by alisp

BIS wrote: So if you can't cut up vegetables, you say why not. 1, Because of frequent bouts of dizziness you are only able to sit down for a few minutes (try and say what few is). and then you need to go and lay down. 2. Handling knives is impossible because of the lack of grip and safety issues and the real danger of hurting yourself, which is why your husband does all the cooking. (Remind them again here that when you are alone your husband leaves you cold food to eat.)3. Because of the lack of grip you are unable to move pans, as you would drop them. You don't have the balance of strength. 4. Nor could you take a ready meal and put in in the microwave (you need to say why you can't do this - balance, grip, dizziness, lifting something out - the danger of burning and hurting yourself, being unable to stand). 5. You also need to say why you cannot sit on a perching stool (because of the dizziness).


Yes, good luck with that - hope you do better than we did. Our version of 2. and 3. didn't get us enough points. But 4. surely shouldn't count - the DWP definition of preparing a meal is a meal from scratch using fresh ingredients, so "meat and two veg" or similar - not putting a ready meal in the microwave, or cooking toast or preparing soup.

"The problem I am struggling with in doing that is that i can do each of the the component parts of cooking a simple meal, just not all together at the same time and without help."

That certainly sounds to me like "needs assistance" - although the assessor might well then try and argue that if you can do them all then you can string them together and do the whole thing yourself, so I think you'd have to go to town on the "fatigue kicking in" bit.

Carer for a long-term ME/CFS sufferer
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5 years 5 months ago #241430 by Izzy13
Hi Gordon,

Thank you so much for your reply. I'm glad at least i'm on 'somewhat' of the right line with what i was thinking re descriptor f.

Apologies for the long post, I hope you don't mind, but this is my first draft for the 'preparing food' section and I've tried to do as you have suggested.

I was just hoping to get some feedback on if you think I have made a compelling enough argument or if again I've completely missed the point!!?

Any help/advice would be very much appreciated

Preparing Food

I have been awarded 2 points for my problems with preparing food as the HP says the descriptor ‘Needs to use an aid or appliance to be able to either prepare or cook a simple meal’ applies.

However, I believe that ‘I need supervision or assistance to either prepare or cook a simple meal’ is the correct descriptor. This is because I would be unable to complete this activity on my own without the help of my husband even with the help of aids. However, the majority of days I cannot manage this activity at all and need more than supervision or assistance, ie. I need my husband to prepare or cook a simple meal for me.

I feel that the HP has not considered fully the effects of ME (Post Exertional Malaise, muscle fatigue, muscle pain, cognitive dysfunction, etc) and the POTS/vasovagal syncope (dizziness, breathlessness, tachycardia, sweating, nausea, etc) resulting from these conditions, when attempting this activity. I explained to the HP that although the medication (midodrine) has helped to a degree by stopping the blacking out, it has not got rid of the dizziness completely and it does not stop the symptoms of the POTS, these symptoms don’t resolve until I lie down and the episodes of dizziness are random and unpredictable.

In the past, when I have attempted to try and help my husband in the kitchen in preparing/cooking a meal from scratch, I have found it exacerbates my conditions and caused a ‘flare up’ in my ME and POTS/Vasovagal syncope symptoms, and I have had to give up the task as it was too overwhelming for me.

In conclusion I believe I fulfil the criteria because I cannot prepare or cook a simple meal:

Safely: because I cannot stand or sit for more than a few minutes due the fatigue and pain my ME causes. I have a perching stool, but I find it of limited use because of my poor balance and its angle causing me to have to put pressure and weight on my legs. I am only able to sit on it for a few minutes at a time before my POTS/vasovagal syncope, muscle pain and fatigue become too much and I have to go and lie down again so that the symptoms stabilize. When the kitchen becomes hot during cooking, these symptoms appear even faster and I get dizzy very quickly. If I was to attempt to use sharp knives or peelers to prepare vegetables I would struggle to do so because of the effort and pain involved. I would also struggle to lift hot pans of cooked food to drain them because I do not have strength in my hands, wrists and arms due to muscle fatigue, and to lift and carry the pans and to then drain them safely.

Reliably: I cannot prepare a simple meal reliably because I would have to stop and rest almost immediately after starting the task, due to the fatigue and pain my ME causes. I would then have to rest for an extended period of time before I attempting to continue, if I could continue at all.

Repeatedly: I cannot prepare or cook a simple meal repeatedly due to the fatigue and pain my ME causes. If I was to attempt to cook a simple meal, I would be unable to repeat the task until I had rested for an extended period of time.

In a reasonable amount time: I cannot prepare or cook a simple meal in a reasonable amount of time due to the fatigue and pain my ME causes. If I was to attempt to cook a simple meal, I would be unable to complete this activity on my own without the help of my husband even with the help of aids. However, the majority of days I cannot manage this activity at all and need more than supervision or assistance, ie. I need my husband to prepare or cook a simple meal for me.


Thanks again
izzy

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5 years 5 months ago #241445 by Gordon
ET

First of all, I would separate your comments about assistance and supervision, I know that the Descriptor refers to both but the help being given is very different between the two.

Secondly, you are still not addressing the issue of suitable aids, I mentioned a perching stool in a previous post, the DWP will also argue that there is no need for you to pick up a heavy pan, you can fill it using a smaller container that you can manage and when hot, you can remove food from the pan using a slotted spoon to a plate that you could carry. It may well be that you cannot do these things but you need to explain this, there is a list of aids in the PIP Claim guide, you don't have to address each one but for everything that you are saying that you cannot do you need to see whether an aid would help and then explain why it wouldn't.

The term "reliable" is a collective noun for four sets of criteria;

• Safely – in a fashion that is unlikely to cause harm to themselves or to another person.
• To a necessary and appropriate standard – given the nature of the activity.
• Repeatedly – as often as is reasonably required.
• In a timely manner – in a reasonable time period.

so where you say "I cannot prepare a simple meal reliably" yo need to change this to one of the terms above, from what you have written "safely" would appear to be a better term.

Gordon

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