PIP review queries

Dear Team,

I am battling completing the PIP review form along with ongoing litigation, job loss(dismissed by my employer refusing to make reasonable adjustments), ongoing threat of homelessness, reduced access to my carer's time/help, trying to get AtW help for job search on top the plethora of physical, mental and cognitive conditions, in short struggling with this yet again. I wasn't expecting this so soon as my award is due to end in Nov 2026.
Given my circumstances and limited resources, I feel lost, overwhelmed, dragged about and not getting anywhere.

I have visited the guidance and still have the information I submitted in the original application as I try to surmount this challenge but still find things difficult particularly the form itself. I find it incredibly challenging and overwhelming. I have already sought multiple extensions due to Tribunal hearing, poor health, lack of appointments from Welfare benefits and fear I'm at great risk as the deadline is less a 10 days away. I'm struggling to find a way to get this sorted.

I fear my seeking yet another extension, would it be likely to push my review into jeopardy?

I would appreciate any time -task strategies/ideas for tackling this beast.

I apologise as I may not be thinking straight, coherently or articulating clearly here. I would be most obliged if I could get some advice and thoughts on these:

1. The form dilemma: I began filling in the form using the responses from my original application but during the last conversation with DWP about an extension, I was passed to a Case manager(or worker) who advised I should state no change as even though I am worse off my award can't be improved beyond what the enhanced rates I currently receive. I explained that I wanted to make sure that I gave DWP information I have and be clear, he still insisted it was fine to go with 'No Changes'...
Is this accurate information?
I am sceptical although this would simplify things massively. My conditions have worsened and adversely impact every activity. They are chronic, long term, have no cure, have to largely self-managed and debilitating. I have three new diagnosis (ADHD, Autism, RSI -ulnar neuritis) but I have had referrals going for them long before I first applied for PIP in 2022. Although I did not reference or mention them in particular in my initial PIP application.

I would like to be clear and thorough as well as do my best to eliminate the need for an assessment.
In this case, when answering the questions in the form,
a. should I detail my answers or follow DWP advice ?
b. if I do end up detailing responses - do I have to declare for every question/activity the exact changes in relation to every health condition?
c. will it be helpful to ask for an extension to do the job well and thoroughly as I loathe not doing things right and get really anxious and obsess over getting things perfect, accurate and complete. (I have now been at this post for over 2.5 hours and counting.. ignoring pain, sleep, food, medicine and other needs..the first few hours of slight let up from a a prolonged 5 day multi-flare-up when I have been able to comprehend a little before relapsing)

2. Supporting Evidence: I'm worried that I have fewer documents that I can send this time round. It is a combination of my pain clinic being unresponsive and most consultants discharge quoting we can do no more, patient has to manage. I also struggle to attend appointment due to unpredictable flare-ups of my conditions. Some clinicians treat one unfavourably because I chose to not use medicine they recommend for fear of aggravated side effects or not wanting to undergo the same ineffective surgery a 5th time to avoid further loss of my abilities and risk further damage to my organs. Some services simply discharge because I missed their call once. Then there is the usual falling through the cracks and missed at hospital's end. It is a constant battle. I'm fed up of the medical admin and hospital guff that I have to take care of, it takes away all the time , energy I have, which is very little to begin with anyway. There are times when I simply want to run away from it all!!!
Does this ruin my chances of renewal? Should I seek more time to try and find some more evidence?

3. PA4 errors - The surest way to get my BP high is to read the PA4 which thanks to the B&W team's advice I had already requested soon after the award. The assessor HP does not even capture all my conditions let alone accurately.

The PA4 repeatedly includes inaccuracies such as" no medication for treatment plan for breathlessness" ( I'm not asthmatic but breathlessness rises from pain, fatigue, anaemia from Endo, ME, Fibro, and Anaemia as well as orthostatic imbalance so I am told by medics, any treatment for these conditions is unlikely to look like exclusive breathlessness medication);
"no evidence to support cognitive impairment " (I listed my cognitive difficulties both arising out of conditions and medication side effects at length but HP chose to ignore it all, there were letters listing M.E, me seeking help with this from my GP) ;
"no specific therapy for engaging" (HP never asked me about it, I did list a therapist who helped with agrophobia) and the worst of all which is used repeatedly " ;
"she was able to provide details of a complex medical history and undertake the assessment with minimal support" ( HP notes some of my difficulties such as being slow, disjointed, asking questions again, needing water and toilet breaks sounding low, being in pain and fatigued in the initial part of the report but ignores it and all that I explained to HP about the struggle of the assessment, originally requested a paper one, and the stress on going through, the preparation and weeks of flare-ups it followed, I can't do this again. I lost my family to Covid and its just the friend who cares for me is the sole person who helps but has limited time. I have to own my conditions within my limited capacity and resources - I am compelled to focus on in order to survive. Also partly my conditions become and remain special interests out of necessity. HP ignored the level of support I needed and the effect the assessment had)
The assessor also decided I did not require any additional support to comply with future claim processes when I explicitly have asked right from the start. But none seem to have been taken into account.
There's loads more.....
I had at the time communicated to DWP that there are errors in assessment report but did not have the means to elaborate things in writing. Also DWP mentioned your award is as high as it can be, why do you want to create additional noise?

But it still rankles me - could I include some 'corrective' information against it ? Is there a right/effective way to do it. Should I consider including these in my responses in the AR1 form within the activity responses themselves or add it separately in the 'Further Information' section providing answers against each point.

4. Providing extra but relevant information : Within the 'Additional Information' Section of my initial application, I had provided details as to the impact of my conditions on work and very briefly general life. While expanding on them, I wonder if I mention the recent difficulties I have had - losing work, in litigation since 2023, Employment Tribunal and being 'dismissed due to ill health' while my ex-employer refused to an OH nor provide reasonable adjustments, now further litigation on unfair dismissal and victimisation Will this be dangerous to my claim - either to the prospect or making them want to reassess?

5. Prescribed aids - The form(new AR1 I think) asks specifically for prescribed aids unlike the initial one I filed for mobility sections. When I procured mine (adapted walking sticks) during the pandemic there was no way I could access medical care let along get a prescription for an aid. Subsequently, during a chat with my hEDS physio they suggested they don't prescribe, couldn't give any anyway but approved what I had chosen, although I don't have this in writing and no longer in their service ! I still need someone along with aids to prop myself as close to straight as I can get and lean on them to move - on bad days and bed bound on worse days.
Should I include the aids despite the lack of prescription?

I hope you will forgive the ridiculously long post.

Thank you ever so much