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PIP appeal no GP evidence
- Shelleljay
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2 days 17 hours ago #312466 by Shelleljay
PIP appeal no GP evidence was created by Shelleljay
Just want to say first really sorry for the long post. Just that really. Was awarded zero for everything on initial assessment and MR. I'm 40 and had stroke age 32. I'm left with homonymous hemianopia (blind spot in both eyes on left hand side so nearly half vision in both eyes. I've suffered with migraines for as long as I can remember (was told 4 times I went to a&e for the stroke that I was having a migraine even though I categorically told them it wasnt I knew was a stroke hence no clot busting drug which is why I've been left permanently partially sighted). I have anxiety and depression since before the stroke been on antidepressants for nearly 20 years but both got worse after the stroke. I work 30 hours a week but after stoke job was adapted to suit my needs, I wfh apart from 1 day a month I have to go into the office. I can work when I want as long as my works done so if I have a bad migraine I can make up the lost hours a few days later or at night or over the weekend. Before the stroke and the year after I used to be in the doctors every week with migraines, head and neck pain and palpitations and chest pain (after stroke tested heart and realised i have PAT which is basically really fast resting heartrate that can spontaneously happen when at rest). I would say for the first year I was coping, the past 7 years it's got worse and worse to where I don't leave the house other than the 1 day in the office and I get a taxi there and back as I'm now to anxious to go by bus because of my vision. Ive not been out socially or been on holiday since the stroke because i dont like to be around people or strange places. I have daily cuts and bruises from bumping into things. I never go to my doctors mainly for the past 7 years other than yearly mot and my repeat meds because I honestly don't trust them. Every issue I had I was repeatedly told its nothing, I'm young blah blah, then after the stroke and heart it was well you look good and it could have been worse. So DWP are focusing on the fact I work even though I've told them of adjusted role and schedule around my worse days and the fact I haven't seen GP regarding how bad my anxiety has got but on appeal I explained my reluctance to see the GP as I don't feel it would go anywhere beyond meds which I'm already on. Can anyone give any advice for my response to PIP bundle basically their assumption because I work and haven't had recent GP input is I must be fine but I am far from and struggling to cope but silently. So much more but I'm aware this post is really long. Only GP evidence i have is from 8 years ago which is diagnosis of stroke, eye test, partially sighted certificate and repeat meds list plus a few messages to docs regarding bad migraines and head pain, palpitations then nothing for the past few years other than med reviews. Case law states medical input doesn't determine the severity of conditions as some people don't seek treatment (me). I don't have no friends to corporate anything buy my 18 year old daughter wrote a statement and i done a 2 week diary but didnt make a difference at MR. Really Sorry it long but I'm desperate and my submission needs to be in in the next few days
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- LL26
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18 hours 34 minutes ago #312493 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic PIP appeal no GP evidence
Hi Shelleljay,
No worries about the long post, sometimes we need to know all the information so we can give you more detailed advice.
DWP have several 'stock phrases' they use as excuses - working and not seeing GP are 2 of these! Firstly there is no law preventing disabled people working and claiming PIP. Secondly, many people who have long term illness seldom see their GP - there's no available appointments anyway, and unless your health changes or the meds no longer work, I suspect you just tick the repeat prescription box and never get to see it need to see the doctor!
Here are some ideas to consider
1. What is your job? If this is computer based do you need expanded text or sone sort of overlay etc? Compare and contrast what you used to do with what you actually do now. What other 'reasonable adjustments' are made?
2. You are partially sighted - Have you seen an optician or hospital eye doctor recently - could they have an updated report, or alternatively get an optician appointment or even pay privately for a consultant and ask for a report?
Although you haven't seen your GP recently you could ask for an appointment to discuss your health. You could ask for a report or failing that get a copy of your GP notes. Maybe generally it is about time for a medicines review?
3. What is your medication - you can look up bnf.nice.org.uk/ this will tell you about your dose etc. This will inform you of whether you have the highest dose or not. Clearly a very high dose indicates a serious medical condition. Maybe you can't take a higher dose due to allergy or side effects - then say this. If you only take the lowest dose available you don't need to refer to this, but it is always good to know.
4. You may have already done this, but have a rethink about the descriptors - pay particular attention to the so-called reliability criteria - all 4 must be met
Safety
Acceptable standard
Reasonable time
Repetition
I'll throw some suggestions out -
Cooking etc Poor eyesight - safety in the kitchen , using knives etc, carrying hot pans, being around hot liquids? Can you see the cooker dial, can you see to ascertain if food is cooked? How predictable are the migraines? Do these make you blackout - could you black out in the kitchen? (It's about the possibility and consequent risk if you fall or scaled self etc )
Eating etc - Do you have trouble seeing things to grip them, eg cup of tea etc. Does food fall off the plate or fork if you can't see properly - this could lead to scalding etc (and may amount to not being 'acceptable' if you spill food around - also might indicate not a reasonable time if you take over twice the time of an able person.
Medication - can you see to read and or open the packets- safety issues if you can't. Maybe you need a dosett box and or someone to fill it?
Bathing - how safe are you? Can you see to get in/out? Again blackouts with migraines? Blood pressure issues?
Toileting - unless you have incontinence issues, then actually sitting down or rising might require a grab rail etc if you are unsteady for any health reason.
Dressing - can you see to do up buttons etc( Problems with bending?
Reading - do you use large text, magnifier etc, do you miss words out because you don't see them and therefore guess. Do you use text to voice apps? Think about reasonable time.
If you struggle to read does this cause issues with letters etc and budgeting? Do you any any problems eg entering Pin numbers - maybe you get timed out?Perhaps you use alternative ID types? Even if you don't use these things I've suggested, under this it other descriptors, is it reasonable for you to use these?
Mobility - it probably isn't safe for you to go on any journey (familiar or unfamiliar) with someone with you? Do you need to use a white stick (orientation aid) ? If you are constantly bumping into things, this suggests that you have a great propensity to hurt yourself and perhaps fall. Clearly if you fall outdoors you can hurt yourself very badly and worst still get hit by a car. This indicates a risk of substantial harm which comprises the safety criteria.
Think also if your walking causes increased heart problems, pain or even induces migraine.
In terms of the migraine, if you are unwell and need to go to bed, then there is a strong argument that you can't do anything safely etc for yourself during these times - this could apply to all relevant descriptors. Particularly so if migraines are often, or you need to lie down to prevent the headaches.
Acceptable standard also includes pain - if you have a significant amount of pain doing a descriptor activity, it is likely that this won't be 'acceptable'. For example any walking done with a reasonable amount of pain IS discounted, so this could mean although you can physically walk some way legally for PIP your distance could be zero
All the descriptor activities have to be done repeatedly across the whole day, as required.
This could mean preparing 3 or 4 meals a day. Eating and drinking several times during the day. Toilet 4 times more if incontinent etc etc
If you regularly can't manage a normal/usual amount of repetitions or avoid trying because it's too difficult due to pain, stamina, breathlessness, poor eyesight etc etc then this indicates you either need some sort of help or actually 'cannot' do the descriptor activity.
These are a few pointers as to things to consider to expand on why you you can't do the activities and should be awarded points.
I hope this helps.
Let us know how you get on.
LL26
No worries about the long post, sometimes we need to know all the information so we can give you more detailed advice.
DWP have several 'stock phrases' they use as excuses - working and not seeing GP are 2 of these! Firstly there is no law preventing disabled people working and claiming PIP. Secondly, many people who have long term illness seldom see their GP - there's no available appointments anyway, and unless your health changes or the meds no longer work, I suspect you just tick the repeat prescription box and never get to see it need to see the doctor!
Here are some ideas to consider
1. What is your job? If this is computer based do you need expanded text or sone sort of overlay etc? Compare and contrast what you used to do with what you actually do now. What other 'reasonable adjustments' are made?
2. You are partially sighted - Have you seen an optician or hospital eye doctor recently - could they have an updated report, or alternatively get an optician appointment or even pay privately for a consultant and ask for a report?
Although you haven't seen your GP recently you could ask for an appointment to discuss your health. You could ask for a report or failing that get a copy of your GP notes. Maybe generally it is about time for a medicines review?
3. What is your medication - you can look up bnf.nice.org.uk/ this will tell you about your dose etc. This will inform you of whether you have the highest dose or not. Clearly a very high dose indicates a serious medical condition. Maybe you can't take a higher dose due to allergy or side effects - then say this. If you only take the lowest dose available you don't need to refer to this, but it is always good to know.
4. You may have already done this, but have a rethink about the descriptors - pay particular attention to the so-called reliability criteria - all 4 must be met
Safety
Acceptable standard
Reasonable time
Repetition
I'll throw some suggestions out -
Cooking etc Poor eyesight - safety in the kitchen , using knives etc, carrying hot pans, being around hot liquids? Can you see the cooker dial, can you see to ascertain if food is cooked? How predictable are the migraines? Do these make you blackout - could you black out in the kitchen? (It's about the possibility and consequent risk if you fall or scaled self etc )
Eating etc - Do you have trouble seeing things to grip them, eg cup of tea etc. Does food fall off the plate or fork if you can't see properly - this could lead to scalding etc (and may amount to not being 'acceptable' if you spill food around - also might indicate not a reasonable time if you take over twice the time of an able person.
Medication - can you see to read and or open the packets- safety issues if you can't. Maybe you need a dosett box and or someone to fill it?
Bathing - how safe are you? Can you see to get in/out? Again blackouts with migraines? Blood pressure issues?
Toileting - unless you have incontinence issues, then actually sitting down or rising might require a grab rail etc if you are unsteady for any health reason.
Dressing - can you see to do up buttons etc( Problems with bending?
Reading - do you use large text, magnifier etc, do you miss words out because you don't see them and therefore guess. Do you use text to voice apps? Think about reasonable time.
If you struggle to read does this cause issues with letters etc and budgeting? Do you any any problems eg entering Pin numbers - maybe you get timed out?Perhaps you use alternative ID types? Even if you don't use these things I've suggested, under this it other descriptors, is it reasonable for you to use these?
Mobility - it probably isn't safe for you to go on any journey (familiar or unfamiliar) with someone with you? Do you need to use a white stick (orientation aid) ? If you are constantly bumping into things, this suggests that you have a great propensity to hurt yourself and perhaps fall. Clearly if you fall outdoors you can hurt yourself very badly and worst still get hit by a car. This indicates a risk of substantial harm which comprises the safety criteria.
Think also if your walking causes increased heart problems, pain or even induces migraine.
In terms of the migraine, if you are unwell and need to go to bed, then there is a strong argument that you can't do anything safely etc for yourself during these times - this could apply to all relevant descriptors. Particularly so if migraines are often, or you need to lie down to prevent the headaches.
Acceptable standard also includes pain - if you have a significant amount of pain doing a descriptor activity, it is likely that this won't be 'acceptable'. For example any walking done with a reasonable amount of pain IS discounted, so this could mean although you can physically walk some way legally for PIP your distance could be zero
All the descriptor activities have to be done repeatedly across the whole day, as required.
This could mean preparing 3 or 4 meals a day. Eating and drinking several times during the day. Toilet 4 times more if incontinent etc etc
If you regularly can't manage a normal/usual amount of repetitions or avoid trying because it's too difficult due to pain, stamina, breathlessness, poor eyesight etc etc then this indicates you either need some sort of help or actually 'cannot' do the descriptor activity.
These are a few pointers as to things to consider to expand on why you you can't do the activities and should be awarded points.
I hope this helps.
Let us know how you get on.
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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