Many people are put off applying for PIP because they have heard that it is very difficult to get an award for their particular condition.  Yet Benefits and Work research shows that in some cases pessimism about the outcome is not supported by the statistics.

Last month we published an article entitled Revealed - the hardest and easiest conditions to claim PIP for which looked at some of the conditions with the highest and lowest percentage success rate for PIP claims.  We compared these to the overall average for successful PIP claims, which is 52%.

We asked readers to tell us which conditions they thought were particularly hard to claim for.

One condition that came up repeatedly was fibromyalgia.

Lorraine told us:

“Fibromyalgia is a hard one to claim for as it is quite a complex condition with no definitive diagnosis. If you dare to say you have good days, you are doomed to failure.”

Whilst we agree that saying you have ‘good’ rather than ‘better’ days is unlikely to help your claim, the reality is that the success rate for PIP claims for fibromyalgia is 62.7%, considerably above the average.

Similarly, ZuluAssegai believed that ME/CFS was one of the harder conditions to claim for:

“The condition ME/CFS is very hard to get DLA/PIP for as it is a disabling, fluctuating condition and it is a hidden disability.  It doesn't fit the tick box format.”

Yet the success rate for chronic fatigue syndrome is 54.8%, slightly above average.

Osteoporosis was another condition a number of readers mentioned, with Anne telling us “It doesn’t even seem to be recognized.”

In fact, 67.6% of claims where the primary condition is osteoporosis get an award, again considerably above the average.

Autism is a condition that some people felt would not be easy to get PIP for.  But the award rate is actually very much higher than average, at 72.3%.

Yet for Asperger’s syndrome the award rate is just below the average, at 51.1%, even though,

as Porridge explained:

“ . .  any of us with Asperger Syndrome will already be aware our lives are very tough, especially if you are quite far along the spectrum, and it is a fact that we are just as autistic as anyone else with autism and we are also likely to have other problems like dyslexia, dyspraxia, severe anxiety and other significant difficulties.”

Other conditions also present a mixed picture. As kysgillett explained:

“Epilepsy is invisible (most of the time) and fluctuating (all of the time).  It is also a complex condition with many different types of seizures. It is very difficult for someone who may be unconscious to explain how being unconscious affects them.  It is difficult to get any award without having to go to a tribunal.”

Our statistics don’t tell us how many people had to go to a tribunal before getting their award, but our reader’s opinion that it’s a complex situation with many different types of seizure was borne out by the statistics. 

Generalised seizures (with status epilepticus in last 12 months)  attracted a higher than average award rate at 58.7%.

But partial seizures (with status epilepticus in last 12 months) was below average with 47.6%.

However, there were four other classifications of seizures, with some getting awards above and some below the average:

  • Partial seizures (without status epilepticus in last 12 months)  40.2%
  • Generalised seizures (without status epilepticus in last 12 months)  50.1%
  • Seizures – unclassified  54.1%
  • Non epileptic Attack disorder (pseudoseizures)  59.2%

Diabetes is another condition where award rates vary depending on the type of diabetes, although all of the awards are below average.

Reader CP explained that:

“It's generally accepted by parents of children with Type 1 diabetes that, whilst their children will be entitled to DLA at at least middle rate, the chances of them getting PIP when due to transfer is virtually zero.  Apparently, all the ways in which diabetes affects their lives magically disappear in their 16th birthday!  It would be interesting to see what percentage of T1 diabetics do qualify.”

Whilst the award rate for type 1 diabetes is not zero, it is still very low indeed:

  • Diabetes mellitus Type 1 (insulin dependent) 28.2%
  • Diabetes mellitus (category unknown) 45.6%
  • Diabetes insipidus  45.7%
  • Diabetes mellitus Type 2 (non insulin dependent)  45.8%

Kim warned that you:

“Cannot claim pip for Crohn’s disease!! They totally disregard this disabling condition.”

Again, this isn’t quite the case, but it definitely is far below the average with a 30.7% success rate.

Nika1000 suggested endometriosis as a hard condition to claim for, in spite of the fact that it is:

“A life limiting disease. Truly heartbreaking to see my daughter rolling on the floor with pain with frequent flare ups and totally depleted of energy and fatigued the rest of the time, not able to study or work.”

And indeed, the award rate for this condition is very poor at 34.5%.

But whilst there is no question that some conditions are very much harder to claim for than others, it’s definitely worth considering making a claim even if yours is one of the least successful health issues. 

The likelihood is that you will have a better than one in four chance of getting an award and, for most conditions, it is likely to be better than a 50/50 chance.

And some of the conditions which it is assumed are the hardest of all, such as ME/CFS and fibromyalgia, actually have an above average success rate.

Members can download the full list of conditions and percentage success rates in a pdf file entitled ‘Success rates for PIP claims by condition’ from the ‘Claims’ section of the PIP guides page.

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  • Thank you for your comment. Comments are moderated before being published.
    Gary Bailes · 21 days ago
    I all ready had PIP until today. A few months ago I updated PIP with my latest conditions as they have worsened hoping to get the higher rate of PIP but I was turned down and to make things worse they scored me very low which was enough for them to cancel my current PIP and they said they were cancelling it from August 2023 and I'll be soon getting a letter as to how much I owe them and want all that money back. Can anyone believe this, I find it totally disgusting. The whole PIP thing is a big scam, they are all con artists.
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    Eileen · 25 days ago
    Anybody refused pip for epilepsy should remind dwp in mandatory that  pip law for safety and supervision changed 9th march 2017  
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    Joshua · 1 months ago
    The thing with PIP is, you get what you want if you fight for it. Take them court of you have to. Do not give up. When i was first accepted for pip, I was offered a measly £25 per week. 8 months later I am now getting £165 per week. It  was a stressful 8 months, but I got what I wanted. 
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    KJ · 7 months ago
    I've never applied before.
    From start to currently waiting for the decision papers, it's been 4 months minus two days. I wrote the forms myself, didn't consult anyone, had the phone assessment that took just over an hour. I had to ask for questions to be repeated and explained myself. Submitted ID et al. 
    Yes it drained me energy wise, i have M.E Myalgic Encephalomyelitis but i didn't pin my hopes to getting it so it kept my anxiety down completely.
    I've got no complaints, very appreciative of the professionalism by all i spoke to. 
    • Thank you for your comment. Comments are moderated before being published.
      Bex · 1 months ago
      @KJ Have you been awarded pip? I have me
  • Thank you for your comment. Comments are moderated before being published.
    Liz · 8 months ago
    I received a text msg saying "Your PIP review is complete. You should receive your decision letter in 2 weeks. One you receive your letter, contact us if you have any questions." This is my 1st review w PIP, and I read in a deep dive into forums that someone said they don't text you Yes or No even it is a review. I cant tell from my payments as they are not due for an entire month as I just received my recent PIP payment. Help so I know to prep for the fight if I need to. I have asked for the report which came through the post to my sister so I have not seen it yet if there are discrepancies. 
    • Thank you for your comment. Comments are moderated before being published.
      Jh · 11 days ago
      @Liz Call pip helpline. You need to give them your details and then ask how much you will get next payment. They will tell your pip amount which you will get the next following month. You will then know if they are paying you same amount or less or not. 
      I did same and I got my answer straight away. Then received my award letter with some changes after 2 weeks. 
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    LMC · 9 months ago
    Could anyone tell me please how long a telephone consultation with a disability assessor for a PIP renewal takes?  Thanks in advance
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    Darling Best · 9 months ago
    I had my 5th assessment in 4 years a few weeks ago. I had a telephone assessment that took 1 hr and 30 min but I was so tired and overwhelmed that the assessor told me to stop and we would continue another day. 2 weeks after, we spent another 1 hr and 30 min on the phone to my absolute limit. All in all this took 3 hours. I have life long disorders and conditions and sadly I will never get better but will get worse as I get older. It's been 3 weeks since my 2nd telephone call and I wonder how much longer I will have to wait. I got awarded STD Care and H mobility for a longer period last time after being on High on both for every 2 years. Last time I just had no fight in me to appeal as my assessor lied to give me less points. No clue why as I had lots of evidence about my mental health and care needs. I hope that this time goes my way and they don't assess me every two years for conditions that are life long .
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    Faz · 9 months ago
    My review was due, and I received a telephone Assessment on the 17th of April 2023, I got a message saying it will take 6 weeks, I've just received a letter stating we have all the proof to make a decision, so nervous I normally get enhanced rate for daily care and standard for mobility, normally how long does it take, I have angiety all ready reading everyone's messages. 
    • Thank you for your comment. Comments are moderated before being published.
      Faz · 9 months ago
      @Faz I still haven't heard from pip yet, approximately how long does it take after assessment to get a reply. 
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      Jules · 9 months ago
      @Faz Have you heard yet? 
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    Eva · 10 months ago
    I've had my vile telephone assessment on 14 th of February. 
    The only thing woman was interested in , was how long each task takes . I've never timed It !! And what the hell is it .!
    They took away my award despite my conditions getting worse. 
    I've had an operation! in my knee without success , I'm in constant pain , struggle to walk , my knee is completely damaged, I have chronic swelling , walk using one crutches , can only walk for few meters because of severe pain . 
    The bloody assessor took away my mobility ! I need a lot of help due to osteoarthritis, hyper mobility of my joints and now due to heart problems. 
    Due to Covid I'm still waiting for some appointments as the NHS is in tatters. 
    They removed both elements !! I'm so furious, despite my health being much worse , they made me healthy . !!! 
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      Mick · 7 months ago
      @Eva I won’t hold my hopes up for me, makes my problem seem not much in comparison. 40 and have had bad knees over 6 years, hands which are stiff and painful for half as long, a bad back for over 7 maybe 8 years. Had 70 days off sick from work this year. I have ok days when it’s just little sciatic pain, bad days when it’s a lot of sciatic pain, and worse weeks when my back seizes which means I go on sick and then can’t pay all the bills. Really hoping I get this, I don’t want it, I’d trade it for a normal back and knee and hands, but I suspect the knee and hands are arthritis even though doc says I’m too young for that, and my back pain is apparently chronic. It could be both doctors and pip team. Is it wise to let pip contact the doctors?
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      John · 10 months ago
      @Eva It’s disgusting but don’t give up you’ll win in the end 
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    Carole · 11 months ago
    I was given lower rate care and no mobility in April 2018... since then in July 2018 I was diagnosed with fibromyalgia, osteoarthritis,  coeliac disease, Insomnia and anxiety.  My review was due 2021.  It was extended due to covid until April 2022.  I filled out the review form adding all my new conditions and sent it off.  I had a letter last week saying they are over 12 months behind and they were extending it until March 2024.  It is so stressful as I really need the extra help.
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      Loz · 7 months ago
      @Niki So have you had the appointment now ? And have you had a decision? 
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      Niki · 9 months ago
      @Carole From sending my review form back to actually getting a medical appointment for the review took almost 9 months. 
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    D Boy · 11 months ago
    I have non epileptic attack disorder, cyclothymia (bi polar spectrum), mixed anxiety and depression, back/joint pain and chronic  fatigue..... still waiting for my assessment. I'll be livid if I couldn't get it with all these conditions ruining my life 
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    Iain M · 11 months ago
    I have an autoimmune disease called sarcoidosis, multi-organ, debilitating autoimmune related "CFS/PVFS".
    PIP got refused (which in itself given the evidence is appalling but apparently common place!) I know the rates of appeal success are high. But I had zero energy at the time to mount an appeal in the time given. (which IM sure they count on).
    So rates of appeal for certain conditions might be significantly higher or lower than average? What your analysis doesnt appear to include is a breakdown of which conditions are more likely to fall at each PIP hurdle. There must be a bias toward certain conditions? Id submit thats worth tacking on to get a proper picture. Its all v well saying that someone with my illnes is likely to get a PIP on appeal but how many of us actually manage these ridiculous hoops we have to jump over and over?!
    • Thank you for your comment. Comments are moderated before being published.
      Iain M · 11 months ago
      @Iain M and just to add that my view is that it amounts to a form of discrimination against certain conditions and disabilities.
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    Kirky · 11 months ago
    Hmmm lots of differing experiences here, I have today applied for ADP for the first time ever. I have many conditions and have had for years now but i have been very stubborn and kept working full time. The last 12 months have been awful after blood clots in my heart, heart failure and progression of psoriatic arthritis I have had to admit that I can no longer work full time and need to rethink things. I put off applying for so long because I knew how difficult it was and I knew how humiliated I would feel explaining my day to day challenges. Im glad I have submitted it and now I have the nerve wracking wait to essentially have the validity of my pain judged by someone who doesnt know me or see what I go through every day. I understand there has to be some sort of process and info gathering and the points system and all that but surely there is a better way of doing it, I could have given all the information in a phone call, built up a bit of rapport with the person calling in half the time and would not have had to get someone to type it all up for me because of the pain in my hands. We will see what comes back but im not hopeful after reading everyone's experience.
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    Clare Crotty · 11 months ago
    The last time my re assessment was done I was told I had no entitlement to any pip at all and after this being confirmed on review my only move was appeal where not only was all my pip reinstated my award was increased to the highest rate for both components The stress of all this did not help my conditions including Fibromyalgia I ended up seeking help for my mental health When you are made to feel a malingerer and a liar on top of everything else I am not only someone who needs care I am also carer to my son who is on DLA due to his health conditions including Autism, kidney and heart problems Life can seem at times like one long battle trying to get help for one or other of us without the added problems of having to fight for benefits that apparently I was entitled to all along A battle which will start again next year as my son will be turning 16 and the claiming PIP
    • Thank you for your comment. Comments are moderated before being published.
      Phil · 2 months ago
      @Clare Crotty Well done you have to challenge everything they say or do

    • Thank you for your comment. Comments are moderated before being published.
      Emma · 11 months ago
      @Clare Crotty Hi, I'm in the same situation as you. I have a telephone assessment at the end of the month and I too am carer for my autistic son. Do they question how you manage that or are able to do it? I don't want them not awarding me because I have no other choice but to care for my son but physically I'm struggling. 
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    Sally. · 11 months ago
    I have a long history of Chronic depression and anxiety. So much so that going out for shopping, appointments etc is a real challenge. I also have Osteoporosis in my hands feet, Back, neck and knees, so walking, driving and generally moving around is difficult. I stressed this massively in my PIP application, telephone assessment and MRN but was ignored and awarded zero points for daily living. I am now appealing this. The last 6 months has been awful and has exacerbated my condition.
    • Thank you for your comment. Comments are moderated before being published.
      Jules · 9 months ago
      @Sally. I hope you've now received your pip? 
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      John · 10 months ago
      @Sally. So disgusting the same thing happened to me I was awarded it I 2018 but they stopped it all last month and left me financially crippled I have the same symptoms as you and struggle going out waiting for my mandatory reconsideration 🤞
  • Thank you for your comment. Comments are moderated before being published.
    Irene · 11 months ago
    I had a recent PIP review and was so stressed thinking I could potentially lose my benefit. At last review mobility component was reduced resulting in me having to hand back my mobility car. 
    I downloaded the training module and reviewed my form. Updated many answers. 
    Long story short I was awarded high rate on both components with no end date and a back payment of £4,200. I was amazed but so relieved this is such a stressful time. 
    If you can download the module, it helps to know DWPs expectations and how to frame your answers. Thank you so much for all you do to help. 
  • Thank you for your comment. Comments are moderated before being published.
    Christopher Paling · 11 months ago
    I asked for a assessment of my pip after a year on standard daily living award, with lots of new medical information since award January 2022, I was told it could take upto 6 months and asked if I was sure I wanted to go ahead with assessment! I was asked to submit my medical information and my gp was asked for my medical records information and a summary of my health condition, video assessment was done and after 4 months I received my results back in a letter awarding me with same standard living allowance, 11 points from 9 points, mobility side I wasn’t given any points first time round but awarded the enhanced amount with 12 points, with a date of January 2026 as my next assessment date! 
  • Thank you for your comment. Comments are moderated before being published.
    Janice · 11 months ago
    I was on full care and mobility with no end date when I was on DLA.  At the age of 67 with fibromyalgia  I was awarded mid care and low mobility.  Has my condition got better NO in fact it has got worse. 
  • Thank you for your comment. Comments are moderated before being published.
    Carole · 11 months ago
    I completed my review forms Dec 2022 was surprised to be awarded 4 weeks later for a further 5 years without an assessment. I hear so many horror stories about reviews and the length of time it takes for forms to be looked at. I can’t work out how they are so quick with some but take years with others. 
    • Thank you for your comment. Comments are moderated before being published.
      pammy · 9 months ago
      @Maria Hi my blue badge was due to run out got a blue badge without going through my benefits 
    • Thank you for your comment. Comments are moderated before being published.
      Karen · 11 months ago
      @Carole Well done :)
    • Thank you for your comment. Comments are moderated before being published.
      Maria · 11 months ago
      @Carole You're extremely lucky, someone must have had a brainstorm!! Sent my review in May 6th 2022, given a 9 month extension, recently got onto DWP early February 2023 as my Blue Badge is due to expire 18th March, given yet another extension to March 2024, the old chestnut used yet again... "due to Covid... blah blah blah " DWP is a disgrace at best, I would have been happy with a 4 month wait, but good luck to you and good luck for the future 
  • Thank you for your comment. Comments are moderated before being published.
    Emma · 11 months ago
    No mention of PAD (Peripheral Arterial Disease) even though this horrible condition causes me pain and walking difficulties most days.
    After reading so many 'horror' stories of people being turned down for this award with conditions worse than my own, I dont feel exactly motivated to try.
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