The DWP have revealed the draft criteria they will be using to select claimants for the Severe Disability Group, which will allow fast-track claims for disability benefits.  Benefits and Work would like to know if readers with severe, lifelong conditions think they would meet the criteria.

What is the Severe Disability Group?

The purpose of the Severe Disability Group is to improve the disability benefits assessment process for claimants who have conditions which are severely disabling, lifelong and with no realistic prospect of recovery.

Claimants who fit the criteria will not need to complete a detailed application form or go through a face-to-face assessment in order to claim personal independence payment (PIP) or to be found to have limited capability for work-related activity (LCWRA) for employment and support allowance (ESA0 or universal credit (UC).

The introduction of a Severe Disability Group was first consulted on in the Health and Disability green paper in 2021.

The resulting Health and Disability white paper published in 2023 revealed that design and testing of the Severe Disability Group had already begun.

The DWP have now announced that they are widening the testing of the Severe Disability Group, with two separate tests taking place, both relating to PIP.  There is more on this below.

How the Severe Disability Group works

Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.  The form is similar to the SR1/DS1500 form used for claimants who are terminally ill.

You can download a copy of the SR1 form from the response to this freedom of information request.

If the specialist confirms that the claimant meets the criteria, they will not be required to attend an assessment and will no longer be required to fill in complex forms, such as the PIP ‘How your disability affects you’ form or the ESA50/UC50.

Testing the criteria

The DWP are currently running two tests of the draft Severe Disability Group criteria

One test involves asking a selected group of clinicians to identify patients they believe are suitable.

The other test involves the DWP contacting claimants they consider to be likely to meet the criteria and asking if they would be willing to take part.  If they are, the DWP will then contact their clinician and ask them to complete a brief form. 

The DWP have said that participation is entirely voluntary, claimants can withdraw at any time and they “will not be financially disadvantaged by taking part.”

Official criteria

In order to meet the Severe Disability Group criteria, the DWP say claimants must :

have an irreversible or progressive condition, confirmed or managed by a secondary care specialist, with no realistic prospect of improvement 

have had no significant response to treatment, or treatment will not improve function, or no further treatment is planned

have a severe impairment of physical or mental function (or likely to develop this within 6 months) such that they need assistance from another person to complete two or more activities of daily living

The Secretary of State is satisfied that, for the individual patient the criteria have been fulfilled for: 
enhanced Personal Independence Payment (PIP) daily living or mobility components
functional limited capacity for work-related activity (LCWRA) or support group

Our interpretation

There is no published official guidance on how to interpret these criteria. So, please be aware that the definitions below are our understanding of the criteria, they are not official definitions.

An irreversible condition is one that may not deteriorate further but will also not improve, such as a learning disability, ADHD, spinal cord injury or cerebral palsy.

A progressive condition is one that is known to deteriorate, such as osteoarthritis, Parkinson’s disease, COPD or Alzheimer’s disease.  

A secondary care specialist is someone who is not in the first line of treatment.  So, a GP or mental health nurse would not be included, but a cardiologist or a psychiatrist would be.  It appears that you don’t need to be currently seeing a specialist, but you need to at least have had your condition confirmed by a specialist.

There is no planned treatment that will improve your condition further.

Your condition needs to affect two or more activities of daily living to the extent that you need assistance from another person.  These activities aren’t defined, but the list of PIP daily living activities would seem to be a likely place to start.

For PIP, you need to be able to meet the threshold for an enhanced award of the PIP daily living or mobility component.  If you don’t already get an award, you can check the criteria using the Benefits and Work PIP test.

For UC or ESA, you need to meet the criteria for being in the LCWRA group or the support group.  If you don’t currently get either of these benefits you can our UC WCA test for LCWRA or use our ESA test for the support group.

Would you qualify?

The DWP say they worked with specialist health professionals to develop the criteria and also consulted with several charities.

But, as always, they don’t seem to have talked to any of the claimants who will be on the receiving end of this system.

So, we’d like to hear your opinions and queries about the criteria in the comments section below. 

And, if you currently get at least one component of PIP at the enhanced rate or you are in the LCWRA group for UC or the support group for ESA, do you think you would meet these criteria and be eligible for the Severe Disability Group?  Or is there something about your condition, your contact with health professionals or something else that you think would threaten your chances?

You can read the full Severe Disability Group test: information for clinicians  Please note: considerably more details about the Severe Disability Group criteria were added to the DWP web page on 27 February.

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    Scoomoo2003 · 2 months ago
    I suffer with Osteoarthritis,Chronic pain syndrome, depression, anxiety, restless leg syndrome, type 2 Diabetes and Fibromyalgia. I'm not under a specialist anymore as they said back in 2010, there is nothing they could do for me ( treatment), and I just had to live with the pain. My gp has had me on meds for years. I have no idea if I would qualify for there new system. 
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      Sarah · 2 months ago
      @Scoomoo2003 Same for me 
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      Sue · 2 months ago
      @Scoomoo2003 Hi, I'm the same as yourself, all the exact symptoms, I've no idea about this system. I get PIP high for mobility and low for daily living, I now get ESA support group because a specialist said I was in tier 1 ill health retirement, when my work finished me. My PIP will be up for review in April, I'm dreading it.
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    Hopeful · 2 months ago
    My long term chronic condition would qualify me, but although I was diagnosed by consultant, I am no longer managed by consultants, they can’t do anything for me, so don’t see me any more, how would that be counted?

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      Jasmine · 2 months ago
      @Hopeful If I read the above correctly it mentions in one of the paragraphs that you don’t need to be managed by specialists/consultants for your health conditions so as long as you have received a diagnosis for them.
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      Teresa · 2 months ago
      @Hopeful Exactly same with my son just his GP so where does that leave us
    • Thank you for your comment. Comments are moderated before being published.
      Sarah · 2 months ago
      @Hopeful Exactly same for me 
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    John · 2 months ago
    I believe I would qualify for this (and already do) as I have a progressive genetic illness that has no treatment or cure. Limb girdle muscular dystrophy type 2L (R12) I already meet and exceed the criteria for higher rate PIP and ESA and have done since my initial assessment many years ago.  I am due a 'light touch' review in 2030.  I'm unsure if it would be beneficial or detrimental to be offered this option? I think this is where my hesitance would lie. Are there any positive reasons to accept SDG if offered??? 
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    colin Manning CF631FR · 2 months ago
    Too old 75 ?
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    Nicki · 2 months ago
    My husband is blind (Retinitis Pigmentosa) and would usually be eligible for this, however his consultant basically said “you won’t ever get any sight back, you will just get worse, so there is no point coming to see me anymore” and basically discharged him, so looks like I would still have to fill out the long forms! 
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    Georgina · 2 months ago
    I have severe athritis and no cartalidge in ankle, Spurs heel in other foot and in excruciating pain. I also Hv fybrimyalgia do I qualify for enhanced rate. I can barely walk from the pain. 
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    Sandy T · 2 months ago
    I recently had to claim universal credit to be able to get support with my housing costs. I had been in the support group of contribution ESA since 2016.  The change was forced as my husband died and I moved flat into an independent living scheme.

    Luckily my housing association helped me complete the application.  However they did warn me that I would probably be asked to see a work coach so they requested telephone rather than face to face.

    Anyway I was full of fear and trepidation as I cannot imagine trying to work with my comorbidities.  I got several journal messages and a telephone appointment date for my first meeting with a work coach.  I was very anxious about it.  Then a few days before the appointment date I got a note in my journal cancelling the appointment.  I just thought that was the usual DWP messing with your head.  However a couple of days later another journel entry appeared telling me I should sign my client commitment.  When I looked I had been put in the LCWRA group and my commitment was to regular log in to my journal.  That was it, so very pleased.

    I also had a call from ESA to say my contribution based claim would continue and I would get my money every 2 weeks.  ESA would be deducted from my UC though as expected.  This meant that I didn't have to go 5 weeks without money either.  I asked person who called who he was etc and it appears he was a disability work coach or something along that line. He said that he was just making the call to let me know I was still getting ESA and had been put in the support group.  He said no further paperwork was necessary as they could see my conditions were progressive and not likely to improve.  This was in January and I am now expecting my 3rd UC housing payment and have got my PIP and ESA as usual.  I am not in an enhanced group but standard for both care and mobility.

    So for me, the system seems to have worked.  Much better than my original claims for ESA and PIP which had me going to medicals and meetings at the JobCentre.  I have relaxed a bit and not so anxious about my finances now but it niggles in the back of my mind that at any time I could get plunged into poverty at the click of a mouse  :(  I am sure lots of you identify with that anxiety! 
    • Thank you for your comment. Comments are moderated before being published.
      Michelle · 2 months ago
      @Sandy T Hi Sandy thank you for this. I myself am on contribution ESA in the support group and have a progressive long term health condition. I am confused as to what you have said as I’m constantly being told I’m not entitled to more help. With my medically retired pension & contribution ESA (approx £800.00 total per month) I have to pay £250.00 towards my rent, full council tax (minus 25%) and all my bills like you do food etc. I don’t have things like sky, Netflix etc and my mobile is £7.00 a month. Everything is at a minimum as I cannot afford it. I don’t get free prescriptions I pay monthly for a yearly certificate as I have 9 items per month treatment each different so you can imagine the cost on prescription for each item. I don’t get free dental treatment, vision tests or glasses. I was also not entitled to any of the cost of living payments but did get the x2 £150.00 disability payments. To say I have and now even worse today struggle is an understatement. No matter who I contact if they decide to respond (majority don’t) say it’s not right BUT it is because I’m on contribution ESA. Basically where I have worked all my life and fully paid my national insurance stamps I’m paying myself sick pay. DWP also told me that I am better off on contribution ESA and that’s what I will continue to receive but how am I? So reading your story proves to me that I have and am being lied to and have suffered and struggled for a long time. I lost my job because of my illness (no fault of my own) cannot get another job because of my conditions (disability friendly employer does not exist). I don’t know what to do or who else would help me as I’ve tried everyone I can think of to assist me. BUT saying all of this I’m really pleased your ok & sorted your very lucky and thank you again for sharing with us x ps I do get PIP but I use that for treatments example (salt caves) and I have to buy my own medical equipment last thing was a nebuliser as my dr’s don’t give them out. It’s all just so mad.
  • Thank you for your comment. Comments are moderated before being published.
    Christine Newton · 2 months ago
    I'm not sure if I qualify as I currently get enhanced daily living component and low rate mobility component for my arthritis in PIP
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    David · 2 months ago
    So where would you stand with CKD?
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      Ian Barnes · 2 months ago
      @David Renal conditions
      stage 4 or 5 chronic kidney disease (CKD), highly symptomatic and reduced functional status despite or unsuitable for replacement renal therapy and unsuitable for transplant

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    Ms Basset · 2 months ago
    This is not a fair way forward. As per many, if there are no further treatments you are discharged from hospital and you just “cope”.  Until I’m sure there is a time you need rereferred. 
    My example is there is no cure for ME. I have been under a specialist for over 10 years, there is no cure, you just learn how to manage it daily.  My GP asked recently if I wanted to be referred to the Long Covid clinic or not, due to symptoms left with since November. She then went on to say, “but you know how to cope with the fatigue/brain fog etc already”.  I agreed with her. 
    Add the many other age related physical issues osteoarthritis etc, which only progress on, where does this leave a person? 
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    Graham · 2 months ago
    On behalf of my daughter, I believe she would qualify. Diagnosed at birth with a very rare genetical condition, she had a Statement of Special Educational needs for her entire time in education, She attended a Special school for children that were severely learning disabled, she appears to meet all of the required criteria. She is now 32 years old, the only query I would have would be the criteria of a Secondary Care Specialist. Since she moved from Child Services to Adult Services (14 years ago), we have been left to get on with it on our own. She qualified for Disability Living Allowance (Personal care and mobility) from age 3 and currently receives PIP at the enhanced rate for both care and mobility. My only query is the requirement for a secondary care specialist. The only secondary care specialist she is currently looked after by is her diabetes consultant (Diagnosed 10 years ago with type 1 diabetes), alternatively she was being monitored by a geneticist until aged 10?      
    • Thank you for your comment. Comments are moderated before being published.
      Teresa · 2 months ago
      @Jeni I totally agree too surely our own GP would be sufficient or many people won't qualify when they really ought to
    • Thank you for your comment. Comments are moderated before being published.
      Jeni · 2 months ago
      @Graham totally agree with Graham.  Son born  (now 34) with rare chromosome unknown syndrome and on enhanced DLA now PIP since 3 years old but we don't see a secondary care specialist.  So would we have to find a geneticist after all this time?
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    Jan Gill · 2 months ago
    Hello. I wonder whether Pemphigus an autoimmune disease in which the immune system mistakenly attacks cells in the top layer of the skin (epidermis) and the mucous membranes. People with the disease produce antibodies against desmogleins, proteins that bind skin cells to one another. Would qualify?
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    Mel · 2 months ago
    My problem is that I never go to the surgery, I have my medication delivered. Most of the medication I take I buy myself because I prefer natural products. The only doctor at my surgery that really knew me & my conditions died of covid. Because I never go there they don't believe that I can't do stuff because they haven't seen me struggle. Some of my conditions I can't even find on my medical records so the doctor isn't going to say I have them even though they were diagnosed! 
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    Susan H · 2 months ago
    I wonder if ‘ no prospect of improvement’ will apply to people like myself who have Osteo Arthritis and Scoliosis!  I am now 70, and my conditions deteriorate all the time and will never improve.   It would be a positive thing not to be fretting and anxious every time there is a Review, everything taken away again, fighting for my right, and being awarded again.
  • Thank you for your comment. Comments are moderated before being published.
    Lis · 2 months ago
    I definitely qualify for the fast track disability 
    I’m on higher rate pip and lcwra what happens do the government get in touch 
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    Sue E · 2 months ago
    Do I think I would qualify?
    Assuming that DWP recognises ME/CFS as a permanent or progressive condition, with no treatment available, and that they recognise my referral to the CFS clinic as ‘secondary care’, then yes I would qualify.
    Do I fit the ‘enhanced’ PIP criteria? Yes, so I assume I would qualify.
    If this process is done correctly (ahem!) then it would release thousands from the current assessment system, allowing us to be ill or disabled in ‘peace’, and enabling DWP to concentrate their cold stony death-glare on those perhaps less clear-cut cases.
    Do I trust them to do this correctly? Nope.
    • Thank you for your comment. Comments are moderated before being published.
      neelie_08 · 2 months ago
      @Sue E im in lcwra and have ME/CFS but turned down again for pip 0 points , mandatory still 0 points so have to appeal now and fast track would save me the stress of all the process thats took 8 months so far and appeal will probably take another 8 months 
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      Rebecca B. · 2 months ago
      @Sue E I also have ME/CFS and am in the support group for ESA and have enhanced PIP for both parts. My thoughts are that as ME is officially a fluctuating condition it might not be a qualifying disability which would be a huge disappointment as the only fluctuations I have are downward and have a letter from the chronic fatigue consultant that includes his opinion that I'm not fit for work. 
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    Carole L · 2 months ago
    I agree with the previous comments. My son was diagnosed with a brain injury when he was 2 . He is now in his 40s. It is a long time since he saw a Consultant of any kind. He has a daily carer arranged by the local council and seen by social workers. In the area he lives in he doesn't see the same SW each time and has to go through his health issues again which he doesn't like. Who is getting his paper work. He ahs been on DLA/Pip since he was 7 years.
  • Thank you for your comment. Comments are moderated before being published.
    Porridge · 2 months ago
    Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.” I have a lifelong disability that I was born with and for which there is no cure or treatment. I have long since been discharged from the secondary specialist clinic, having been diagnosed. I do not have a specialist clinician. So who would receive this form to fill-out? The GP has no expertise in my issues.
    • Thank you for your comment. Comments are moderated before being published.
      Sue · 2 months ago
      @Porridge Exactly the same, born with CP now 55. Not seen specialist in decades 
  • Thank you for your comment. Comments are moderated before being published.
    SEdwards · 2 months ago
    Hi

    From reading the ‘information for clinicians’ linked at the bottom of the article, near the end it details:

    “to be eligible for the enhanced rate of the mobility component of PIP a person must be unable to move more than 20 metres reliably, either aided or unaided (including with the use of a prosthesis)”

    I wonder how many clinicians have the knowledge, or the time to gain the knowledge, of the case law around that one very important word….’reliably’? I would assume not many. So it would be very easy for a clinician, with the best will in the world, to confirm, incorrectly in law, that someone can move 20 metres. 
    • Thank you for your comment. Comments are moderated before being published.
      Lymie · 2 months ago
      @SEdwards That's also incorrect information for the clinician. I get Enhance Mobility scoring points for 50m to 200m (reliably, safely & to an acceptable standard) and points for needing support on unfamiliar journeys. 

      Both my physical and mental conditions qualify as lifelong etc for fast track so both mobility aspects (and the varying points combinations) need to be detailed on the DWP's information to clinicians.

      Yep, specialists will now also need to learn disability benefits criteria. 🤷‍♀️
  • Thank you for your comment. Comments are moderated before being published.
    The Dog mother · 2 months ago
    https://www.thesun.co.uk/money/26162878/benefit-shake-up-tax-cuts-budget/
    Ho hum...Look what Hunt was planning, but decided to swerve it.

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