The promised genuine co-production of the Timms personal independence payment (PIP) review already seems to have been ruled out by disability minister Stephen Timms. Timms gave more details of the process in an interview with the BBC last week covering both the PIP review and the forthcoming white paper.

PIP review

It already seems clear that any possibility of genuine co-production of the Timms review with disabled people has been dropped.

Timms told the BBC that his idea of “co-production” is that:  “we are going to be taking a lead from disabled people and representatives of disabled people in this work over the next year or so. And what we’re actually doing over the summer we’re going to be planning in detail how that process will be taken forward. What I envisage is there will be a fairly small group of ten people, something like that, who will work very closely with me as the minister for the period of this review, and they will have a lot of say and a lot of sway over the form that the recommendations emerge in.”

This, however, is a very long way from the amendment to the Universal Credit Bill proposed but subsequently withdrawn by MP Dr Marie Tidball MP, following assurances from Timms in the committee of the full house debate.  

At column 1045 Timms called the amendment “a helpful checklist of the desirable features of our co-produced review”.

However, there is no indication that Timms intends to follow most of the items on that checklist, including:

The Secretary of State must establish a Disability Co-Production Taskforce (“the Taskforce”) to provide independent oversight of the conduct of the review and the preparation of the final report . . .

The Taskforce must—

(a)be provided with support by the Government Equalities Office,

(b)be chaired by an independent person appointed by the Secretary of State,

(c)have a majority of members who are disabled people or representatives of disabled people’s organisations; and

(d)include such other persons or representatives of such organisations as the chair considers relevant to the effects of the review and proposals developed for the purposes of subsection (3)(a) on disabled people.

Timms cannot in any way be considered to be an “independent person”.  He is a government minister who fought hard to remove the PIP daily living allowance from hundreds of thousands of current and future claimants.  He should not be chairing the taskforce, even if he is in charge of the review.

Yet Timms already seems to have decided that “the taskforce” will consist of just 10 people and it seems clear that he will make the final decision on who is on that taskforce, rather than those decisions being made by an independent chair.

When asked who was going to be on the taskforce, Timms replied “Well, we haven’t yet worked out who it’s going to be… I’m going to be talking to disability organisations, I mean, I do talk regularly to them of course, but I’ll be talking specifically about this point so that we can set out in the detail both the process and how it’s going to work.”

There is also a lack of clarity about one of the primary aims of the review:  is it a cost-cutting exercise?

Timms told the BBC:  “The review exercise that we’re undertaking is not designed to deliver spending cuts. I mean, we will certainly have to operate within the current projections for what spending is going to be. . . This review is not intended to deliver cuts. I think it’s quite important that that is well understood because I don’t think some of the people who we need to be involved in the review would be if they thought that that’s what it was for.”

Yet, in her welfare reform speech on 21 May 2025, secretary of state Liz Kendall told MPs that:

“And the number of people on Personal Independence Payments is set to more than double to 4.3 million.

There are now 1,000 new PIP awards every single day. That’s the equivalent of adding a city the size of Leicester every single year.

This is not sustainable or fair – for the people who need support and for taxpayers.

So unless we reform the system to help those who can work to do so…

Unless we get social security spending on a more sustainable footing…

And unless we ensure public money is focused on those with the greatest need and is spent in ways that have the best chance of improving people’s lives…

…the risk is the welfare state won’t be there for people who really need it in future.”

So, are the current projections that the PIP review will have to operate within,  the ones that Liz Kendall says are “not sustainable” and, if so, what is the likelihood of Liz Kendall implementing the recommendations of the review? 

Or are they the projections which take account of Labour’s original intention to cut £5 billion from the overall welfare benefits budget by 2030?

Whatever the reality, it is clear that the Timms review will be a carefully managed consultation and in no way a co-production in which disabled people have a clear say in what changes the government actually implements.

Five other committees

Timms revealed that five other committees have already begun work.  These cover:

  • Pathways to Work
  • Right to Try
  • Access to Work
  • Raising the age at which people can claim PIP to 18
  • Delaying access to the UC health element until age 22

There are approximately 10 people on each committee, all of whom are currently operating under a cloak of anonymity.  They have all met once and will meet every month for two or three hours until October, when their recommendations will be presented to ministers and “will be very influential in the final decisions that get made.”

This means that each committee will have met a maximum of four times for a combined total of between 8 and 12 hours, before making recommendations that will affect the future of potentially millions of claimants.

No committees

There did not appear to be any mention of a committee to discuss the proposed new Unemployment Insurance contributory benefit, which was consulted on in the Pathways to Work Green Paper.

Nor was there any mention of a committee to consider the scrapping of the WCA, which was set out in the Green Paper, but on which there were no consultation questions.  Timms has said, however, in his PIP review terms of reference that “We will be setting out plans for how access to the health element of UC will work when the WCA is removed as part of the forthcoming White Paper.”

No confidence

It is hard to take an optimistic view of the consultation processes taking place. 

The fact that existing committees are operating anonymously, without any public information about their terms of reference or procedures, does not encourage confidence.  Clearly individuals may not wish to be identified, but there seems no reason why organisations should not be.

And the lack of any real element of co-production in relation to the Timms review suggests that it will be little more than a cover for whatever it is that the DWP plan to do anyway.

You can listen to the BBC programme Access All here.

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  • Thank you for your comment. Comments are moderated before being published.
    · 11 days ago
    And governments wonder why nobody trust a word they say! What's that joke, "How can you tell if a Minister is lying? His lips are moving". I watched Timms a few months ago when he was under scrutiny from the Select Committee. When Timms was asked if he was apprehensive about the voting in the commons on the bill and the MP's debating it. His response was to giggle and say "No, I'm looking forward to it". I was so angry! How could anybody look forward to taking money of vulnerable people.
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    · 12 days ago
    And so, the Scottish review of their adp is in, and from what I’ve read of its recommendations, it seems wholly fair, and it seems to TRULY have the needs of disabled and ill people as its core values. Oh, and throw in what is morally decent and right while we are at it as well. Meanwhile, south of the border, Timms should take note. I 

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      · 1 days ago
      @John In the cases you refer to, where you are under the care of a consultant and the medication you are on reflects your degree of disability, it would be good to see people able to bypass the assessment process. But many of us don't fall into that category. I don't have any medication or any form of care for my main illness. There isn't any treatment because of deliberate minimisation and neglect over decades. Some people don't have a diagnosis or they have an inappropriate one. If people have rare diseases, the assessors won't know anything about them. So you need a system that takes into account the severity of symptoms and their affect on people's lives. It could be done much better but people shouldn't be punished for gaps in medical knowledge or where there hasn't been a research breakthrough
    • Thank you for your comment. Comments are moderated before being published.
      · 1 days ago
      @(No) hope I was especially impressed by the focus on "reliability". That it should be highlighted throughout the application form and that it should be clear in award letters whether  "reliability" in undertaking activities had been fairly taken into consideration.
    • Thank you for your comment. Comments are moderated before being published.
      · 6 days ago
      @John @John You say "The PIP assessment system is just a proxy for broad levels of disability", but then you say that all we need is the "claimant saying what help they need in their daily normal life due to disability or illness".

      Well how broad is that? We need more to go by, or it would be a waste of time explaining our needs if they did not qualify. At least with descriptors.we have something specific to fight for, and with which we and advisers can work to prove our eligibility. Without descriptors we'd just have the dwp going "nope, not that, or that, or that either" and we couldn't even counter by saying "but these are the laid down qualifying descriptors and I qualify".

      The DWP and their assessors don't have the expertise to determine whether "the claimed level of disability is in line with the medical condition". What so called "DWP medical expert" is going to recognise the "severity of that medical condition as indicated by medication, treatment history" any better than they currently do, without any kind of descriptor as guide?

      We already have a system where, if the claim is denied, more evidence can be submitted via MR and appeal. Then the claim can be assessed against the descriptors. It would be an endless and unmanageable process to argue a case where various dwp decision makers or tribunal judges countrywide had to make decisions based on their individual ad hoc opinion of the severity of conditions they are unqualified to assess. Now that would be arbitrary.

      We have to be able to say "look, these are the criteria and I fit them, here's the evidence", not expect the dwp or a judge to agree we're having a hard time. Without descriptors there would be more chance of different people deciding our case having different ideas of need, arbitrarily.

      The current system is far from ideal, and the descriptors need to be reviewed, but there have to be guidelines to work to for claimants and assessors, so we should get fighting for our voice in the review process.



    • Thank you for your comment. Comments are moderated before being published.
      · 7 days ago
      @John
      The descriptors should not be arbitrary, but without specific criteria for identifying claimant need the dwp would have carte blanche for making decisions which are precisely arbitrary - 'based on random choice or personal whim, rather than any reason or system'.

      If the dwp wanted to take appropriate account of whether "the claimed level of disability is in line with the medical condition and severity of that medical condition as indicated by medication, treatment history" they'd be doing that already.

      It is the character of the descriptors which need to be reviewed, not the concept. I have posted multiple times that the welfare green paper proposals and the 4 point rule were untenable/unworkable. Our energy should be directed at ensuring the involvement of the sick and disabled and their spokespeople in the Timms review so as to ensure descriptors accurately reflect claimant experience.

      We need descriptors to be designed to hold dwp to account as well as to protect claimants.

    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @sara The PIP assessment system is just a proxy for broad levels of disability. You do not need a list of arbitrary descriptors and points to do that. Just the claimant saying what help they need in their daily normal life due to disability or illness.

      Just as now the gate keeping against over claiming and fraud is the medical condition. The DWP verify the medical condition and if the claimed level of disability is in line with the medical condition and severity of that medical condition as indicated by medication, treatment history. In cases where it does not, the claim is denied, or more evidence is sought or the decision maker consults a DWP medical expert.

      The current system of arbitrary activities each with multiple descriptors scoring different points. The claimant ticking descriptors and writing details of why they apply. Has not been designed with the aim of stopping the government denying benefits to people. Of protecting claimants. Quite the opposite it has been designed to deter people from claiming and to deny help based on technicalities. You cannot wash yourself but you can wash yourself above your waist, less points. You need someone with you but they are needed to supervise or prompt not physically do the task for you, less points. And so on. It is why the descriptors and points get changed to reduce eligibility. And why the proposed 4 point PIP rule ultimately became untenable when it was pointed out someone unable to manage their toilet needs, wash below their waist, use a cooker, and cut up their food, would fail to score 4 points on a single descriptor. 
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    I think a lot of the anonymous members are likely to be private businesses who stand to profit from the new rules
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    · 13 days ago
    We need the DWP to tell us if they are using AI to determine pip because a study reported in today’s guardian (11.08.2025) says that there is gender bias in favour of men with in reporting and downplaying women’s health issues 
  • Thank you for your comment. Comments are moderated before being published.
    · 13 days ago
    KEEP THE PRESSURE UP
    MP Letter template from ME Association Re: Concerns about the PIP Review, co-production, and remaining welfare reform risks.  Can be edited for other conditions:
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @Anon 25 And copy in debbie abrahams as well, I'm sure she'll be interested to read Timms's plans.
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @Anon 25 My MP, Steve Race, was an enthusiastic supporter of the original PIP cuts. I doubt any letters I send are going to make any difference to his views.  A more targeted campaign is probably needed to those who either voted against, or put up amendments.  
  • Thank you for your comment. Comments are moderated before being published.
    · 14 days ago
    Re esa/h ben migration to uc, can anyone please tell me whether it's possible to read through the whole online form before you fill it in, so as to have ready the info/documents you need? Or do they make you fill in bits before you can progress?

    Thanks.

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      · 6 days ago
      @godgivemestrength No, you cannot. But the form in the link provided by pollenpath should help you visualise it. To save time, you need to figure out a username that's used by others. Otherwise, it'll would keep saying to you that the username you've provided is already in use. You can imagine millions are on UC and have used all sorts usernames. Also, make sure you know the exact amount of your basic rent and service charges separately. If you've your passport and driving licence, it'll take less than an hour to complete the whole form.

      Hope this will help.
    • Thank you for your comment. Comments are moderated before being published.
      · 11 days ago
      @godgivemestrength This link should take you to a CAB document that helps you do a 'dummy run' of the online form, to familiarise you with how it looks and works. It's a while since I used it but if I remember rightly it helps you practice putting in info and answering questions. Completely fake, it's just a practice tool, and not connected to the gov website in any way!


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      · 12 days ago
      @godgivemestrength I would imagine so.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @RookiesUncle But can you read through the whole form before filling it in?
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @godgivemestrength Go too the job centre and use their computers were very helpful.
  • Thank you for your comment. Comments are moderated before being published.
    · 15 days ago
    Hi all, ive just submitted my claim for migrating from ESA to Universal Credit. Like so many of you on here I was unaware that I was getting Contribution based & Income related ESA, despite all my yearly award letters mentioning Income related several times & no mention of contribution based. Ive had to contact the DWP & ask them about this, all they would say is that im not on the new style ESA! So I was in the support group of ESA & i thought that I would transition over to LCWRA universal Credit, until I read the following on my payment information "You said your health affects you at work or prevents you from working. You might need to have an assessment before we can consider if you will get extra money for this" This has concerned me & I wondered if anyone else has had this in their journal & what the outcome was? Also ive asked for payments to be made twice a month, but im not sure how this leaves me with regards to transitional protection & getting council tax support? What i thought would be straight forward is anything but that & im in a constant state of anxiety! I hate this government, thank goodness I didn't vote for them! Any advice/opinions would be appreciated. Thanks in advance
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @John Thanks, all went well and it was a quick 10 minutes call to agree to report any changes in circumstances. They also said I was under no obligation to look for work or attend the jobcentre, unless I want to in the future.
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @Andy Doubtfull my transition to Universal credit ran smoothly.
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @Andy There is no need to worry. Your Support Group / LCWRA status is automatically moved with you from Income based ESA to UC and from Contributions based ESA to New Style ESA.

      The phone call will not take the 30 minutes the system books for it, it will take about 5 minutes. They should ask you the UC security questions to confirm you are you. If they are competent they will reassure you the only conditionality you will have is to notify them if there is a relevant change in your circumstances. And that the script they have to read is designed for new claims so most of it is stuff that does not apply to you. As you are support group / LCWRA so no conditionality. Then read their script, get you to verbally agree to notify the DWP if you have any relevant changes in circumstances. And then thank you for your time and tell you a copy of your claimant commitment will be posted to you. You will then get a prefilled in copy by post. And your New Style ESA application process will be marked as completed and put on the automated payment system. 
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      · 13 days ago
      @John I have a phone interview with someone from my local Jobcentre on Tuesday. The original message said , a phonecall to agree committed to report any changes in circumstances '.  Checking my journal this morning, my to do list now states, ' a 30 minute phonecall with a work coach to discuss my commitments.'
      I'm worried sick, in case they say I need to commit to something I'm not capable of. I have been in the ESA support group since 2013 and I'm not well enough to work. 
      What will happen if I refuse to provide fit notes due to being migrated from support group? Will they terminate my claim?
    • Thank you for your comment. Comments are moderated before being published.
      · 14 days ago
      @Nutcracker I'm going through the process of migrating from ESA (ir)  support group to UC. I submitted my application on 23rd July and received a message stating I would be told how much I was getting on the 25th August and would be paid on the 29th.
      A couple of days ago,  I received a message stating I am getting a phone call on Tuesday 12th August, regarding new style ESA ( which I didn't apply for) . Apparently it's to agree to my commitments and agree to report any changes in circumstances. 
      I believe this is happening with a lot of people who are migrating.
  • Thank you for your comment. Comments are moderated before being published.
    · 15 days ago
    Hi all.  I hope everyone is OK.  On 7th July, I sent a letter to Kendall and Timms raising issues that had occurred during the previous few months.  I intended it to be a final act by myself before going on sabbatical from the campaigning!   Today I got a reply.  So, I'm posting both my initial letter here (in italics) and the reply (in bold) for those that are interested.  Both letters are rather long, I'm afraid.  As you will see, they failed to address most of my points, and their letter appears to be put together from various prepared paragraphs, as they repeat themselves quite often!


    My letter to Liz Kendall and Stephen Timms dated July 7th 2025:

    Dear ...

    Like many disabled people, I am relieved to have seen the most damaging parts of the Universal Credit and Personal Independence Payment Bill removed prior to the vote in the Commons that took place today, July 1st.

    One of the concessions, however, is the promise that the PIP review led by Sir Stephen Timms will be carried out with the co-operation of disabled charities, associations and individuals. However, it is very difficult to believe this when the Pathways to Work consultation took place in such a slapdash, unethical manner. Not only were key parts of the legislation not consulted on at all, but the other parts of the consultation treated disabled people with a mix of disrespect and utter contempt.

    I was due to take part in a virtual consultation event on May 6th. The previous week, on May 1st, an email was sent to all participants, which broke privacy rules by revealing the full names and email addresses of everyone involved. No apology or formal acknowledgement was made by the DWP, despite a complaint being made.

    Things went from bad to worse, when 12 disabled individuals (possibly more) were unable to take part in the May 6th consultation because the log-in information we were sent for MS Teams did not work. The only contact information we had with the DWP was via the events.pathwaystowork@dwp.gov.uk email address. A complaint was again sent to that email address. No reply was received. In fact, none of us ever heard from the organisers again. There was not even an acknowledgement that we weren’t able to attend.

    What exactly is the point in involving disabled people in a consultation if we don’t actually get to attend, despite “tickets?” This wasn’t the only issue, as I’m sure you are aware. There was an in-person consultation event in Manchester on May 7th where the details of the location were sent so late that many disabled people couldn’t organise their journey/route in time. Disabled people need longer to plan journeys, find somewhere to stay etc. You would think that, of all people, the DWP would understand this. And then the only in-person event in Wales was cancelled completely.

    So, I am writing to ask how we can trust the government to really carry out the PIP review with the co-operation of disabled people, bearing in mind that the DWP couldn’t manage to organise these events competently (or even reply to emails), and that they did so with so little thought for the needs of disabled people?

    The disabled community has gone through a great deal during the last three months, and this is your collective fault. If you hadn’t tried to cut corners and perform a sleight of hand by not consulting on the main elements of the benefits bill, you might not have been gutting it completely tonight in an attempt to save face against the brave Labour rebels.

    Either way, we should not have been left to suffer a barrage of lies and myths from Labour MPs in media interviews over the last three months. Why were you linking cutting PIP with people getting jobs? You knew full well that PIP is not an out of work benefit. Cutting people’s benefits by up to £9000 a year (daily living PIP plus health UC when you scrap the WCA) doesn’t make them any healthier or able to work. Quite the opposite, in fact. And yet you repeated the lie so many times that even journalists started to believe it and printed it as fact.

    The consultation for the green paper was shambolic (and a sham), so what assurances can you give us that the much larger review that is to follow will be any better, any less chaotic, and any more interested in hearing the voices of disabled people? Given what has passed, many of us have absolutely no faith that it will be anything other than another smoke screen, with decisions already made before the review even begins. What are the disabled organisations and charities you will be working with? How will they be able to feed into your decisions and recommendations? And how do we know that you won’t simply listen and then set their views aside?

    We are, after all, fully aware that all three of you must have seen the many reports from respected organisations and charities that have been published since the Green Paper was revealed in March. You arrogantly cast those views aside. How do we know you are not going to do the same thing again? And how do we get assurances that you will actually be meeting disabled individuals during the review, rather designating the job to someone else? And how can we trust in Sir Stephen Timms when it was he that trivialised those with “low level functional needs” such as washing, dressing, using the toilet, and cooking as being easily managed with “small interventions?”

    Unless we get assurances, and see published the genuine results, correspondence and recommendations from disabled organisations and individuals, the disabled community is unlikely to have faith in anything that is likely to be decided over the next eighteen months, and that will result in the same amount of anger and dismay as this time around.

    I look forward to your reply/replies,

    Yours faithfully
    ...


    Reply received from Dear Dr Brown

    Thank you for your email of 7 July to the Ministers about Welfare Reform.
    Government Ministers receive a large volume of correspondence and they are
    unable to reply personally on every occasion. I have been asked to respond.
    This Government values the input of disabled people and people with health
    conditions, in addition to the representative organisations and people that support
    them. That is why we brought forward a Green Paper and opened a public
    consultation. The consultation welcomed all views and received over 45,000
    responses before it closed on the 30 June 2025. We offered a full suite of
    accessible formats to facilitate input and held a programme of 18 public
    consultation events across the UK and virtually to hear from people directly.
    We continue to facilitate ways to involve disabled people and stakeholders in our
    reforms.

    This includes the Collaboration Committees we launched on the 2 July, which bring
    together groups of disabled people and other experts to collaborate and provide
    discussion, challenge, and recommendations on specific work areas. The Minister
    for Social Security and Disability is also leading a wider review of Personal
    Independence Payment (PIP) - and at the heart of this will be coproduction with
    disabled people, the organisations that represent them, and MPs, to ensure that a
    wide range of views and voices are heard. The Disability Advisory Panel
    announced in the Get Britain Working White Paper, will further ensure perspectives
    of disabled people inform our work.

    We are committed to engaging disabled people meaningfully in our reforms to
    social security and the PIP review underlines this commitment. This Government
    strongly values the voices and interests of disabled people - and that is why there is
    a lead Minister for Disability in every government department, to represent the
    interests of disabled people and champion disability inclusion and accessibility. As
    we drive forward progress on the Government's manifesto commitments and
    missions, we will continue to champion the rights and opportunities of disabled people people and people with long-term health conditions.

    The Government is committed to ensuring that Personal Independence Payment
    (PIP) is a non-means tested cash benefit which is there for people, now and into
    the future. That is why we have launched a wider review of the PIP assessment as
    a whole, to make sure it is fair and fit for the future in a changing world and helps
    support disabled people to achieve better health, higher living standards and
    greater independence.

    This review is being led by the Minister for Social Security and Disability. We have
    published the Terms of Reference for this review (the Timms Review). We are
    committed to co-producing the review with disabled people, the organisations that
    represent them, clinicians, experts, Members of Parliament and other stakeholders,
    to ensure that a wide range of views and voices are heard. We will engage widely
    over the summer to design the process for the work of the review and consider how
    it can best be co-produced to ensure that expertise from a range of different
    perspectives is drawn upon.

    We are committed to concluding the review by Autumn 2026.
    The review will ultimately report to the Secretary of State for Work and Pensions for
    final decisions. We are committed to reporting the outcomes of the review to the
    House.

    As we set out in the House of Commons on 1 July 2025, this Government has
    listened to the concerns raised by Members from across the House about the
    proposed changes to Personal Independence Payment (PIP). Clause 5 of the
    Universal Credit and Personal Independence Payment Bill would have amended
    the legal framework underpinning PIP assessments, specifically by implementing a
    new requirement that claimants must score a minimum of four points in at least one
    daily living activity to be eligible for the daily living component of PIP.
    In light of the concerns raised, we have removed clause 5 from the Bill in
    Committee.

    Any changes to PIP eligibility will come after a comprehensive review of the benefit,
    led by Minister for Social Security and Disability Sir Stephen Timms and coproduced with disabled people, the organisations that represent them, clinicians,
    experts, MPs and other stakeholders, so a wide range of views and voices are
    heard. This review aims to ensure that the PIP assessment is fair and fit for the future.

    That is why we published the Pathways to Work Green Paper on the 18 March
    2025, setting out a wide range of proposals for reform, as part of the Plan for
    Change. We are bringing forward urgent reforms in the Universal Credit Bill, which
    rebalances the health element and standard allowance, to tackle perverse
    incentives that drive people into dependency, whilst protecting existing claimants
    and those with the most severe, lifelong conditions and at the end of life.

    We have also launched our wider review of the Personal Independence Payment
    (PIP) assessment, which aims to ensure it is fair and fit for the future in a changing
    world and helps support disabled people to achieve better health, higher living
    standards and greater independence.

    We continue to develop other proposals announced in the Green Paper, including
    our major investment in employment support for sick and disabled people and the
    right to try guarantee to give people with health conditions and disabilities the
    security to try work.

    At the heart of our reforms are the principles that those who can work should work;
    that if you need help into work the Government should support you; and that those
    who can never work should be supported to live with dignity. The changes we are
    making are designed to protect the most vulnerable, while supporting those who
    can work to do so - and to give disabled people the equal choices and chances to
    work that they are entitled to.

    Hearing from disabled people and those that represent them is very important to us.
    That is why we held a public consultation and continue to facilitate ways to involve
    disabled people in our reforms - including via our Collaboration Committees and the
    review of the PIP assessment, which will be coproduced with disabled people and
    other experts.

    Yours sincerely

    Niki Francis-Bentley
     
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      · 12 days ago
      @SLB What gaslighting BS in the government reply. Who are these people who are on the "collaboration" committees? Who picked them? Why can't we know which organisations they represent?
      We have to step up our campaigning to expose Timms for the inveterate liar which he is. Otherwise when his review proposes cuts to PIP via other means there will be less public opposition as sections of the public will be duped by the claim that Labour co produced and consulted. Timms and company really are worse than the tories in many respects. 
      Can't wait to see the new left party led by Corbyn wipe the floor with the Red tories in power. 
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      · 13 days ago
      @Gingin Absolutely Gingin it's very hard to live with this level of distress and anger. It is so bemusing that supposedly logical systems are allowed to behave so appallingly. 

      I'm glad you've been having a break I still need one from the relentlessness of it all. Have just been having a major health relapse so need to take it very easy.
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      · 14 days ago
      @SLB I needed a break after relentless campaigning but still read others’ posts here. But SLB, you’re stoking my fury again! And CaroA too! When you lay bare their (deliberate?) incompetence and lies again, and they completely ignore the points you made as if they’re of no consequence? How dare they!!!
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      · 15 days ago
      @SLB Have you reported the breaches regarding data protection to the information commissioner? 
      It will be interesting to know from the information commissioner if DWP self referred themselves as they are supposed to, otherwise it’s another law they are breaking.  Please can you ensure you inform the information commissioner and copy the responses you have received which again shows despite making them aware they chose to ignore, he has the ability to publicly admonish them, and if he doesn’t you can ask the newspapers to publish an article with the facts.

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      · 15 days ago
      @SLB Hi SLB

      Thank you for your excellent letter to the ministers — you expressed exactly what so many of us are thinking.

      The reply you received is appalling. It’s sleight of hand and business as usual — all the familiar lines about “valuing disabled people’s input” and “co-production,” but without addressing the specific issues you raised.

      If you have the energy to respond, here’s a template letter you could use or adapt:


      ---

      Dear [Minister/Department],

      Thank you for your reply to my letter of 7 July. However, your response does not address the specific issues I raised, either in terms of the procedural failings during the Pathways to Work consultation or the wider concerns about the design and credibility of the forthcoming PIP review.

      1. Procedural failings ignored in your reply:

      No acknowledgement or apology for the privacy breach that exposed participants’ names and email addresses.

      No explanation for the MS Teams log-in failures that excluded at least 12 disabled people from the 6 May consultation.

      No follow-up or acknowledgement to those excluded, despite complaints being sent.

      No explanation for sending Manchester venue details so late that many could not arrange to attend.

      No explanation for the cancellation of the only in-person consultation event in Wales.


      These failures directly excluded disabled people from participating. If disabled people cannot even access the events designed to hear their views, the process cannot be called inclusive or meaningful.

      2. Wider design and trust concerns ignored:

      No response to why major elements of the legislation were never consulted on at all.

      No explanation of how disabled people can trust the PIP review when the recent Pathways to Work consultation was described by many as “slapdash” and “unethical.”

      No defence of why Labour MPs repeatedly linked cutting PIP to people getting jobs, when PIP is not an out-of-work benefit.

      No assurance that disabled people’s contributions will genuinely shape decisions rather than be set aside after “listening” sessions.

      No acknowledgement that appointing Stephen Timms — who has previously trivialised certain daily living needs — undermines trust in the review’s leadership.

      No reassurance that decisions have not already been made before the review begins.


      Your reply instead repeated general statements about valuing disabled people’s input, the existence of “collaboration committees,” and the principle of “co-production.” These are only meaningful if the government addresses the very real procedural and trust issues that have already excluded and alienated disabled participants.

      I am therefore asking again for direct answers to the points above, and for a clear explanation of how the government will ensure the PIP review is genuinely transparent, accountable, and shaped by the voices of disabled people — not simply used to legitimise predetermined policy changes.

      Yours sincerely,
      [Name]
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    · 16 days ago
    I am Fed up with ESA to Universal Credit Migration... Transitional Protection is SHORT by £35 a week!! UC Journal Messages have told me ''You don't get the same amount'' (EH??) Another message saying contact ESA. I have called them twice... they are Useless as well.. they wont help... either fail to understand or tell me i am not on ESA anymore...contact UC!!  I now have a Welfare Benefits Adviser who agrees that i am missing £140 a Month! (That is alot of money to me) She hasn't managed to get any sense out of UC or ESA either... going to have write a letter of complaint now.... which no doubt will be ignored? They don't care!!!!!!
    • Thank you for your comment. Comments are moderated before being published.
      · 15 days ago
      @Sick & Tired Who's your MP? Write to them, and copy in DWP. Believe me, they'll move when politicians get involved.
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Sick & Tired You could try raising the issue with your MP. It is part of their job to help constituents having issues with government departments, like the DWP. Higher up more competent DWP staff typically deal with issues raised by MPs. 
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    · 17 days ago
    hello all, a question: has any of you who are currently employed gone through occupational health assessments lately?  My employer has decided that I needed one (I think due to productivity issues). Also they have a new provider - it used to be BUPA, now it's Optima Health Care.  To be honest I have been far from impressed, not least I was expecting a medical qualified adviser. In fact the lady who has done the occupational health assessment is just a Occupational Health Adviser, with no academic (medical) qualifications after her name.  I suspect she is the same type of person we are going to have to endure when we have PIP reassessments. Everything seems to be done on the cheap nowadays. Would be interested to know what others have thought of occupational health and if you know of any good companies, please let me know so that this can be fed back to my employers.
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      · 17 days ago
      @Matt Years ago I had an OH assessment because I have severe respiratory diseases and they wanted to assess whether I would be negatively impacted by any particular aspect of the job.

      We had to go to the first floor of the building where the assessment was taking place. The OH woman said 'Are you ok with stairs?'.

      I replied "Well no, obviously not (duh), we're here to minimise the impact of work on my health and vice versa and one thing that might have been a problem would have been stairs but there's a lift for work, so no problem, and there must be a lift here" (all the while wondering why we couldn't just have sat somewhere on the ground floor).

      She said "Oh yes, it's right there but I thought you might be claustrophobic".

      I wondered why she would think that, but said "No, I can, in fact, need, to use the lift".

      She said "Oh, well I'm claustrophobic so I can't use the lift"!!!

      I said "Fine, see you up there"

      So I took the lift and she took the stairs 😂
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    · 17 days ago
    This country is doomed, everyday you see more and more the poverty, deprivation, homelessness, increase in child and adult mortality and the government seem to relish in it, they seem to want the people at the bottom end of society to suffer even more than they do already, that’s not just disabled or mentally ill people, though that is a demographic they seem to really hate. 
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    · 18 days ago
    The way the main stream parties have been reacting to issues being raised by the right wing in this country is to try and out do them with equally harsh attacks on the vulnerable. From insisting there are a very tiny minority is able to work to cutting for the majority in much the same way as we are seeing over the so called immigration crisis by pointing the boats with asylum seekers as illegals (Which they are not as they would be in prisons not hotels).  They constitute around 4% of the total immigration while the other 96% legally here are made into scape goats. Sound familiar ? It should be because the very same attitudes and disinformation is created around the sick and disabled in much the same manner where the majority needing help to survive are vilified on basis of a small alleged "cheats" which they cannot prove but make allegorical references to. 
    The two main parties are competing with the right wing for misinformation rather than challenging those narratives and thereby giving all of the sense that it is a real issue and threat.
    When it comes to disability spending they say it is unsustainable and then show year on year rising costs but neglect to show the year in year tax revenues the government collect which then as a ration balanced against inflation actually are the same if not lower in percentage of spending against the national revenue.
    The main stream politicians are only too happy to rely on fake news created to cause fear rather then challenge the truth around them and thereby giving legitimacy to those on the right. This same issue now is clear about Brexit where when the right wing cried out how bad staying in the EU union was bad for us did the damage but did not take responsibility and have now moved into disability bashing as well as complaining about an invasion of the 4% arriving on dingies while the 96% legitimately here are then ostracised even though the country actually needs them.
    The main stream parties like the Conservatives and Labour are trying to fight disinformation by going along with them rather then educated and enlighten the would be voters to the real truth!
    Disability costs when compared to government revenue is not going up any more then legitimate immigration is an invasion when the percentage of asylum seekers are low really low when you consider 76% will be accepted as legitimate refugees. That leaves only 1 percent much like the low percentage of cheats in the system if that is also true. 
    It seems the issue here is a government and opposition that allows social media posting to lead policies not actual facts on the ground!
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    · 18 days ago
    Timms is a slimy toad, it's no surprise really that he's back tracking on 'promises' which was made to get the Mp's on the government's side. So we may have to roll up our sleeves and prepare for battle again........ Thanks benefits and work for providing this information, I think it's worth making our Mp's aware of this and maybe Debbie Abrahams too. 
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    · 18 days ago
    Timms is quoted in the link below regarding the pip review, saying

    "It means we are going to be taking a lead from disabled people and representatives in this work over the next year or so...I think that's a positive example that we need now to build on in taking forward this review."

    Over the next year or so? Fascinated to see how that goes, over the next year or so, as we approach the general election, four years or so away.

    https://www.google.com/url?sa=t&source=web&rct=j&opi=89978449&url=https://www.birminghammail.co.uk/news/cost-of-living/dwp-issues-major-pip-universal-32207688&ved=2ahUKEwiF8KHp8vWOAxUNXUEAHZW7OR8QxfQBKAB6BAgHEAE&usg=AOvVaw23sfNr15V9Pn4EynTf_Tkg
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    A government does not attack its own citizens en masse without consequence.

    Interesting article – Britain’s War on Disabled People
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @rookie We have got Farage to look forward to
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @HL It is interesting, and true, and written nearly 5 years ago. Unfortunately, despite all the fight back, the consequences of more than one British government's attack on the most vulnerable of its own citizens continue to be experienced by those on whom the government has turned.
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    · 19 days ago
    Sorry if I seem to be hogging the threads here!  Just read two articles in the DT.  One outlining the statistics that 600,000 Graduates now claim Universal Credit due to the fact that effectively we have too many Graduates. One of the interviewees says that the Job Centre have been of no assistance whatsoever - basically it's a five minute chat!  So where are these dedicated Disability Work Coaches going to come from?  Where are they going to find the jobs?

    The other article revolves around worried parents of those who are now being dubbed 'Generation Covid' who have practically no work experience and now find themselves up against very fierce competition even for what would be considered menial jobs, eg 500 applicants to work at McDonalds.

    And Timms thinks we can get the disabled working and off benefits!  He is very naive!
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Matt The school I attended was rubbish and like most of my peers I did not go on to higher education. But, I think good quality education is good for the individual and good for society. So am in favour of more people getting higher education in things that interest them. Regardless of it increases their future earnings. The only issue I have is the debt people end up with these days.

      UC being used as a subsidy to employment I think is a legacy of the EU. The EU in theory does not permit businesses to be subsidied by governments, but does permit employees to be subsidised through in work benefits.

      If tax breaks were used instead it could change the narrative. The right would support people getting to keep more of their earnings, and would support tax cuts for businesses. And using tax breaks instead of UC would reduce welfare spending. 
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @John Actually I do agree with the DT in this regard: too many are going to University on the mistaken belief that they will end up richer than their parents. Many won't. Admittedly, a large number probably do not look forward to the world of work either so they go to HE instead. When I attend Sheffield University ( a good Russell Group uni in the late 1980's) only about 10-15% of school leavers went onto HE. The numbers of graduates has massively devalued the worth of a degree. You need a Ph.D nowadays for a 'Graduate' Job.  Also, I do think that UC should be more tightly means tested - it may mean that the genuinely poor and disabled don't face the cuts that coming.  But until the poor and the disabled start to vote en masse this is what is going to happen. We need to act like the pensioners!
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      · 18 days ago
      @keepingitreal To a large extent this is already happening: many 'home' students are not applying for higher education, unless they are going to be admitted by the uber elite Universities (namely, Oxford, Cambridge, Imperial, LSE, UCL, Kings, London, possibly Manchester, Edinburgh and Warwick). Moreover, there is already a very steep decline in the number of foreign students applying. We will end up with a much smaller HE establishment and effectively the re-introduction of the old A level system which was pretty brutal in the days when I did them (mid 1980's).  And yes, future Governments are going to have the age old problem of youth unemployment., exacerbated by AI
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Matt I think the Daily Telegraph article is relying on its readership thinking going to University should only be for a small minority, and that Universal Credit is only for the poorest people.

      About a decade ago the target of having over 50% of people go onto higher education was met. And Universal Credit these days is not just a low income benefit. People with housing and child care costs can receive UC when they have surprisingly high incomes. And being a graduate does not give immunity to low income, unemployment, illness or disability, caring responsibilities.

      The average UK salary is about £37,000

      Universal Credit max incomes.

      Single parent (working), over 25, with one child born before April 2017, no other elements and £500 eligible housing costs. £39,500 gross income

      Couple (one working) aged over 25, with 2 children born before April 2017, no other elements and £1,000 eligible housing costs. £75,300 gross income

      Couple (one working), over 25, 4 children born before April 2017, one higher disabled child premium, one carer addition, one Limited Capability for Work Related Activity element, £700 eligible housing costs. £137,900 gross income.

      Max income figures for UC eligibility taken from housingsystems.co.uk news article published May 2025.

      According to the government the amount of money being spent on working age benefits is too high, spiralling up and unsustainable and needs to be cut. Despite spending on working age benefits being lower as a percentage of GDP than it was and now being stable and forecast to remain so.

      But, rather than cutting benefits going to people on higher than average UK salaries, the government is targeting those on UC LCWRA/health.

      The government's justification is UC health is overly generous and a perverse incentive to not work. And cutting it will not cause poverty as the people on it will get jobs. Despite those on UC LCWRA/health being those assessed as effectively not just incapable of working but also incapable of engaging in any work related activities. And knowing only 2% of those on UC LCWRA/health believe they could be working today if they had support. And knowing 75% of those on UC LCWRA/health are in material deprivation, 34% cannot afford to keep their home warm in winter, and 24% rely on food banks to not go hungry.

      I think the government just despises the poor, ill and disabled. And would rather target welfare at working families. As if welfare benefits are an incentive and employment subsidy, rather than a safety net. 
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      · 18 days ago
      @Matt No he doesn't think he can get the disabled into jobs. But he can get them off disability benefits and on to a cheaper benefit, he knows he has zero chance of getting the disabled into paid work but voluntary and lower benefit is a win/ win. Then those taking the "micky" will be punished and Labour will be seen as coming down hard and the Reform voters might also be impress . I'm not for folks walking in my shoes.... but a few month's unwell might let them know how it feels(as I'm never free of it then there getting off easy)
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    · 19 days ago
    Therefore, come May, if there are local elections in your area, VOTE! Timms will get the message then if Labour are hammered.
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Matt Everyone should sign up for postal voting it gives you time to send it off and if your unwell a family member can post it off for you."Can you imagine if everyone voted"  SURPRISE!!!!     they don't expect disabled to vote.Or was that just what Ian Duncan Smith thought. But I bet the rest won't expect it either.   It's the 1 thing they can't take away from you your Vote. Please try the pensioners don't let them off neither should you
  • Thank you for your comment. Comments are moderated before being published.
    · 19 days ago
    Another uproar like last time could well bring this government down even before a full term.
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @robbie Labour will limp on for the next four years.
  • Thank you for your comment. Comments are moderated before being published.
    · 19 days ago
    told you, pure skull duggery  will happen.
  • Thank you for your comment. Comments are moderated before being published.
    · 19 days ago
    Glad Benefits and Work picked up on Timms' comments too. DPAC Cymru had lots of interest in our press release about it and we'll be sending this B&W article to follow up with them too. Thanks for all the good info and research here. Best wishes.

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