Autism and ADHD had failed-assessment rates around three times the overall average, out of the fifty conditions with the most completed change of circumstance reviews (supersessions). But there are other conditions where the proportion of awards which are increased is well above or well below average.

Most readers will be aware that the DWP have begun extending the length of hundreds of thousands of PIP awards.  As a result, the DWP says it is expecting an increase in the number of change of circumstances notifications, because people’s awards will now last longer and a change is more likely to occur before the award is reviewed.

Fifty conditions

Bearing this in mind, Benefits and Work decided to find out what 50 primary conditions recorded by the DWP have had the most change of circumstance decisions over the last year that figures are available for.  We also wanted to find out if there was any variation in outcomes.

Over 10,000 claimants a month requested a change of circumstances review in the last year to April 2026.  Of these:

  • 5.5% failed the assessment.
  • 3.2% had their award decreased.
  • 38.6% had their award increased.
  • 49.6% had their award maintained at the same rates.

(Please note:  the figures we are using do not total 100% partly due to rounding and also because, to make the table below useable, we have not included figures for those who failed to attend their assessment or voluntarily gave up their award).

So, on average, fewer than one in ten claimants were worse-off at the end of the process, four in ten were better-off and half saw no change.

It’s important to note that these figures do not take into account any successful mandatory reconsiderations or appeals and that a small number of claimants may have been reporting a reduction in their needs.

But some conditions did not conform to these averages at all.  In particular, autism and ADHD, had very different results.

For autism: 

  • 17% failed the assessment,
  • 9.8% had their award decreased,
  • 26.8% had their award increased,
  • 42.5% stayed the same.

For ADHD: 

  • 16.3% failed the assessment,
  • 5.5% had their award decreased,
  • 28.7% had their award increased,
  • 44.9% stayed the same.

It is also apparent that the proportion of claimants who get an increase in their award varies considerably, some cancer categories, strokes, heart disease, multiple sclerosis and COPD are likely to be above average.

ADHD, anxiety, autism, learning disabilities and  depressive disorders all had a below average proportion of claimants getting an increase in their award.

We have set out the 50 conditions with the largest number of change of circumstances decisions, along with the results, below.

PIP change of circumstance clearances by main disabling condition

 

Top 50 conditions arranged alphabetically; clearance rank shows position by number of completed clearances
Clearance rankMain disabling conditionCompleted clearancesDisallowed – failed assessmentAward decreasedAward increasedAward maintained
16 ADHD / ADD 1,783 16.3% 5.5% 28.7% 44.9%
43 Ankle and foot disorders - Other / type not known 641 8.3% 3.1% 35.1% 50.2%
1 Anxiety and depressive disorders - mixed 12,376 7.3% 3.6% 31.0% 53.6%
25 Anxiety disorders - Other / type not known 1,127 7.7% 3.2% 29.6% 54.8%
49 Arthritis - Psoriatic 540 4.3% 2.0% 43.5% 48.7%
27 Asthma 972 5.1% 4.2% 35.5% 53.5%
13 Autism 2,058 17.0% 9.8% 26.8% 42.5%
14 Back pain - Non specific (mechanical) 2,053 3.8% 2.3% 31.6% 58.8%
4 Back pain - Specific - Other / type not known 4,251 3.8% 2.5% 31.4% 59.4%
17 Bipolar affective disorder (Hypomania / Mania) 1,674 7.5% 4.4% 37.3% 46.4%
26 Bowel (colon recturm anus) - cancer of 1,088 3.8% 1.5% 54.8% 38.9%
21 Breast - cancer of 1,503 6.9% 3.0% 49.2% 38.3%
39 Cancers - Other / type not known 689 4.1% 1.7% 58.3% 35.7%
31 Cardiac failure 880 2.6% 2.7% 50.7% 41.1%
10 Cerebrovascular accident (stroke) 2,224 4.5% 3.3% 51.4% 38.4%
37 Chronic fatigue syndrome (CFS) 769 8.6% 4.4% 41.2% 42.9%
5 Chronic obstructive pulmonary disease (COPD) chronic bronchitis/emphysema 4,162 3.0% 2.1% 46.9% 46.1%
6 Depressive disorder 2,741 6.6% 3.1% 29.9% 56.4%
34 Diabetes mellitus (category unknown) 819 9.3% 3.4% 40.7% 43.2%
50 Diabetes mellitus Type 1 (insulin dependent) 521 6.3% 3.3% 41.8% 43.8%
32 Diabetes mellitus Type 2 (non insulin dependent) 872 5.5% 3.3% 41.1% 47.1%
3 Fibromyalgia 7,263 4.2% 3.5% 39.6% 50.8%
41 Generalised musculoskeletal disease - Other / type not known 673 4.8% 2.8% 38.6% 49.8%
36 Hip disorders - Other / type not known 779 7.4% 3.1% 32.0% 54.0%
8 Inflammatory arthritis - Other / type not known 2,292 3.5% 2.3% 34.0% 57.3%
47 Kidney disease - Other / type not known 571 6.3% 3.2% 40.1% 46.9%
28 Knee disorders - Other / type not known 942 5.7% 3.3% 31.0% 57.5%
45 Learning disability - Other / type not known 625 6.1% 3.5% 27.8% 55.2%
40 Lower limb - Injuries/Fracture/Dislocation of 686 8.2% 3.9% 33.7% 48.8%
19 Lumbar disc lesion 1,572 2.3% 2.7% 37.5% 55.0%
29 Lumbar spondylosis (OA spine) 928 3.4% 2.2% 35.1% 57.5%
9 Lung cancers - Other 2,255 0.4% 1.1% 64.7% 33.4%
22 Multiple sclerosis 1,429 2.3% 2.1% 52.8% 40.7%
42 Musculoskeletal disease - Regional / Localised - Other / type not known 654 7.2% 3.8% 33.0% 52.4%
46 Myocardial infarction 572 7.3% 3.5% 36.7% 49.8%
24 Neurological disorders - Other / type not known 1,263 7.0% 4.4% 44.0% 41.9%
23 Neuropathies - Other / type not known including peripheral 1,275 5.4% 4.2% 37.9% 49.6%
30 Osteoarthritis of Hip 921 4.9% 3.4% 34.9% 53.3%
11 Osteoarthritis of Knee 2,086 3.7% 2.3% 34.4% 57.3%
48 Osteoarthritis of other single joint 548 4.2% 3.3% 36.5% 54.6%
44 Parkinson's disease 637 1.4% 0.9% 61.2% 33.6%
18 Personality disorder 1,648 7.0% 3.7% 36.9% 47.3%
12 Post traumatic stress disorder (PTSD) 2,070 7.5% 4.9% 33.2% 50.0%
2 Primary generalised Osteoarthritis 8,436 3.1% 2.8% 38.3% 53.6%
35 Psychotic disorders - Other / type not known 783 7.9% 2.8% 36.1% 48.1%
7 Rheumatoid arthritis 2,450 2.4% 2.2% 40.3% 52.6%
20 Schizophrenia 1,559 6.2% 3.8% 36.1% 49.5%
15 Seizures - unclassified 1,802 5.8% 2.9% 30.0% 57.3%
33 Spinal stenosis 857 3.6% 2.2% 40.1% 51.7%
38 Spine - Injuries/Fracture/Dislocation of 750 4.1% 3.1% 35.5% 54.4%

 

If you are considering notifying a change of circumstances

If you think that your needs have increased to the degree that you now qualify for a different rate of PIP, try our free PIP test to see if you now assess yourself as scoring enough points to get a higher award.

If you do, then bear in mind that the DWP may take a different view and, above all, do not think it is a foregone conclusion that they will agree that your needs have increased.  So, as always, evidence – whether it’s your own account of the effects of your condition or information from friends, relative or health professionals  – is what will make the difference.

Our Guide to PIP Claims and Reviews will take you through the change of circumstances process, including detailed guidance on how to complete the AR1 form you will be sent if you notify the DWP of a change in your condition.

If you are uncertain about whether to notify a change, try to get advice before doing so.

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  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    I'm Shaking with McFadden in charge.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @Neil(real one) I (and I should think many others with long memories) already knew to curb my enthusiasm for a Burnham government when I heard the phrase 'James Purnell for Chief Of Staff'.
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    According to Burnham he wants more mental health help and more people in work. So that might mean more people offered talking therapy and help into work instead of disability benefits. 
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      · 3 days ago
      @LardASs I have CPTSD which is partly from Childhood trauma & mostly Combat Related so I hear you Buddy & fully understand where you are coming from.  Respect my friend🫡🪂
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Bob My experience of Government 'talking therapy' services is that they waste your time and don't even explain why they were useless. Why does their time chart end at 3pm for example? I don't get up until 1pm (currently, due to severe PTSD breakdown due to managed migration). I had a period where I got up at 6am, worked out indoors, had a shower and was on the right track. Then some Gov or other scumbag had to trigger my PTSD badly again and back round we go. No support. Lots of BS from Gov and box-ticking exercises from EVERYONE. I've had to be my own Speech-and-language therapist, Physiotherapist, alcohol dependency support worker, etc. People are just lying sacks of sh-t at every turn, and NO ONE FORCES THEM TO BE. It's a deeply-ingrained CULTURE. Pushed from the top, note.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @tintack I think their assumptions are based in ignorance and bigotry and wishful thinking. Considering how often politicians including Labour ministers go on about disability and incapacity benefits being a perverse incentive to be too ill or disabled to work. And that people are being assessed as incapable of working when they could work. They appear to think mental health conditions are in effect an aberrant lifestyle choice. So think people will choose to accept help to learn to cope and get better and be well. That work will be good for them. And in the end they will thank Labour for not abandoning them to the scrap heap of a life on benefits. 
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @Bob Quite possibly, but if so, I'm not sure what they think taking someone's money away and pushing them into poverty is going to do for their mental health (or their physical health for that matter).
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    20 July, 2026

    Cabinet reshuffle: Housing and Justice Secretaries leave government, while Pat McFadden remains Work and Pensions Secretary
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    Bad news Mcfadden left as dwp secretary I fear for all sick and those like myself unable to work. 
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    So McFadden stays at the DWP. The worst news possible. It really is going to be more Starmer with a northern accent. 
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @Neil(real one)
      Damn, hit post too soon.

      That last bit should say: How much his government resembles Starmer's remains to be seen, but the early signs aren't good. Nosferatu still at the DWP, Little Miss Panopticon still at the Home OffIce and other ghouls like Cooper still in the cabinet. Streeting, who called for benefits to be cut to fund defence spending, now at defence, with Healey (who also wants more defence spending) as chancellor. With appointments like those, the safest assumption is that little if anything will change unless or until proven otherwise.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @Neil(real one) Burnham has, to put it mildly, been extremely "flexible" in his political views over the years. How much his government resembles Starmer's remains to be seen. 
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @tintack Burnham's nothing like Starmer.
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    I'm paying close attention to Labour on reddit and with Healey being appointed chancellor people are a little anxious. A commenter struck a chord with me and I thought I'd paste it here.

    "I'm not sure Burnham wants another standoff like what happened to Starmer over disability benefit cuts, he will have to package reforms as a positive, more holistic, interventionalist way and 18-25 will be targeted by the reforms, Alan Milburn's Neets review points to that direction."
    • Thank you for your comment. Comments are moderated before being published.
      · 11 days ago
      @Dave Dee He's probably right
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    · 12 days ago
    In other news former Defence Minister John Healey who quit Starmer's cabinet telling the press 'too weak to cut welfare and fund defence' has been appointed Chancellor by Burnham.

    I will also note that when Labour was opposition John Healey was a outspoken opponent of the Conservatives cutting welfare. Only to do a 180 degree shift in his policy position once Labour were in government. So to me he looks like a man with no moral compass, no integrity. And he was a staunch Starmer loyalist until he did a 180 degree and stuck the fatal knife in Starmer's back that led to Starmer's downfall. 
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    John Healey's voting summaries: 

    Click the "Welfare, Benefits and Pensions" banner.

    To me, he hasn't got solid principles. He just votes where the wind blows. I doubt if he could not wreck the good intentions of Burnham.

  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    Wonderfully unbiased reporting just now from the BBC - among other things, Burnham will have to find a way to reduce the benefits bill for working age people, apparently. Despite the fact that pensions and other pensioner benefits like the winter fuel allowance make up the biggest part of the DWP budget by some margin, and despite the fact that as a proportion of GDP, overall spending on benefits has been basically static for years and is projected to remain so for the rest of this parliament. Strangely, neither of those facts got a mention. Well done BBC - top work!
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @Matt
      "I always have a laugh at the DT comments when anything is mentioned about scrapping the triple lock etc, they"re usually spoleptic with rage"

      Yes, because they're shameless hypocrites. Benefit cuts that hurt pensioners are bad, but cuts that clobber disabled people are just fine - despite pensioners as a whole being the wealthiest demographic in the country (I know there are poor pensioners too, and they should get all the help they need) and disabled people among the very poorest. It's an acute case of selective compassion.

      We definitely need to vote en masse, but in an ageing population, pensioners make up a greater part of the electorate, so it's still an uphill struggle. I don't think pensioner benefits should be slashed or anything of the sort, but the constant targeting of the working age population for deep, savage cuts is ludicrous and, as we have already seen under the Tories, entirely counterproductive.  It doesn't get people into work and it ends up costing money rather than saving it. Oh yes, and it drives people into poverty and early graves, not that those supporting such policies seem too bothered about that.

      Unfortunately I don't see anything changing until we have a generation of pensioners who know how the system treats working age people and what the consequences of that are. There have been a number of polls showing the Greens in first place among people under 50, so that change may eventually happen, but I fear I won't be around by then if my worst fears about upcoming changes are realised.  
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @tintack Very good points, but until the sick/disabled, and young people start to vote en masse, the pensioners will continue to be protected. And for commercial reasons the right wing press will continue to support them. I always have a laugh at the DT comments when anything is mentioned about scrapping the triple lock etc, they"re usually spoleptic with rage 
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @Matt
      But it's become depressingly predictable that pundits and politicians who complain about the "ballooning welfare bill" (which isn't actually ballooning at all) run a mile from even looking at what is by far the biggest part of that bill, which indicates that they're not really that concerned about the bill at all. "But it might be unpopular if we did" isn't much of an excuse, especially bearing in mind that continually clobbering people of working age is not a sustainable option, not least because any supposed savings from cutting benefits will be vastly outweighed by the costs of the extra treatments those people will require from the NHS when they're driven into even worse poverty. It turns out poverty is really, really bad for both physical and mental health - who'd have guessed it? 

      As for having more taxpayers in jobs, fine, but you don't do that by deliberately moving the goalposts in order to pretend that seriously ill and disabled people are perfectly capable of working when they're obviously not. The Tories tried that and the result was mass poverty and an appalling number of completely unnecessary and avoidable deaths.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @tintack The points you are missing are: a, we have a rapidly ageing population who VOTE, and they have twice scuppered both Labour and the Tories with their perceived 'death and dementia ' tax: and b, if Burnham is going to spend more, then the Government will need more taxpayers in jobs like social care.
  • Thank you for your comment. Comments are moderated before being published.
    · 13 days ago
    And so Liz Kendall is no longer in cabinet. Good. This is the person who announced eligibility changes to PIP last year that would have cost many disabled people £9000 a year - and without any consultation with the disabled community, associations, charities, or individuals beforehand. The reply to my FOI request on the matter stated clearly:
    "We did not consult organisations specifically on the proposed PIP eligibility changes prior to the publication of the Green Paper, on 18 March 2025."
    In other words, keeping someone in cabinet despite screwing up in such a way just because she was an ally is exactly the kind of places where Starmer went wrong.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @tintack My nickname for McFadden is the grim reaper.

      I imagine timms will also be staying in post

      That reshuffle wasn’t even moving the deck chairs - it was swapping a few towels

      Couldn’t Burnham find anyone outside the usual suspects

      I did notice it took much longer than usual for the cabinet to get appointed (even sky news live chat pointed that out) - it would not shock me if the previous ministers were making thinks difficult for him

      As someone said on twitter burnhams appointed a cabinet full of MPs who backstabbed starmer rather than actual loyalists

      It’s also a very right leaning, old blairite crowd - can’t imagine the soft left Labour fraction would be too happy with this cabinet 

      Healey as chancellor means it’s pretty obvious welfare will be cut to fund defence (much of that money will probably end up abroad as a result) - trump will be thrilled

      It’s obvious with McFadden still in position we are looking at heavy cuts and condition tightening (probably excluding mental health & conditions like adhd and autism) so for many of us our current pip award may be our final one.

      Hope feels like straw clutching but history shows that welfare changes/reforms tend to not rope in existing claimants straight away and that what was being indicated in the initial timms review didn’t resemble anything relating to the purpose of ‘personal independence payment’ and suggests a totally new benefit would be needed to replace it (or they could just reform dla as that’s closer than pip to this new vision)

      I don’t know whether the backbenchers will rebel or not over welfare cuts attempt 2 - they will be wary about destabilising an unelected pm they helped usher in and Burnham himself knows how bad a rebellion would be to him early on - I imagine deals will need to be negotiated on well before any bill drops

      For me burnham is already on 2 strikes based on that cabinet alone - I’m not sure he knows what’s he’s doing and I get the feeling he got talked into a lot of those cabinet positions 

      I personally can’t rule out the ‘hell Mary’ option of triggering a CoC or requesting an early pip review to delay the new reform system (I’d like to think there’s a chance they wouldn’t of switched over by my mid 2028 review date like during the Tory reign, but this Labour gov rush’s idiotic decisions)
    • Thank you for your comment. Comments are moderated before being published.
      · 12 days ago
      @SLB I agree about Kendall, I'm glad to see the back of her. Unfortunately he's kept Nosferatu as Work & Pensions secretary.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    In other news the government is pressing ahead with it's reorganisation of local authorities. And the creation of unitary authorities. Which means council tax reduction schemes could radically change as they will be the same across a unitary authority.
    • Thank you for your comment. Comments are moderated before being published.
      · 14 days ago
      @Bob Yep that band c looks awfully familiar almost anyway
    • Thank you for your comment. Comments are moderated before being published.
      · 15 days ago
      @Neil (real one) Where I live it is most of South Oxfordshire District Council, Vale of White Horse District Council, West Berkshire District Council being merged together into Ridgeway Unitary Authority in April 2028. With three different council reduction schemes being replaced by one as yet unknown scheme.

      Fortunately all three existing schemes in my area provide 100% council tax reduction for the disabled on means tested benefits. So the new merged scheme will probably do likewise. Unfortunately the same cannot be said for the unemployed not deemed disabled. With support ranging from 100% reduction for South Oxfordshire District Council to on a cursory reading it looks like a max of 70% of Band C for West Berkshire District Council. So presuming my cursory look is correct that could easily be a difference between paying nothing a month in South Oxfordshire and paying band C over £60 a month, Band D over £80 a month, band E over £130 a month, band F over £180 a month in West Berkshire. That could easily force people on the West Berkshire scheme to move home, as they could be left with not have enough money to survive. Especially as housing support and mortgage interest support often fall short of actual rent or mortgage. 
    • Thank you for your comment. Comments are moderated before being published.
      · 15 days ago
      @Bob Already know what that's like, unfortunately my reduction went from 82.5% down to the new max of 50%which means my monthly bill has gone from £17 per month to approx £53 per month and Wirral borough council couldn't care less
  • Thank you for your comment. Comments are moderated before being published.
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    This article is a bit odd, as PIP is not awarded for condition.  
    I have mental health conditions logged on my claim yet I get physical health descriptors, this shows just be aware PIP is not awarded for condition but instead is awarded for needs, and that the stats per condition might not even be relevant to the type of claim.
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @CC The report is also annoying in its focus on ''work''. PIP is not an out of work benefit, in fact many folk do work and claim PIP. I think this focus on getting folk into ''work'', though that's not what PIP is intended for,  will end up being right at the forefront of the final report, I can envisage it now. 
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    In other news DWP Minister McFadden in the Guardian newspaper.

    “I don’t believe government fulfils its responsibilities simply by writing a cheque. I think we owe people more than that,”

    “Of course, for people who can never work, the system must always be there for them, and it always should be. But for those who could work, or could change their situation, then we’ve got to help them do that.”

    “Even before they’ve reported, I’m already speaking to the Department for Education [and] the Department for Health. We’re going to have to respond to this as a government."

    “It’s my job to put together a plan, a proposal, [that] changes the question of the welfare state from simply asking, ‘what benefits are you entitled to?’, to asking, ‘how can we help you live the fullest life?’”

    “This is an agenda for all seasons,” McFadden said. “Because the Labour party should always believe in opportunity and work.”

    “You have to invest in the support,” he said. “In the past, people have been signed off [on benefits] and written off. That has – as we’ve heard from this morning’s group – often led to people feeling isolated, depressed, their condition becoming worse, not better.”
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    I don't understand what Clearance Rank means
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      · 17 days ago
      @Ruby "Is it the position in the 'top 50' conditions by # of cases?" Yes

      "If so, what relevance does it have to the data?" The data is broken down by health condition. It is just another way of ordering the data. 
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Bob I'm also confused as to what 'clearance' means. Is it the position in the 'top 50' conditions by # of cases? If so, what relevance does it have to the data?
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @andygo Clearance Rank is highest to lowest number of claims cleared/assessed.
      1 Anxiety and depressive disorders - mixed 12,376 cases cleared
      2 Primary generalised Osteoarthritis 8,436 cases cleared
      3 Fibromyalgia 7,263 cases cleared
      4 Back pain - Specific - Other / type not known 4,251 cases cleared
      5 Chronic obstructive pulmonary disease (COPD) chronic bronchitis/emphysema 4,162 cases cleared   
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    I was reading that the current home secretary Shabana Mahmood is now favourite to become chancellor, that Ed Miliband has been sidestepped but it's all speculation. 

    DWP and the Treasury want to make savings, the "low hanging fruit" is "mild" depression, anxiety, adhd, autism and 18-25 year old "Neets". For me that is the direction of travel if we add up everything over the last year. 

    Remember if you're armed with evidence, be it from psychiatry, MRI scans, X-Rays, GP notes and the like there is nothing they can do, they can't go against medical orthodoxy/officialdom. 
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    · 18 days ago
    Grandson asked Social security scotland for reconsideration.  Autism. He was just 2 point short of full mobility. They too ALL mobility off him. Say there's no proof of him having these issues.. despite acknowledging hes has Autism? Gets full care though! So why was getting it at all for last 12 years..since 10yr old?  SSS are falling in line with DWP now. So much for more compassion? 
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Luluspice Ask for mandatory reconsideration and supply as much evidence as you can to support the claim for mobility. They've literally told you why it was refused, so gather evidence and appeal. SSS are more reasonable and compassionate, but they can't and won't award ADP without evidence.  Good luck.
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    I see reports in the Guardian that Burnham may appoint McFadden as Chancellor rather than Miliband. If this happen, it'll spell trouble for the sick and disabled 

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      · 18 days ago
      @Matt As McFadden is a political fixer whose job is to get MPs to agree to things they don't like. The move to me looks like wanting to get various government ministers to agree to spending plans they might not like. Rather than leaving McFadden where he is, where his job is to get MPs to agree to welfare changes they might not like. So I think it may actually be good news. Make concessions on welfare changes to get MPs to agree more likely. 
  • Thank you for your comment. Comments are moderated before being published.
    · 19 days ago
    Had royal mail pick up my change of circs AR1 UI form this morning. Previously with mecfs fibromyalgia, ehler danlos syndrome and more, all i could get was basic daily, no mobility although i should have, would have if they didn't lie so much.
    However i now have severe mecfs, severe abdominal blood pooling, POTS, OI, divarication recti, degenerative disc disease , facet arthropathy and more. Had a care needs assesment and got 15 hours carers a week. OT assesment am just awaiting the report, but they are getting me a reclining shower chair , and referring me to get an automatic unlock door system with a portable intercom/buzzer system. Key safe been fitted for carers. Hoping for enhanced both, sent the care assesment report and 2 private consultant letters. Hoping for mobility so i can get a reclining, tilt in space powered chair, as the wait to get it otherwise is quite long i would guess.

    Problem with all those conditions, the M.E amplifies everything by a massive amount and causes post exertional malaise just by sitting up, however i have yet to find a medical professional who understands it and doesn't just ignore it.
    Have a CHC assesment in 2 weeks,which is supposedly done by a multi disciplinary team , but from what i can tell they are sending a single nurse. Was hoping a CHC would understand the complex interactions from all my diagnoses , but not holding out much hope.
    Also not holding out all that much hope to get enhanced on both either.
    Good luck to anyone else who is waiting !
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      · 13 days ago
      @sara Take screenshots of all your ''own'' adaptions, aids etc in place, not from on online shop. It really helped me. The assessor actually said it made things a lot clearer, plus it saves on the blooming essays we often need to write. I was actually present in some shots, my daughters helped, it was a real struggle to do the bath lift one as I need help with none functioning legs but the assessor could see from the pics just how difficult and painful taking a simple bath really is, by showing, not only help needed but aids in place too, oh I was fully clothed lol. The bathing difficulties shown where then helpful to connect to other activities on the form. 
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      · 15 days ago
      @Jagang You are very similar to me I get standard care, they will say compression garments to stop blood pooling , stool in kitchen and shower so you are sat down and therfor heat and pooling does not make you pass out, fatique you need to pace yourself better. Its a joke tbh especially when we need carers from them so evidence is there, obviously anyone can say they need meds & aids and never use them but you would think when there own carers are witnessing it they would believe it ! Good luck though , i know they dont treat identical cases with same scores so there is always a chance you will get a good reviewer. 
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      · 18 days ago
      @Jagang Jagang 

      Our hideous nightmare is that the more ill we are the harder it is for us to muster the strength to prove it.

      All I can suggest is you concentrate on your main and verifiable conditions and relate them to how they affect you and which descriptors fit. Keep it simple and steer clear of the more sensational details because I think assessors switch off when they don't recognise symptoms.

      With the extent of care and aids you need, which you could also prove, I can't see how you wont be successful. Try to get some help from a human, too!

      Good luck xx
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      · 18 days ago
      @sara Thanks :)
      I used various devices to track my data , heart rate , oxygen etc then used AI to track the patterns/trends so i could work out myself what was going on. It all got worse after 16kg weight loss in 12 weeks on the NHS shakes program.
      I researched where my data lead me , which is basically my blood pooling in stomach which lowers BP spikes HR and other interactions , which i found out is fairly well known with my mixture of ailments. However getting a medical professional to actually agree whats going on is nigh on impossible even after paying out £1000 privately. As it covers so many specialities , and each management advised directly contraindicates another.
      So my conclusion is i have to go fully horizontal majority of the time to stabilise everything and stop the M.E crashing and making it all even worse.
      Have used the AI to help with the forms , and emails etc from social workers/OT

      Am very glad you got enhanced on both!
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      · 18 days ago
      @Jagang
      Good luck, yourself, @Jaygang. Sounds as if you're really up against it. I know what you mean about complex interactions - you can't get anyone to make the connections and put that in black and white. There seems to be no overview.

      For what it's worth, if you can do the hard graft yourself and explain how one condition affects another, then evidence your argument from reports of your various consultations, you'll have a stronger case. Join the dots from your various diagnoses and relate what you are demonstrating to the descriptors you are claiming.

      For example, in the other information section of the pip review form (on a separate piece of paper if necessary, marked with your NI no, name, date) write something like:

      'Because I have (condition/s) I am in pain (affected in some way), which contributes to my fatigue (etc) and difficulty walking/dressing/remembering things (everything affected), so I think I satisfy descriptors (fill in descriptors) ".

      In this way you can accumulate and justify the pip points you think you should be awarded.

      Build up your file each time you have a consultation and request a report/the notes there and then. You're entitled to this, there is no charge and you aren't obliged to give a reason, but it can smooth things over if you just say it helps you monitor your conditions.

      Keep a copy of what you send to dwp.

      It's a mighty task, I know, but it got me a raise to all enhanced. The analytical approach leads a decision maker directly to the correct conclusion and makes it difficult to contradict your claims.

      I hope you can find someone to help you with your review and through any reconsiderations or tribunals if needed..
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    · 19 days ago
    In other news. The cross-party Work and Pensions Committee has backed calls for the government to increase universal credit for 66 year olds to partially offset the hardship caused by raising the state pension age. 
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      · 18 days ago
      @fried breakfast The problem with returning too work for the Sick is we have large gaps in our Cvs.
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      · 18 days ago
      @Ernie @Ernie when I’m near state pension age yes but not now well I’m just waiting to see what happens with all these upcoming pip changes first before I decide anything if it gets to brutal then I may have to return to some kind of work for a while 
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      · 18 days ago
      @fried breakfast Are you leaving the Benefits system Voluntarily.
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      · 19 days ago
      @Bob @Bob i don’t think I will be seeing a work coach and doing my daily job search if I reach 66 years of age I will be taking things easy then and living the good life in a camper van I mean who would want to employ somebody that age anyway I had enough of universal credit now and having to deal with them horrible people and I at 51 
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