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Low amount of social services support
- Tracy Neil
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2 days 18 hours ago #308997 by Tracy Neil
Low amount of social services support was created by Tracy Neil
Dear Forum peeps, how would PIP interpret my situation?
Currently I get enhanced care and standard mobility. I was awarded mainly for depression and anxiety and hearing-loss. Since my award I've been diagnosed as autistic. Makes no material difference to my needs, I just have a better explanation for them. I also have since been diagnosed with hypermobile Ehlers-Danlos syndrome which means my mobility has tanked and I get tired easily.
I asked for a social services assessment last year and they royally messed up. A year of the complaints procedure and they upheld every aspect of my complaint and arranged a reassessment with a worker who knew more about autism. I am asking for help to go shopping, to appointments, organising appointments, some help finding some kind of social activity so i can connect with the local community even once a month as I'm very isolated, and some help keeping my house tidy as my executive functioning is appalling. I'm also now a fall risk, which is pertinent to the state of my house. All of which is covered by the Care Act. I've been assessed as needing 2 hours a week. So much for the Care Act looking at overall wellbeing... For contrast, my ex-partner, in a different authority, with a similar level of disability and who can drive himself to where he needs to go, gets about 10 hours a week to enable him to go to concerts and engage with local support meetings and medical appointments. I'm not asking for opinions on the postcode lottery of support (unless you want to - I know it affects people across the whole country and I am interested in hearing other people's experiences).
My concern is that being assessed for such a low rate of support in the postcode lottery of social services will put my PIP at risk. I think PIP will interpret it as me not needing the enhanced rate, because if I was 'properly' disabled I'd be assessed as needing a higher number of hours. I'm wondering if I would be able to employ the support worker myself for extra hours once social services have found a suitable agency. If I ditched social services (and their appalling financial assessment which I have been struggling for weeks to complete only to be told to go to my local library and ask for help with it!), would PIP look askance at that? Would I be better off just struggling on without such a low level of support if it's going to put my PIP at risk? Please help me straighten my thinking out on this!
I wish I'd not bothered approaching Social Services. It's caused me such distress but I do need whatever help I can get. I just don't want to risk losing my lifeline PIP (any more than we all are at risk of losing it in this terrible system).
Currently I get enhanced care and standard mobility. I was awarded mainly for depression and anxiety and hearing-loss. Since my award I've been diagnosed as autistic. Makes no material difference to my needs, I just have a better explanation for them. I also have since been diagnosed with hypermobile Ehlers-Danlos syndrome which means my mobility has tanked and I get tired easily.
I asked for a social services assessment last year and they royally messed up. A year of the complaints procedure and they upheld every aspect of my complaint and arranged a reassessment with a worker who knew more about autism. I am asking for help to go shopping, to appointments, organising appointments, some help finding some kind of social activity so i can connect with the local community even once a month as I'm very isolated, and some help keeping my house tidy as my executive functioning is appalling. I'm also now a fall risk, which is pertinent to the state of my house. All of which is covered by the Care Act. I've been assessed as needing 2 hours a week. So much for the Care Act looking at overall wellbeing... For contrast, my ex-partner, in a different authority, with a similar level of disability and who can drive himself to where he needs to go, gets about 10 hours a week to enable him to go to concerts and engage with local support meetings and medical appointments. I'm not asking for opinions on the postcode lottery of support (unless you want to - I know it affects people across the whole country and I am interested in hearing other people's experiences).
My concern is that being assessed for such a low rate of support in the postcode lottery of social services will put my PIP at risk. I think PIP will interpret it as me not needing the enhanced rate, because if I was 'properly' disabled I'd be assessed as needing a higher number of hours. I'm wondering if I would be able to employ the support worker myself for extra hours once social services have found a suitable agency. If I ditched social services (and their appalling financial assessment which I have been struggling for weeks to complete only to be told to go to my local library and ask for help with it!), would PIP look askance at that? Would I be better off just struggling on without such a low level of support if it's going to put my PIP at risk? Please help me straighten my thinking out on this!
I wish I'd not bothered approaching Social Services. It's caused me such distress but I do need whatever help I can get. I just don't want to risk losing my lifeline PIP (any more than we all are at risk of losing it in this terrible system).
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- latetrain
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8 hours 23 minutes ago #309061 by latetrain
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by latetrain on topic Low amount of social services support
Hi Tracy
You question is outside the remit of the forum, we may have members on the forum who maybe able to answer your question.
Gary
You question is outside the remit of the forum, we may have members on the forum who maybe able to answer your question.
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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- Tracy Neil
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6 hours 17 minutes ago #309074 by Tracy Neil
Replied by Tracy Neil on topic Low amount of social services support
Ok. Thank you. Yes, I would welcome others' experience if they want to share.
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