A shocking government betrayal of the parents of children with special educational needs has set alarm bells ringing that Labour may be following a similar playbook with the Timms review.  We ask, is the Timms review a con and how should claimants respond to the recent call for evidence?

SEND review

Parents of children with special educational needs are currently taking part in a major review of provision for their children, which Labour has repeatedly claimed puts parents and young people “at the heart of the process”.

But one extraordinarily important change did not feature in the current SEND consultation, which finishes at the end of May.

This is the proposal to drastically reduce access to SEND tribunals, where parents can challenge the decisions of local authorities.

What makes this especially outrageous is that a staggering 98.9% of SEND tribunals – yes, you read that right -currently find in favour of the parent.

The parents of one affected child launched a legal challenge against the failure to include tribunal changes in the consultation.  They were informed last week by government lawyers that the secretary of state had chosen not to consult on this measure, as the decision had already been made.

This, it seems, is what Labour means by putting affected people at the heart of decision making.

An organisation called Measure What Matters has written a piece for Special Needs Jungle about the consultation, which we very strongly recommend claimants read.

One of the shocking claims is that Labour are paying £90 million to a PR firm to promote their SEND reforms.

But most important of all is the process that the organisation calls “manufactured consent”:

“It is what happens when those in power do not discover public support — they construct it.

  • They select who sits at the table.
  • They define the terms of engagement.
  • They write the script.
  • They filter the evidence.
  • They close the comments.
  • They manage the narratives.
  • They discipline dissent.
  • And then, they point to the resulting silence…and call it consensus.”

Does that sound familiar to readers who have been following Labour’s attempts to reform disability benefits?

We are not going to answer the question we asked in the headline, we’re going to leave it to readers to make up their own minds whether the Timms review is a con and perhaps share their conclusions in the comments below.

What should you do?

In fact we are not going to answer this question either, it will be up to readers to decide on the best course of action for them.  But in relation to the current consultation, which we have already written about, we do have some suggestions. 

Firstly it’s worth pointing out that the DWP are calling this consultation a “call for evidence”, which is important.  Governments don’t have to consult on most changes to the law, but if they do consult they have to make the process fair or it can be challenged in court, as happened last year when Labour failed to get the Conservatives’ flawed work capability assessment consultation upheld in court.

But, as far as we can tell, a call for evidence is not covered by the same requirements as a consultation, so may be much more difficult to challenge in court while still leaving the DWP free to argue that claimants had a say in the review.

So should you take part?

Our own opinion is absolutely yes, but we know that there will be others in favour of a boycott.  It will be up to individuals to decide what is right for them.

If you do decide to respond, bear in mind that the call for evidence covers a massive number of topics in four often complex questions, almost as if it was designed to discourage participation from the outset.

So, we suggest that you decide for yourself what issues are important to you in relation to PIP reform and write about those instead.

And be warned that there seems to be a limit of 4,000 characters for each of the main boxes, equivalent to about 600-700 words.  Anyone who wants to write more than that may be able to email the review at This email address is being protected from spambots. You need JavaScript enabled to view it..

Below are a few ideas concerning what you might want to write about, you may want to make your own suggestions in the comments below.

For the “Please provide your response here” box

  • Do you think that any of the PIP activities need changing or new ones adding or do you think they should stay as they are?
  • In particular, do you think it should be made harder for people with “less severe” mental health conditions or conditions such as autism or ADHD to claim PIP?
  • Do you think that work and PIP should be linked in any way at all and, if so, how?
  • Do you think that the Timms Review should be involved with the scrapping of the WCA or should that be the subject of a separate, detailed review of its own?

You may have other issues you want too include in this box. 

For example you may have experience of the appeals system you’d like to share.

Or experience of problems contacting PIP by telephone.

You may have theories about why there has been a rise in the number of people claiming PIP.

Or you may want to set out the part you think politicians and the DWP have played in demonising PIP claimants.

Whatever it is, you can include it here.  The main thing is to make a contribution about the things you think are most important, rather than trying to answer all the highly complex questions the review panel has asked.

For the “Is there anything else you would like to tell us” box

Do you think that this Call For Evidence is a fair, easy to follow and effective way to ask claimants about their opinions?

Do you think this call for evidence covers too many topics, bearing in mind the amount of time the Timms review has to issue its final report in the Autumn?

Do you think that any specific changes to PIP that the Timms Review eventually recommends should be the subject of a full, formal consultation before any action is taken?

What happens next

We know that the consultation ends on 28 May. That is the point at which panel members will see the responses.  Though, as the consultation terms make clear, they are actually planning to feed everything to AI and let that produce a summary for panel members. (Think Amazon’s “Customers say”).

We also know that by the end of May the review members will have a maximum of 30 working days left – at 5 paid days per month with the final report due in the Autumn – to consider all the submissions and come up with their proposals.

The review committee say they will be engaging with people in many other ways in the coming months. So, it may be that a proper consultation on specific proposals is still on the cards.

But it seems very unlikely.

The call for evidence submissions won’t be available until the end of May.  If the Timms panel spend just 10 working days considering them and coming up with their own proposals for changes to PIP, taking into account all the new evidence, that would take us to the end of July.

If they then launched a consultation on their own proposals, that would need to last a minimum of 12 weeks to avoid falling foul of the courts. 

Which would then give them a maximum of 5 working days to review all the feedback and adjust their proposals accordingly.

That hardly seems possible.

The truth is that the more the Timms review progresses, the harder it is to take it at face value.

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  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    Not the Timms review but a report meant to help inform it. 

    The "independent" review into mental health conditions and ADHD and Autism interim report is out.

    https://www.gov.uk/government/publications/independent-review-into-mental-health-conditions-adhd-and-autism-interim-report

    Some snippets from the interim report. Note my choice of snips might not give a very fair impression of the report. It is over 80 pages long.

    "current patterns are shaped as much by the design of systems as by underlying need, including the incentives those systems create and the increasing tendency to medicalise forms of distress that may have broader social or developmental roots."

    "What is clear is that services are under significant and sustained pressure, and that the status quo is unlikely to be sustainable or fair in its present form."

    "A central question for the Review is whether rising presentations to services reflect a real increase in psychological distress within the population, or whether they arise primarily from changes in awareness, recognition, diagnosis and service use."

    "Historical analyses show that behaviours in children once regarded as" within the range of normal variation, or even as something to be welcomed in some contexts, are now more often interpreted as requiring intervention or treatment."

    " There is also concern that certain platforms, including TikTok, convey a high proportion of factually inaccurate messages around for example ADHD"

    "There is also a need to consider the medicalisation of distress within current systems of response. While clinical frameworks are essential for identifying and treating many conditions, there is a risk that a wide range of difficulties - particularly those arising from social, educational or environmental pressures - may increasingly be interpreted primarily through a medical lens.This can lead to pathways in which diagnosis becomes the main route to support, even where alternative responses may be more appropriate. It can also lead to inappropriate treatment – loneliness for example is unlikely to respond to antidepressants. A more effective approach may therefore require ensuring that people are directed to the form of support that best matches their needs, which in some cases will be clinical, but in others may be educational, social or community-based."

    "In many cases, earlier practical, educational or community-based support may offer more effective and less disruptive responses than prolonged waits for specialist assessment alone. The aim is therefore not to narrow access, but to broaden the ways in which help can be offered, so that individuals and families are able to receive support earlier and in forms that are better matched to their circumstances. In practice this may mean expanding earlier forms of support whileensuring that specialist services remain available for those whose needs require them."

    "The aim is not only to improve outcomes for individuals and families but also to ensure that public resources are used more effectively"
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    There is a long article on the BBC news regarding the almost complete transfer of people to Universal Credit. It describes Duncan-Smith's visit to Easter house in Glasgow in 2002, and from that the challenges for the future of working age welfare. It does not bode well for the disabled. Articles like the one above never mention the cost of the state pension which will have to be reformed due to numbers and a declining birth rate. Not sure how employers are going to feel with more staff over 65 years of age. I suspect life expectancy to start to decline in the next decade.
  • Thank you for your comment. Comments are moderated before being published.
    · 13 days ago
    I will tell you all what this is.
    I have recently had call to contact Sir Stephen Timms on a matter of disability related business as I am disabled myself.
    He will not even bother to reply to me.  He contacted me when I contacted him at the House of Commons and he asked me to resend the email to him at his DWP email address.  I subsequently did and I have received no reply whatsoever.  That was three months ago.
    If he will not respond to an ordinary disabled person at all, I consider that this review is just going to be the usual lip service and nothing else.  
    He obviously considers us to be beneath him.  
    I have no faith in him at all.

  • Thank you for your comment. Comments are moderated before being published.
    · 14 days ago
    That responses are anonymous means bots can swamp the responses and claim to be from disabled people, carers, workers, experts, whatever they want. And the DWP AI analysis and summary will report what the bots have flooded the responses with. So I fear this call for evidence will just amplify right wing bots. 
  • Thank you for your comment. Comments are moderated before being published.
    · 14 days ago
    These call for evidence questions should never have been released to the public. They may be questions to which the review panel requires answers, but different, more specific consultation questions should have been compiled so as to help reach those answers.
  • Thank you for your comment. Comments are moderated before being published.
    · 14 days ago
    Maybe we could devise answers to the survey which would register in the way we want with AI? 

    @Aw could be on to something with mentioning key words.
  • Thank you for your comment. Comments are moderated before being published.
    · 14 days ago
    I don'f see why there is a separate 'easy read' questionnaire. There should be one version, which is easy to read.

    Also, whilst linking pip to work is problematic and inappropriate in any case, it is entirely irrelevant to pension age claimants, whose interests are unaddressed.



  • Thank you for your comment. Comments are moderated before being published.
    · 15 days ago
    "The Department for Work and Pensions (DWP) has admitted that it won’t even read the responses to the Timms PIP review"!!

    This so-called consultation seems to be nothing but lip service.

    Stephen Timms has nothing to with the Stephen that's described in the Bible as a man of God.

  • Thank you for your comment. Comments are moderated before being published.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    Yes a big con and we should not stand for it me and my wife r disabled and we have to fight for pip every time even with long term health problems and we will never get better and that keep attacking disabled people should be on the news and newspapers 
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      · 15 days ago
      @Wayne Wayne we could have too see work coaches eventually the way it's looking.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    I'd like to tell them how I feel about PIP but I have a learning disability so I don't understand the questions. There was an easy read one so I looked at that but do they ask the same questions in the easy read but ask them in a simple way or are they different questions in the easy read? I tried looking at the other one first but I couldn't understand any of the questions so that's why I looked at the easy read one instead 
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @J I just ignored the questions and wrote what I felt
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    I agree with some of things that Aw has mentioned.
  • Thank you for your comment. Comments are moderated before being published.
    · 17 days ago
    Everyone should mention the words "destitute" and "suic1de" several times. If the AI doesn't pick that up we will know even that is a manipulated sham. For myself, I've spent too many of the last 17 years worrying about losing everything, it's badly affected my MH and made me feel like they don't want to listen to the truth anyway. I gave up trying to save myself with them a long time ago. I get up every morning and try to make the best of my day, until they decide I can't. That's all I've got now, I'm exhausted.
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    If only this stupid government put the same energy into economic growth as they do welfare we might be better off. Every day we read of businesses going into administration involving thousands of job losses adding in turn to the ever expanding welfare bill. And of course the TIMMS review is a con just like any other. “We want to encourage people into work. What work! “
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @David I think their is alot of care work and support work available but it's not for everyone.
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    I wonder if this is more to get evidence on what to take off the form of PIP and how to get less people on it instead of what they're saying. Looking at how to find even more loops to avoid supporting people financially while Timm and his colleagues continue to claim unnecessary expenses and MP's salaries that are not means tested or we continue to pay for the champagne budget for the house of Lords or Cameron's £2 million private jet for "work travel". Sortitions end of. Reform of work conditions. Reform of health services. End of paying people to sit pretty. And yes we all contribute towards these expenses as everyone who lives in the UK and visits pay VAT including people on benefits. Don't believe that false division between tax payers and people on benefits. The only ones who don't pay taxes as they should are MP's and politicians like Farage and Badenoch even Starmer who go on about tax payers and benefits claimants. This review is incredibly sexist now people are panicking that women with autism and adhd are being correctly diagnosed finally after many decades of evidence pointing at that fact because women are meant to support people and not to ask for help. It's outrageous.
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    I think the backdown on changes to the benefit system under Liz Kendal, is a temporary victory, the current minister will be back to revisit changes to save money for other Government spending, especially the defence budget. 
    I raised this with my MP, and pointed out, at the time proposed, changes were made to help people into work, that people who were retired and on state pension would be affected and lose benefits as well, without the option or opportunity to return to the workforce. 
    In my opinion, all the changes to benefits, since the banking crisis of 2008, are to plug the gap in Government, finances, universal credit is a good example. I was on long term incapacity benefit, and due to migration, on to universal credit, I lost out  on around 55K to 60K from May 2019 till reaching my retirement pension earlier this year. And the recent back down is only temporary, and no doubt Pat McFadden, will come forward with new plans to modernise the welfare system, which will reduce payments to claimants. Also the freezing of tax allowances, will bring more people paying tax on their pensions, I will come into this category, from April.
    I remember when my late mother, received a tax demand in 2016, based her on second state pension,  which was based on my later fathers work history, what it basically meant was that, after 10 years my later fathers was paying tax, for all he was dead? 
    And with the current uncertainty due to the Middle East crisis I think more is to come to changes to benefits, when most political parties are singing from the same hymn, sheet, I am a member of the Labour Party, and disgusted at the current Government’s inability to tell the truth about the threat to the welfare state and reform the taxation system so the wealthy pay their fair share of taxes. 
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    · 18 days ago
    In this age of dishonesty by politicians, especially in the main political parties like Labour, the Tories, and Reform, I am not surprised by how they go on the attack on the most vulnerable in society. It feels they almost delight in behaving deceptively and inventing double-speak ways of doing so!
  • Thank you for your comment. Comments are moderated before being published.
    · 18 days ago
    It's a con full stop.
    Expect more of these propaganda type headlines.
    Please notice it says near to work not in work.


    Tens of thousands of sick and disabled people nearer to work with Government support

    https://www.gov.uk/government/news/tens-of-thousands-of-sick-and-disabled-people-nearer-to-work-with-government-support

    Link not been added on original post ?
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @CaroA I'd like for there to be up votes, but down votes allowed only with an explanation.
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @jossmer I emailed Benefits and Work about this and they came back and said that people were becoming too upset about the down votes and there is no choice to change this but to remove both up and down votes 👎 👍 so this is what has happened.  Sad as I think the site is less engaging without them.....

      I hope I am representing what they said it would be nice if something could be said to us all about it.
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Chazy I was also wondering  where the up/down vote went also.
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @John Where did the upvotes go ? Did I miss something 🤷🏼‍♀️
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Harry28 Yeah the government always uses the success rate achieved with people who want and feel able to work who ask for help to get a job to the success rate of those who do not ask for help to get a job. And conclude the issue is people not asking for help to get a job. Rather than not being able to work.

      It strikes me as a long the lines of we have compared the death rates of people at home vs people in hospitals and concluded we need to send hospital inpatients home as they will be more likely to survive. Especially those on intensive care wards. Think of the lives that will be saved. Not to mention the money that will be saved. 
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    · 19 days ago
    Please find below a short generic response to the PIP consultation which I have produced. If anyone finds any part of it useful feel free to use it. 

    Response to the Timms Review of Personal Independence Payment (PIP) Call for Evidence

    Question 1: What is the role and purpose of PIP, and how does this relate to other benefits and support for disabled people?

    PIP’s legal purpose is to mitigate the extra costs of living with a disability. Established under the Welfare Reform Act 2012, it was never designed as an out-of-work benefit. Disability costs are soaring, averaging £1,224 monthly (Scope, 2024), covering vital needs like mobility aids and paid care.

    The consultation’s framing regarding "meaningful activity, including employment" is deeply alarming. Attempting to backdoor a link between PIP and work is a dangerous ideological shift. For many with severe, energy-limiting conditions like ME/CFS, employment is biologically impossible. Studies show ME/CFS patients suffer profound functional impairment, scoring lower in health-related quality of life than MS or cancer patients. Pushing severely ill people toward employment via PIP will directly cause physical harm, severe relapses, and further loss of function. PIP must remain an extra-costs benefit, entirely decoupled from work capability.

    Question 2: Does the PIP assessment, including the assessment criteria, effectively capture the impact of long-term health conditions and disability in the modern world, and provide fair access to the right support at the right level across the benefits system?

    The current criteria categorically fail to capture fluctuating and energy-limiting conditions, failing to provide fair access. The framework is biased toward static, physical disabilities. Its fundamental flaw is failing to account for the true cost of exertion. Assessors routinely ignore whether an activity can be done "repeatedly" and "safely." A claimant might complete a task once, but doing so may trigger severe post-exertional symptom exacerbation, incapacitating them for days.

    The high rate of PIP decisions overturned at tribunal (consistently 65-67%) is a damning indictment of the assessment's inaccuracy. The initial assessment acts as a rigid box-ticking exercise ignoring clinical evidence. To ensure fair access, the assessment must abandon single-day "snapshots," explicitly embed post-exertional symptom exacerbation into guidance, and give significantly more weight to written medical evidence from a claimant’s specialists rather than relying on brief interviews by non-specialists.

    Question 3: What is the experience of people claiming PIP and does this vary for different groups of people?

    The experience of claiming PIP is overwhelmingly negative, highly stressful, and profoundly traumatizing. For many disabled people, the process itself is a health hazard. A recent Journal of Social Policy analysis found PIP assessments are "severely re-traumatising," identifying key themes of harm, distrust, rigidity, intimidation, and powerlessness.

    The immense cognitive and physical exertion required to complete lengthy forms, gather medical evidence, and endure a high-pressure interview often triggers severe symptom flare-ups. Claimants are forced to push beyond their physical limits just to prove they are ill. Furthermore, a pervasive culture of disbelief means claimants are routinely treated with suspicion. Assessors frequently omit crucial information about pain and fatigue, leading to unjust denials of support. The current system is fundamentally not trauma-informed; its adversarial nature actively exacerbates the conditions it is meant to support.

    Question 4: How have changes in wider society and the workplace since PIP was introduced in 2013 affected the experiences of disabled people and people with health conditions?

    The consultation's focus on "changes in the workplace" is highly inappropriate. While remote work has become more common for healthy people, these changes do not magically cure severe disabilities or chronic illnesses. For a person suffering from profound fatigue, chronic pain, or severe cognitive dysfunction, working from home is just as impossible as working in an office. The biological reality of severe illness remains unchanged since 2013.

    There appears to be a dangerous policy trajectory aimed at using PIP to offset the planned abolition of the Work Capability Assessment. Linking PIP to work will inevitably coerce disabled people into unsuitable employment under the threat of losing their vital financial lifeline. For many, forced exertion leads to permanent physical deterioration. PIP must be redesigned in co-production with disabled people to become a compassionate, trauma-informed system. It must absolutely not be weaponized as a tool for welfare reduction or forced labor participation.

    Additional Comments: Is there anything else you would like to tell us?

    I must place on record my profound concern regarding the design and framing of this Call for Evidence. The consultation is so appallingly designed, and the questions so ill-defined and leading, that it is fundamentally not fit for purpose.

    The questions asked are extraordinarily complex and multi-layered, making it utterly impossible for the DWP to analyze the responses in any meaningful or quantifiable way. For instance, asking respondents to analyze the historical changes in wider society and the workplace since 2013 within the same breath as assessing PIP's future needs is an absurd conflation of issues.

    Furthermore, the explicit linking of PIP to employment within the consultation's framing betrays a clear ideological bias that pre-determines the outcome of the review. Because this consultation fails as a neutral tool for gathering evidence, any policy decisions or legislative changes based upon its findings will be highly questionable. I submit that this consultation is so unfit for purpose that any decisions based on it may be open to legal challenge.

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      · 4 days ago
      @LeeLawson Should send this to the papers not local ones but the hig ones like the telegraph mirror etc see if tgey will publish it also send a copy to GMB see if miss Reed will red it out or parts of it 
    • Thank you for your comment. Comments are moderated before being published.
      · 13 days ago
      @LeeLawson Brilliant!
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Annie You're very welcome. We need as many people as possible to make submissions to the consultation.
    • Thank you for your comment. Comments are moderated before being published.
      · 17 days ago
      @Inscape You're very welcome. 
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @LeeLawson Thank you for writing this Lee. And thank you for saying we can borrow parts of it if needed. It has been very well written and you have captured a lot of the problems with the Pip system.  As well as explaining solutions to these problems very well
  • Thank you for your comment. Comments are moderated before being published.
    · 19 days ago
    So it seems those of us who aren't on Lwcra could be at the mercy of work coaches after the Timms review.
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Cookie Cookie I think the majority of lcwra could be at mercy of work coaches I think only severely disabled with be left alone they gave a figure of 200000 with life limiting conditions Will be left alone so where does it leave everyone else that's definitely got me thinking 
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      · 19 days ago
      @Cookie The plan is in 2028/2029 to abolish the WCA and with it LCW and LCWRA status. And have PIP daily living component give eligibility to UC health. With those on UC health (with some exceptions) required to engage in periodic support conversations (it is unknown how frequently but it could just be once every so many years or each time PIP re-awarded). The support conversations will be to discuss aspirations to work and be offered advice and help towards achieving those aspirations. With no requirement to take up the advice or help offered. The conditionality for this group will be reviewed in future if too few take up the advice and help and move towards and into work. 
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