The interim report from the Milburn review into young people and work has slammed what the author regards as the failure to link personal independence payment (PIP) to work or to functional improvements.  Milburn also claims the benefits system offers perverse incentives to avoid work and that too much money is spent on benefits and not enough on supporting young claimants into work.

The Young people and work: interim report published last week is  the “discovery phase” of the review, which looks at the problems that Milburn considers young people face. The “solution phase” of the review will be come out in the Autumn, at a similar time to the Timms review, and will set out how Milburn thinks these problems can be solved.

Amongst the many welfare-related issues the report claims young people aged 16-24 face are:

  • PIP claimants are not asked about work.
  • PIP doesn’t aim to improve employment prospects or functional capacity.
  • There is no monitoring of PIP outcomes.
  • Too much money is spent on benefits and not enough is spent on employment support
  • There are not enough requirements attached to PIP or the limited capability for work-related activity (LCWRA) group in universal credit (UC).
  • There are too few UC reassessments.
  • There are not enough face-to-face assessments for PIP and UC.
  • UC offers a perverse incentive to avoid seeking work.
  • Too few claimants in the LCWRA group ever move into work.
  • Autism, ADHD, anxiety and depression fluctuate and should not automatically trigger a verdict of unable to work.

We have extracted some of the major themes from chapter six of the report “A welfare state not designed for participation” below.

PIP claimants are not asked about, or supported to, work

Milburn criticises the fact that “At no point in a young person’s application or journey on PIP are they asked about, or supported to, work. This is not an accident of delivery. It is how PIP is designed.”

Until now, PIP has been seen as a benefit to help with the additional costs of disability rather than as a tool to help people move into work.  Milburn’s criticism seeks to fundamentally redefine the purpose of PIP, at least for younger claimants.

PIP doesn’t aim to improve functional capacity or labour market participation

Milburn argues that “The way PIP works means that the considerable and growing resources devoted to it are not targeted on helping improve the functional capacity of disabled young people, and thereby enhancing their labour market or wider participation prospects.” 

He complains that there is “no consistent provision of practical support” with issues like:

“daily living,

occupational therapy,

vocational rehabilitation,

mental health social work,

specialised coaching,

workplace assistance or

links to the networks that would enable participation.”

Again, targeting PIP on improving functional capacity and labour market participation would be a major change in the role of the benefit.  It is not clear whether this support would be provided in addition to  PIP – which would increase costs to the state -or whether Milburn has in mind replacing some of the cash value of PIP with services instead

There is no monitoring of PIP outcomes

Milburn says that “as PIP is not designed to consider participation outcomes, the participation status of claimants is not routinely captured, monitored or published.”  Milburn’s own analysis suggests that “The employment prospects of a young person claiming PIP get 21% worse over six years, whereas for everyone else they get 31% better.”

However, until now PIP outcomes have not been monitored because the only outcome expected was that it would help deal with the additional costs of disability.

Poor return on investment

Milburn complains that “The state spends approximately £8 billion a year on PIP and Universal Credit for young people. For that investment, claimants are getting worse outcomes with every passing year.”

The concept of PIP as an investment for which there should be a return, either for the individual or for the state, is one that Milburn revisits throughout his examination of welfare benefits for young people.

There are not enough “requirements” attached to PIP and UC health

Milburn complains that when you include PIP, “less than half of spending for young people across disability, incapacity and unemployment support has any participation support or requirements attached to it.  Over time, that situation has become worse not better.”

Introducing “requirements” for PIP or LCWRA would be a major change to the way UC health and PIP currently work. If requirements were attached to PIP, it would also raise the question of how those requirements would be enforced, something Milburn may need to address in the solution phase of his report. 

Autism, ADHD, anxiety and depression fluctuate and should not automatically trigger a verdict of unable to work

The report claims “Today, nearly half of PIP claims among young people are for Autism and ADHD, compared to less than one in ten for all PIP claimants… The combined share of anxiety or depression, autism and ADHD reported as the primary condition for 16 to 24-year-olds claiming PIP has risen from 49% in January 2020 to 64% by January 2026”

The report goes on to insist that “These conditions often fluctuate. Research has consistently shown that even severe mental illness is not always a lifelong or even chronic condition. Many people with severe mental illness have a reduction of both symptoms and associated secondary impairments over time, with a range of interventions, including supported employment, being effective in supporting recovery.  A young person with anxiety or depression may be unable to attend an interview on Tuesday and be capable of working on Thursday. ADHD does not present the same way every day. Autistic young people can thrive in the right environment and collapse in the wrong one.”

At the moment, the world of work is not designed for people whose conditions are as unpredictable as Milburn suggests here. This is much more an issue about employment rights – and the lack of supported employment - rather than benefits.  It seems unlikely that reducing claimants’ benefits, or their protection from loss of those benefits, without first dramatically altering employment laws, would be in the interest of young claimants. But that seems to be what Milburn goes on to advocate when he argues that:

 “a diagnosis of a neurodevelopmental condition or anxiety and depression should not automatically trigger a verdict that a young person is unable to work. These are not conditions that lend themselves to a binary judgement of able to, or not able to, undertake certain activities.”

This is aside from the fact that the claim that such conditions “automatically trigger a verdict that a young person is unable to work” is entirely inaccurate.

Too few in LCWRA group move into work

The report highlights that “Movement into work collapses for those on the UC Health Journey. For young people who are in the LCWRA group, only 1 in 100 move into work each month, compared to around 1 in 10 for those in the intensive work search group.”

Many readers would argue that comparing the work outcomes of these two groups is in itself a pointless exercise:  one group have been found unable to work, the other have not.

Fit notes fail to encourage participation

Milburn believes that fit notes “fail to encourage participation”.  The report claims that “93% of fit notes reported individuals were not fit for work; very few identify the barriers that need removing to enable people to participate in the labour market or other opportunities to learn or train.”

Previous  attempts to get GPs to include suggestions for reasonable adjustments on fit notes appear to have failed dismally. 

But with the DWP currently trialling schemes in which GPs do not issue fit notes at all, but refer claimants directly to agencies employing unqualifiued work and health coaches, the solution to this concern may already be on the horizon. 

Not enough engagement with work coaches before WCA

The report argues that “A key opportunity to engage young people before they become long-term inactive is when they have identified themselves as having a health condition and are waiting for a Work Capability Assessment.” 

Many wait three months for an assessment but receive only the equivalent of 1 to 2 minutes of work coach time a month, Milburn says.

As above, referring under 25s directly to agencies employing work and health coaches and requiring regular engagement prior to a WCA would deal with this issue.  

However, it should be noted that this is when young people would be most at risk of serious harm from medically unqualified coaches, who may require them to do things that a subsequent WCA would find that they are unable to do safely.

Reassessments are too infrequent

The report complains that not only does the WCA “effectively treats current incapacity as static in a way that does not match the reality of many young people’s fluctuating or changing conditions” but that “Worse still, processes to reassess claimants’ conditions have been progressively weakened since the pandemic.”

Milburn argues that reassessments used to account for a third of all those moving off health benefits but, following Covid there is now a 2 million backlog.

There is unquestionably an issue with a failure to reassess claimants whose conditions have deteriorated, but for those whose conditions are unlikely to alter, they are a source of needless distress.  However, the decision by the DWP not to apply the new PIP extension regime to under 25s suggests the DWP agree with Milburn, that young people should be subject to a different benefits assessment regime.

Too few face-to-face assessments

The report also notes the decline in the proportion of face-to-face assessments which they authors say “produces different and generally tighter outcomes than remote assessment”.  It argues that the reduction has led to “a weakening of the system’s ability to understand the young people it is supposed to serve and to enable them into work”

The DWP have already announced targets to increase the proportion of face-to-face assessments for both PIP and the WCA.

Not enough conditionality

Milburn seems to be unhappy about the lack of conditionality for claimants with LCWRA.  The report comments, without apparent disapproval, on the job seeking regime for young people found fit for work and the fact that “If they miss this appointment, they can be sanctioned up to 100% of their benefit payment.” 

He contrasts this with the LCWRA regime where “many young people on the health journey have no regular, personalised engagement.”

We will have to wait for Milburn’s final report to see how he proposes to tackle this issue.

UC offers a perverse incentive to avoid seeking work

Milburn claims that additional support in UC for claimants with more serious conditions is structured  “in ways that can drive young people into passive inactivity rather than into them actively seeking work.”

He goes on to argue that “For a young person with a health condition who is unemployed and potentially seeking work, taking a pathway to inactivity can offer higher income, less hassle and lower risk. This is a perverse incentive that is the polar opposite of what a participation-first welfare system should be providing.”

As we will see below, the term “perverse incentive” is one also favoured by Rachel Reeves when justifying cuts to benefits.

Too much is spent on benefits and not enough on employment support

The report states “Benefit spend on young people for PIP alone is expected to rise to £6.5 billion by 2031/32. If spend on DWP employment support remains at the levels currently being funded through the Youth Guarantee, we estimate that by 2030/31, for every £1 that DWP spend on employment support for young people, around £10 will be spent on welfare support for young people. This is not a spread of investment that prioritises participation. It is an investment choice that prioritises income transfers.”

Because this is the “discovery phase” Milburn does not set out how he would rebalance this “spread of investment”.

But the language he uses very closely echoes the justification for cuts to UC health payments for new claimants introduced in April, where some of the money saved is being invested in employment programmes instead.

This is from the 6 April 2026 DWP press release when the UC cuts came into force:

“Incentives that discourage work and trap people on benefits to be removed via legislation coming into force today… Comes alongside employment support package of £3.5 billion… tackling perverse incentives by introducing a lower Universal Credit health element… Anyone affected by the changes to Universal Credit will be entitled to voluntary employment support,” 

Young people should not be treated in the same way as older workers

Milburn argues that young people should not be treated the same as older workers:

“An older worker who develops a disability in mid-career has decades of experience behind them. Established habits, routines, professional identity, financial reserves and networks. Their relationship with the labour market is disrupted but not absent. Income replacement during a period of ill health is appropriate and proportionate. The system was designed for this person.”

 But young people, Milburn says, have none of these advantages: “They are not returning to something. They are trying to reach something for the first time. The critical need is support to make the first transition into work. Yet the system makes no such distinction.”

We suspect that many older workers, after decades of low paid, insecure, work would be surprised to learn that they have financial reserves and networks to fall back on. But Milburn is clearly making a justification here for offering different, and potentially less generous or more onerous, welfare terms to young disabled people

No encouragement of part-time work

There are some positive findings in the report.  Milburn argues that “While the system permits part time work, it does not provide effective encouragement of it. For a young person who has never worked, who has spent months at home, who is managing anxiety that makes leaving the house difficult, the idea of moving straight from inactivity to a full-time job is terrifying. What they need is an intermediate step. A few hours volunteering. A supported work taster.”

Few readers would disagree with this.

Right to try not enough

Milburn also says that while the Right to Try is a positive step, it is “not a full guarantee that a claimant’s wider position cannot be revisited if other evidence suggests a relevant change in circumstances.”

Again, whilst many may not consider that the Right to Try even constitutes step in the right direction, few would argue that it stops very far short of a full guarantee. Much more needs doing in this regard.

Few grounds for optimism

Milburn says that the state must provide a financial safety net for people with disabilities “who may have extra costs or never be able to work”.

And he has won widespread praise for not supporting the tabloid obsession with blaming young people themselves for their health conditions or levels of unemployment.

Many commentators have taken this lack of blame as evidence that Milburn has no intention of recommending harsh changes to welfare benefits for under 25s.  We hope that they are right, but the contents of chapter six of the interim report give few grounds for optimism.

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  • Thank you for your comment. Comments are moderated before being published.
    · 5 days ago
    Autism doesnt fluctuate. That's erroneous. It's a neurotype. Part of the brain's wiring...
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      · 5 days ago
      @Asbo Makes my blood boil, the way they treat autism, Autism is a neuro developmental disorder, they are born with it and will die with it, it's not a mental health problem, for godsake.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    My main question is how many people are going to be harmed by the inevitable experimentation around changing the rules for young people with disabilities? Simply stating that fewer young people in the LCWRA group move into work than those not in that group misses the point entirely. As does complaining that PIP doesn't get people into work. They are findings from a flawed investigation that fails to understand the purpose of the system it investigates. Another sign that our welfare and even our lives are in the hands of people who have no understanding of the lives of the people whose futures they are deciding. And no understanding of the support network that should be provided. 
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    Ending state provision of all forms of social security opens up a multi-£Bn private market, plenty of gravy for everyone involved, politicians, corporations & the media too. That's all this is about; greed.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    The Milburn interim report raises important questions, but its framing of PIP and UC health benefits for young people is deeply concerning. The report repeatedly treats disability benefits as failed labour‑market tools rather than what Parliament actually legislated them to be: financial support to offset the additional costs of disability.

    Milburn states that “At no point in a young person’s application or journey on PIP are they asked about, or supported to, work.” That is not an accident — it is the statutory design. PIP is not, and has never been, a work‑activation programme. Recasting it as such would represent a fundamental repurposing of the benefit without any democratic mandate.

    The report also suggests that autism, ADHD, anxiety and depression “fluctuate” and therefore should not “automatically trigger a verdict that a young person is unable to work.” This is a straw man. These conditions do not automatically trigger such outcomes, and the WCA already assesses functional impact, not diagnosis. The implication that young people are being waved through into LCWRA is simply unsupported by evidence.

    Milburn’s repeated references to “perverse incentives” and “return on investment” are equally troubling. Disabled young people are not investment vehicles. They are citizens with rights, including the right to social security that is not contingent on forced participation or the threat of sanctions.

    The push for more conditionality, more reassessments, more face‑to‑face assessments, and more engagement with medically unqualified work coaches risks creating a system that is more punitive than supportive. The report acknowledges the risk of harm, yet still advocates expanding these approaches.

    There are constructive points — particularly around enabling part‑time work, supported tasters, and improving the Right to Try. But these are overshadowed by proposals that would effectively create a harsher, separate welfare regime for under‑25s, based on the assumption that young disabled people lack the “financial reserves” and “networks” of older workers. Many older workers would dispute that characterisation, and it is unclear why it justifies reducing protections for younger claimants.

    Overall, the interim report reads less like a discovery exercise and more like a pre‑justification for tightening entitlements. Until employment rights, workplace adjustments, and supported employment are meaningfully strengthened, shifting responsibility onto young disabled people is neither fair nor safe.
    • Thank you for your comment. Comments are moderated before being published.
      · 5 days ago
      @gste816352 Giving a list of conditions that "should not automatically trigger a verdict that a young person is unable to work.” Sounds to me likely to be advocating for the same thing as the Blair Institute report "An Emergency Handbrake for UK Welfare: Stabilising Spending, Supporting People". The Blair Institute report advocated for having a list of "non-work-limiting conditions" that trigger a rebuttable presumption of being work capable. For the purposes of assessment, claimants with that condition would be legally presumed to possess the typical, uncomplicated presentation unless they could provide evidence to the contrary (a formal occupational-health assessment) or had another diagnosed condition that could explain their functional impairment.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    Does Milburn believe that people intentionally receive a Severe Mental Illness diagnosis of Paranoid Schizophrenia for perverse reasons? To claim benefits? Absolutely disgusting presumption from him. Diagnosed aged 22. 30 years of Hell, suffering and hatred.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    I originally applied for PIP as a way of obtaining a blue badge as I was increasingly immobile an needed to park nearer to do my job. Access to work were helpful in those day as they assessed my needs and ensure the equipment was provided. I had motor and sensory deficits and had periods of temporary blindness (less than 6/60 vision). In those days the process was helpful and the initial PIP assessor visited me at home where he could see how I coped in my own environment. Over the years the process of PIP has become more adversial and more bureaucratic . Applying for PIp has become an industry with both side adjusting their tactics for maximum perceived benefit. As I became more disabled I felt more isolated and marginalised at work to such an extent that I left in my late sixties. I think that if this government is truly trying to help the disabled, the present PIp system is flawed as it uses one assessment for physical and non physical disability which is not appropriate. Access to work is no longer fit for purpose and that the inequities exists in most work place is probably the worst in the civil service. The main advice I was given over the years was to take early retirement an trying to make my job less desirable because I was a ‘risk’ in some of the activities I was doing . Luckily the Occupational Health disagreed but is was fairly unpleasant. The government should put its own house in order before trying to sort the system 
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    Milburn, the arch reactionary that he is, completely ignores the scientific evidence showing that many young disabled people are far too ill to work due to the severity of their health condition. Indeed forcing them to try any kind of work would inflict a great deal of suffering and make their illnesses much worse. Yet we live under a so called Labour government which blithely entertains such cruel ideas. Sadly, our society seems incapable of addressing major structural issues causing social and economic problems. Instead due to the domination of neo-Liberal economic thinking successive governments, Tory and Labour, resort to socio-economic policies which are not only doomed to failure but inflict alot of damage to ordinary people. In turn this helps fuel the psychic rage which is leading to the growing polarisation of politics in UK society. But hey who cares as long as the super rich keep getting richer that's all that matters.

    Coming back to Milburn's reactionary report. Let's take the example of young people with the neurological disease ME/CFS. I have interviewed over 20 scientists conducting research into this very debilitating disease for the Phoenix Rising ME platform. Last year I interviewed a group of scientists from Griffith University, Australia who are part of the National Centre for Neuroimmunology and Emerging Diseases (NCNED). One of their recent published research papers reveals:

    1. Young people with ME/CFS cannot work or study - This is not a choice or lack of
    motivation; it is a measurable, scientifically documented disability.
    2. This is the MOST impaired area - While ME/CFS affects all aspects of functioning
    (cognition, mobility, self-care, social interaction, participation), the inability to work
    and engage in productive activities is the most severely affected.
    3. Cutting disability benefits would be devastating - Young people with ME/CFS already
    cannot work or study. Removing financial support would leave them with no means of
    survival.
    4. This justifies protection of disability benefits - The evidence shows that young people
    with ME/CFS have profound, measurable disability in the area of work and life activities.
    They are not choosing not to work; they are physically unable to do so.

    Research using the WHODAS 2.0 (World Health Organization Disability Assessment
    Schedule) shows that young people with ME/CFS experience the most severe impairment in
    'Life Activities' - their ability to work, study, and manage household responsibilities. With
    an average disability score of 80 out of 100 in this domain, many young people with ME/CFS
    are completely unable to engage in work or education. This is not a choice or lack of
    motivation; it is a measurable, scientifically documented disability. Cutting disability
    benefits for these young people would be cruel and counterproductive.
    Citation:
    Weigel, B., Eaton-Fitch, N., Thapaliya, K., & Marshall-Gradisnik, S. M. (2024). Illness
    presentation and quality of life in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
    and Post COVID-19 Condition: A pilot Australian cross-sectional study. Quality of Life
    Research, 33(9), 2489–507. https://doi.org/10.1007/s11136-024-03710-3
    • Thank you for your comment. Comments are moderated before being published.
      · 3 days ago
      @bronc Thank you for this research. 

      It's very worrying that, despite having  no scientific basis, the biopsychosocial paradigm remains in the ascendant. Simon Wessely co-chairing Streeting's neurodivergence review, the immense amount of publicity for Suzanne O'Sullivan's book, the Wired article this week.

      We have seen no practical improvements since the publication of the 2021 NICE Guidelines and the UK Government's Delivery Plan. They are not even going to start recruiting a team to develop services for severe ME until next year despite the urgency of preventing deaths.

      I'm afraid the DWP will compel people with ME to undertake CBT and GET (renamed as activity management) despite the harm we know this causes. Nothing seems in good faith and there is no following of actual evidence.
    • Thank you for your comment. Comments are moderated before being published.
      · 5 days ago
      @rookie It is indeed yet few people use the c word to explain/understand many of the problems our society faces.
    • Thank you for your comment. Comments are moderated before being published.
      · 5 days ago
      @bronc That's Capitalism.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    As an ADHD sufferer (late diagnosed) I tend to agree to a point, but that all depends on whether he means the symptoms fluctuate, or whether he means how it affects people fluctuates. For example, I find it really difficult to focus on boring stuff, but give me an interesting project and I can focus unwaveringly to the exclusion of food, drink and even toileting.  In a work environment this could be either detrimental to performance, or a strength depending on tasks required from the role I'm undertaking. 

    Certainly most people with ADHD can work diligently in the right environment. So, I personally don't see ADHD as a barrier to work. It's all about getting the right person into the right role. Then again PIP isn't a out of work benefit, so I would suspect that a lot of people with ADHD do work. I do, albeit running my own businesses. Suits me I don't have to sit in an office surrounded by people. 

    One of the biggest thing the government should be tackling is education around neurodiversity.  Is it disabling?  Yes, absolutely.  Does it justify being written off by the system (because that is what happens at the moment)? No it should not. Neurodivergence can be a strength and a weakness at the same time.  Play to the strength, and support the weakness, and you will have a high performer who could contribute more to society than a neurotypical ever could. 
    • Thank you for your comment. Comments are moderated before being published.
      · 5 days ago
      @Louise A Amazing explanation :-)
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    "Perverse incentives" straight out of the Julia Hartley Brewer/Jeremy Kyle et al playbook 
    These people truly do not live in the real world, if they think that benefits are a lifestyle choice why don't they live off of them for a month same with politicians I bet they would change their outlook rather rapidly 
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    Autism absolutely does not fluctuate!!! That is a ridiculous concept showing a total lack of understanding 
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      · 6 days ago
      @Paula As the parent of an adult autistic son His Autism does not fluctuate But Some situations do trigger different issues and responses As they are more uncomfortable for him to deal with He often masks to deal with some situations Which can be exhausting 
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      · 6 days ago
      @Paula It depends what you mean by fluctuate. 
      Over the years, autistic people figure out ways to do things that they previously struggled with, for example learning how to tie shoes. We also find out and obtain assistive technology and other adjustments which enable us to do things we previously couldn't do.
      Some autistic people even move within the spectrum from one subtype to another.
      In the short term, some things stay constant e.g. not 'getting' social nuance, while other things change from day-to-day e.g. less ability on the day after a lot of interaction.
      When people say things like "you don't look autistic" that shows a lack of understanding of the ways autistic ability fluctuates.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    Sorry to bring this up, but i'm getting an idea you are being led down the garden path on this particular benefit by the Welfare Czar

    PIP was supposed to be a replacement for Disability Living Allowance. 

    It has two components Getting around and Personal Care 

    depending on severity, you have a lower, middle and upper rate for both

    I would be more concerned with the backlog of claimants waiting to be transferred to PIP, before the benefit itself finds itself in the mechanism of Universal Credit.

    Some of us are still on "Legacy" Benefit

    Ability to Work although connected, is another benefit - working allowance / tax credits
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    According to the i newspaper article "Health benefit claimants could be offered jobs at KFC". DWP minister McFadden is now looking at extending work experience schemes to those young people on health related benefits. So those the government has assessed as effectively incapable of paid employment can get to experience employment.

    Current work experience schemes offered to those capable of working appear to be unpaid for 8 weeks extending to 12 weeks where the employer makes an offer to take them on as an apprentice. And a new scheme where young people do paid (25hrs a week minimum wage paid by the DWP not the employer) work experience for 6 months and get a job interview at the end.
    • Thank you for your comment. Comments are moderated before being published.
      · 4 days ago
      @John The problem is that this has been tried before, when the work experience finished there was no job at the end if it for a lot of youngsters as the employers just wanted cheap / free labour for a while so ensure this time that jobs are guaranteed via a contract with the employers
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    Perhaps they could start with providing proper, adequate and appropriate mental health support for children and young adults with autism and ADHD. There are far too few dedicated services available, using services who do not understand neurodivergent individuals can cause much more harm than good, causing increasing anxiety and stress, as proved when my son received ‘ help’ for OCD, the councillor was clueless about the affects of autism, son ended up educating her and his OCD getting worse as a result of the intervention 
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    · 6 days ago
    If they seek to get youngsters  into work who have learning disabilities , then they need to create a structure like Remploy again. A workforce for  learning disability & physically disabled people with support within the workforce in buildings designed for disability as well as understanding that some days a person is not able to do things. 
    The issue with ASD is that some have mild and can function yet others have a higher level of ASD where they cannot function with basic skills like using money or communication. To lump them as ASD is fluctuating  is wrong and shows a total lack of understanding.  One size does not fit all when making these assumptions.
  • Thank you for your comment. Comments are moderated before being published.
    · 6 days ago
    I acknowledge I'm not a young person (but have worked with younger colleagues with similar issues as myself)

    I am 50 with ADHD, Autism, and Dysgraphia, none of which fluctuate. They do differ from person to person, but the only reason my ADHD has "improved" is down to medication. When I couldn't get it a couple years ago it got far worse. 

    When I applied for PIP they did ask about work (I work full-time in the public sector), and the type of work I do. (I'm a data engineer). It took me 18 months and going to tribunal to be awarded standard  daily living and mobility. 

    I have 15 workplace adjustments, which include transcription software, travel adjustments, receiving instructions in writing, attendance adjustments, and not taking phone calls. Most have no financial cost to the organisation. 

    That being said, even in my organisation, workplace reasonable adjustments can be hit or miss. I'm currently trying to get support for a manager training package I've developed. Young people who could work with the right adjustments, having to rely on "Access to Work" are going to struggle to find private sector employers who are willing to hire them. Better support for employers, and quicker support for young disabled people to get into suitable, rewarding employment is where the focus needs to be.

    Educating employers on the simple adjustments, like clear instructions, noise cancelling headphones, good open discussions, will go much further to reduce the disability employment gap, then punishing disabled people by attacking benefits. 

    The one thing that all these reviews seem to avoid is good conversations with the individuals involved. The cabinet office's own disability group published material on the "lived experience of disability in the UK" a couple years ago. The most significant outcome from which was, "disabled people want to work, and succeed, They do not want to be seen as less."




    • Thank you for your comment. Comments are moderated before being published.
      · 6 days ago
      @DaleMR Thank you so much for sharing your experience; this is so helpful and encouraging.  I very much agree with everything you've said and it would be so helpful if government ministers would pay attention to testimony such as yours, rather than relying on their own misguided opinions and the misleading rhetoric of the more extreme campaigners.

      My son is in a similar position (with a similar diagnosis) and has struggled to find and remain in suitable employment since leaving university. (We also struggle with claiming PIP each time his review comes around.) He needs a lot of help from his father to get ready for work in the morning and with travel arrangements and would probably not be able to work at all without this help, but he has never been offered any workplace adjustments in any job. He is not very articulate and is usually unable to advocate for himself, which doesn't help.  His current employers are sympathetic to his situation, so we hope that, in due course, they will, together, discover what reasonable adjustments could be put in place to help him to remain in employment, but his six-month probationary period comes to an end soon and he is worried he will be asked to leave. This fear may prove unfounded, but he was forced to leave his previous job by an unreasonable employer, so he is understandably anxious. This time, the problem is a bit different because although his employers seem willing to help, two of his co-workers are actively trying to make his life difficult in the hope that he will quit (or so he believes).  Sadly, it is not uncommon for colleagues to perceive "reasonable adjustments" as preferential treatment and - to put it bluntly - many do not want to welcome people with disabilities into the workplace.   Yet he has been fortunate - we know several young people with whom he grew up who would love to be able to work, even if only part-time, but have never received any help or support to enable them to do so.  Not all parents are able to provide this support themselves and their input, as they age, is always going to be limited by disabilities and infirmities of their own.

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    · 6 days ago
     "the benefits system offers perverse incentives to avoid work" ahhh the good old line "perverse incentives, the same line my own MP used in an email to me, a disabled person when talking about how great the cruel cuts to UC and cruel reforms to PIP will be. So rather than address the accessibility problem in the UK, they demonise those claiming disability benefits and use language such as "perverse incentives" to inflame hatred of the disabled community. Divisive language has always been successive government's way to deal with the disabled and let's face it, it's way easier to cut support than to fix a country that is hostile to it's disabled. 
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      · 6 days ago
      @Jay
      Their logic is backwards: IF employment doesn't pay as much as benefits, it's not the benefits that are at fault (since they are calculated to fit the cost of living, at least vaguely). No, it's the perverse incidentive of FEAR making people tolerate shit business models that don't share the wealth. Whilst the cost of living is skyrocketing. That rely on exploitation of both staff and customers to the point that they feel abused. That IS abuse. The whole of the UK system, for hundreds of years, is based on severe amounts of abuse. Capitalism itself, too. This is harder to fix when that abuse is so profitable, and you may end up like JFK if you ever did manage to gain traction in attempting to combat the abuse... So the politicans punch DOWN, instead of UP.
      That's the REAL perverse incentive - to not serve the most vulnerable citizens, some of whom, like me, have been so dedicated to upskilling ourselves, that we burnt-out trying too hard, became substance-dependent to maintain it, etc. The WHOLE SYSTEM RELIES ON SUBSTANCE USE TO MAINTAIN ITS OUTPUT RATE. The stress levels are too high. Remember that. Especially when one of the Bankers' lackeys in Government is talking about Drug Laws and such. ALWAYS lying about HUGE parts of the economic equation. Always.
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      · 6 days ago
      @Jay There are perverse incentives, but the government never mentions the real ones:
      - fixed capital limits rather than a taper
      - assuming that someone has certain abilities based on their job
      - lower rates of benefits for new claimants compared to existing claimants
      All of these discourage disabled people from seeking work if they are able to work to some extent but not enough to manage without means testing.
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      · 6 days ago
      @Jay "Perverse incentives" - I'd like to know what these are, when disability benefits are so difficult to claim?  Sounds like MP-speak to me - they all seem to be parroting each other at the moment.  It's a pity they don't live in the real world.
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    · 7 days ago
    In other news the government has backtracked on it's promise to MPs that Timms PIP review changes to PIP will only be done through primary legislation, with MPs able to debate and vote. Timms has now stated that Timms PIP review changes to PIP maybe laid as a negative, or positive, statutory instrument, or as a bill.

    Parliamentary written question UIN 3041
    https://questions-statements.parliament.uk/written-questions/detail/2026-05-19/3041/


    The government some time ago already backtracked on it's promise to MPs that Timms PIP review changes would only be for new PIP claimants with existing PIP claimants staying under the current system.

    So it looks like the government is considering in autumn 2026 making changes to existing PIP claimant's eligibility or award amounts. And that those changes maybe done via statutory instruments with no debate in Parliament and a vote only if Parliament objects to the changes. It is very rare for statutory instruments to be stopped by Parliament. 
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      · 6 days ago
      @John Why am I not surprised by this John ! I think the Government have got to the point where they can longer ignore the constant, unrelenting attacks on the disabled and chronically ill coming from media reports on “work-shy v alarm clock Britain”. I think they will pass the most damaging, penny pinching legislation just to announce to the general public, “look, we said we would tackle Welfare spending and we will, here is the proof”. I can see this ending in a catch all situation, wide sweeping reforms where no one will be spared, new to PIP or existing claimants.
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      · 7 days ago
      @John Why can't they please just LEAVE US ALONE, this is blatant near harassment, are they trying to beat the Tories record from the 2010s when they had their attempt at this sort of thing which resulted in hundreds of people taking the 'easy way out', oh god I hope that doesn't happen at all and it stays as primary legislation for our own sakes...please !
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    · 7 days ago
    I've just spoken to my dad about this, and would not be surprised if they had to try and get people who are currently psychotic into work. My dad had a good reply - if they think that it is such a good idea why not employ all these people in the Houses of Parliament? (For context I have a family member with a very severe lifelong mental illness so I'm not being flippant.) 
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    · 7 days ago
    No body says anything about HS2 massive waste of money as and saying need more money for army we not at war 
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      · 6 days ago
      @Wayne The people who worked on HS2 were over-paid. THAT is perverse incidentive to not work harder for more hours per week (and look at the cost and time overruns).
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    · 7 days ago
    If disabled people have benefits takin off them and forced to work can we tell the job person all our health problems at interview and then see if they will give job .need to report the constant disability attacks to news papers and itv news
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      · 6 days ago
      @Wayne Very true. 99% of employers won't touch you with a barge pole if you explain to them the nature of your disability and how if they employ you you would require them to make reasonable adjustments under the 2010 Equalities Act.
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