Earlier this month we pointed out that we have now reached the astonishing milestone of being 20 years old.  We asked readers  to tell us how long they have been using the site and what part it has played in their life.

We’re very grateful and touched by your replies.  We’ve reproduced some of them below.

A brilliant service
“I became aware in 2008 when I had a breakdown and was several years later diagnosed with Bipolar Disorder type 2. The excellent spotlights you shine on various disability rights helped me claim ESA and PIP whilst working and PIP still at standard rate since I took early retirement. Well done to all involved delivering such a brilliant service enabling people to know their rights like no other organisation/ business.”

Sound, useful and common sense advice
“In 2005, after a catastrophic accident that left me unable to walk, I was faced with applying for Income Support and DLA. The process looked daunting, overwhelming, confusing, like writing a polished college thesis. I happened upon your site and was amazed that there was sound, useful and common sense advice available to claimants like myself. Through the years, as I navigated the reassessments, the forms, the changes, the anxiety, your Guides, mods, and comments by other claimants helped me get the benefits I have been entitled to -every single time. It's a debt that I cannot ever repay, and my thanks will never be enough to express my gratitude.”

8 years of thankful relief
“I've been a member since 2014 - 8 years of thankful relief from the stress of previously not knowing what I was doing, and struggling with DWP paperwork. I was diagnosed with ME/CFS in 2000, having been ill with it since 1994/5, and struggling financially for so long, not only against the DWP but also the medical establishment who wished patients like me didn't exist, always trying to sweep us under the carpet and ignore us. Benefits and Work, and Holly and Steve, have been my guardian angels in my battles with the DWP, and I can never thank them enough. I wish I had found them years earlier, my life could have been so much better. Thank you both from the bottom of my heart for your dedication and help.”

You do a great job
“I used this site to get on incapacity benefit years ago and for ESA later on after it was changed, you do a great job keep up the good work guys . . .”

Made all the difference
“I managed to apply for esa and pip with your help, it was so overwhelming! Especially after spinal surgery, job loss etc but this site and support made all the difference.  When I needed to do a MR second time round, I was prepared, and won! Thank you for keeping us up to date on all the latest info and guidance.”

I recommend the site to anyone I hear of who is struggling
“Guided me through the transition from IB to ESA, when I was, despite awaiting two major surgeries and very ill, put in the Work Capability category. Appealed and put in support group, where I remained until reached state pension age. By the time I was called to change from DLA to PIP, five years ago, I was well prepared, through reading your guides and the forum, and sailed through the assessment. Awarded ongoing higher rate for both Daily Living and Mobility. I recommend the site to anyone I hear of who is struggling with form filling for benefits. I also renew my membership every year, to support those who find they are in need of your services. Thank you, and long may you continue helping oppressed sick and disabled people win their rights and find justice.”

The gods were smiling on me that day!!
“One minute I was a manager in charge of many staff, salaries, pensions, procurement, buildings etc. and the next I found myself disabled, unwaged and lost in an alien and what seemed to be quite a hostile world of DWP and the benefits system. Without the lifeline of B&W I would have had no idea where to start asking for the help I desperately needed. I can't even remember how I found you - maybe the gods were smiling on me that day!!”

 Eternally grateful for B&W
“The guides were invaluable when it came to applying for DLA and whatever the other one was called back then! They not only showed me where to start but they gave me confidence to say yes, I am entitled to this so I will apply. And thanks to B&W's thorough guides I've been successful at every review since then. The site is far more polished now than it was but I'll still be eternally grateful for B&W in whatever shape or form. Thanks, Team B&W.”

You probably saved my life
“I have been using the site since 2015.  Without your wonderful guides I would have been unable to make the applications for PIP and ESA.  I was in a deep depression at that point and life seemed pretty hopeless.  Finding your site really helped and I am sure without your advice and guides I would have given up.  I've used the site for PIP renewals to so the support is ongoing.  I recommend the site to loads of people via our Buddhist group and the forum I am on for my health conditions.  Absolutely everyone says the same thing....couldn't have done it without you! Thank you, you probably saved my life.”

Invaluable to us all
“I could not be more appreciative of this site I have been a member for the last 6 years,  invaluable to us all for the help in DWP benefits, the great knowledge of the team in helping us through the very stressful procedure of attending face to face medicals and even tribunals cannot be underestimated, I don't know what I would have done without this wonderful help and I will continue being a member for as long as I can. Thank you.”

I have passed this site link on to many people
“This web site is solely responsible for my getting the benefit I am entitled to, I would have been helpless against the ridiculous assumptions made in my report, then later in the report those assumptions turned into facts, without this amazing site. I have passed this site link on to many people in Health and social care, they are all very grateful.”

Expert guidance on disability benefits
“Thank you for all the support that you have given.  I also think it is reassuring to know that you are there for us with expert guidance on disability benefits.  I am one of the older members still on DLA and retain my membership to keep updated on any benefit changes.  I check in every day to read the forum and the news.  I have learned a lot.”

Professional members of Benefits and Work since 2011
“He-special are proud to have been professional members of Benefits and Work since 2011 - or at least that is the first email I have confirming that we are members! Over the years we have helped many families with children who have special educational needs and/or disabilities to successfully claim various benefits, both for the children and the adults. But my personal relationship with B&W goes back further to when someone from the CAB came out to help me fill out the DLA form on behalf of my son. I think it may have been around 15 years ago. I noticed that the guide she was using was originally from B&W. So I looked it up on the internet and joined as a personal member. Congratulations on your first 20 years. And whilst I wish people didn't have to use your excellent guides, I hope that your next 20 years will be just as successful.”

May you continue for many years to come  
“I've been a member for seventeen years, since 2005. I cannot express to you how grateful I am for all the help (disability benefit guides) and moral support you have given me and so many others over the years. Congratulations on this milestone and may you continue for many years to come.”

 Helped me enormously over the years
“Your site has helped me enormously over the years. The last time I had to apply, I got full rate pip for 10 years!!  Thankyou from the bottom of my heart. The money has paid for some help, without which I couldn't have survived.”

Your guides secured my parents AA
“I have  been fighting for my rights with DWP from the get go and with your help from the outset to the time I retired and beyond. I used your guides and advice to get ESAconts, support group rating and latterly Attendance allowance. I have helped others esp. using your guides to restore a disabled mans PIP when it was wrongly stopped (I recorded the HCP interview and proved that the ‘doctor’ lied and behaved inappropriately). Your guides secured my parents AA. So thanks for being there for what seems like half my life and may you continue to press for a better system of benefits assessment and live a happy life.”

Found your site and have never looked back
“Well done for helping countless numbers of people (including me) over the last 20 years! After being retired on ill-health grounds in 2003 I was told to apply for Incapacity Benefit, as it then was. I did, but after a couple of years the title was changed and so were the rules! Filling in those forms was like writing 'War and Peace', with no idea how my statements were going to be judged. I trawled the internet, found your site and have never looked back. The guides were invaluable, as was the forum. Ever since, with many changes in the rules, I've been able to face those 'books' of forms, and gain the award. Latterly, as my illness is progressive, I was refused ESA support, and with your aid, made a successful appeal. The judges even said they would be advising the DWP not to look at my case again as I was within 18 months of retirement age. I am now retired but will continue to support you in helping others. Many, many thanks!”

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  • Thank you for your comment. Comments are moderated before being published.
    ? · 2 days ago
    The comments below are months old and cannot relate to the news item above.
  • Thank you for your comment. Comments are moderated before being published.
    Chris Nasher Nash · 3 months ago
    Hi I have recieved pip since 2017 
    I recently had a telephone assessment by a stand in nurse which was 2 and a half hours after my appointed time so she could read my notes.
    I am reasonably happy for my award however saying that 
    I do believe the nurse did not listen or write what I told her on our conversation.
    I had sent evidence from an expert consultation to say I had left hemisphere brain damage but they say because of how I talked to the assessor she said I don’t show any signs of depression or mental illness.
    I never had that part of pip awarded they say because I don’t go for therapy or attend any classes I don’t have any depression or mental illnesses.
    The experts examined me prior to a court hearing.
    That was 5 years after my accident and they stated clearly that my condition would not alter at this late stage.
    Even my gp wrote to them to say the industrial injuries benefit tribunal acknowledged that I have a brain injury so why does the DWP Pip not acknowledge it.
    He told them just because I don’t go on about my depression does not mean I don’t have it !!
    She also in my descriptors ignored that I don’t use certain 
    AIDS to assist me like perching stool and double handled cups and utensils to eat and drink from, Or that I only shower less frequently than I probably should do.
    I know this because I ask for a copy of her recorded notes as well as DWP returning all the medical evidence also extra evidence sent in  since the phone assessment.
    I was going to ask for a mandatory reconsideration,
    But reading that a lot of persons came of worse decided not to follow it through.
    I am 66 and the nurse reccomended I be given a 2 year award and then be reassessed, however pip gave me a 10 year award.
  • Thank you for your comment. Comments are moderated before being published.
    LB · 5 months ago
    An update on my claim. I was awarded zero points on the care element of the pip form and enhanced rate for mobility. The decision on the ruling is so Indifferent, dismissing my epilepsy as ‘manageable’, even when I stated the difficulties I have as a result of seizures. They ignored any mention of my Type 2 Respiratory Failure and glaucoma issues. Three consultants, an Epilepsy clinic, a lung function clinic, has been overruled by a disability assessor who did the assessment.

    I wish I was surprised, but I am not. The DWP seem determined to punish claimants or put them off appealing. I’m going to appeal. There’s no other option. 
  • Thank you for your comment. Comments are moderated before being published.
    GS/MM · 5 months ago
    Hi 
    My partner had to claim PIP for thr first time 4 years ago, she suffers from drug resistant epilepsy, in that here siezures are not controlled and she gets no warning of onset. She went through the initial review, zero points, then the mandatory reconsideration which netted higher mobility at 12 points, but still nothing for the care element, the award was only for 18months at this stage.
    She then appealed and it took just over a year to get to the tribunal, then in front of the judge and two other health professionals She had to explain her condition, how it affects her life and the dangers.

    The DWP conceeded that the case should have been reviewed as their opening statement and offered medium rate care and higher mobility, the judge reviewed the evidence spoke to my partner along with other members of the panel and awarded high rate care and mobility for five years.

    The DWP tried scare tactics when she went for the mandatory reconsideration saying she could loose everything, however when we did finally get to the tribunal the judge told her what had already been awarded was not in question, just the length of the award and if she was entitled to anything more.

    Hers and my advice is don't give up,

    She is currently going through the process for yhr second time, hopefully this will be easier, however armed with the experience from the first claim she should be better prepared.



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    Alison · 5 months ago
    I was extremely depressed and suffered from anxiety amongst other things. I never went out the house and had to move in to my parents home along with my daughter. 
    I was with my Dad waiting to go in for the assessment and he made me laugh. 
    Even though I was really struggling in the interview & became quite distressed when I had to talk about how I felt and what help I needed. 
    When I received my award letter I didn’t have enough points for either mobility or living. 
    It stated I wasn’t really depressed as she didn’t believe me as she had been watching me with my Dad laughing before I went in the start the interview!!! It was a nervous laugh as I had never had to claim anything before. 
    Needless to say it was overturned on Mandatory Consideration after a rather forthright letter from my GP. 
    I got the higher rate award in both mobility & care. 
    I couldn’t believe they were sat observing me before I went in the room. It made my claim form & interview a joke. It was like she was talking about someone else. 
  • Thank you for your comment. Comments are moderated before being published.
    LB · 5 months ago
    I have had one success PIP claim, after a mandatory review and I am waiting for a decision on my latest claim. It’s been almost twelve months (early December 2022) since I returned the form, Capita ‘lost’ my first telephone interview and I had to do a second one over a month later. I didn’t know, but you can request a cd copy of your telephone interview by your assessor, instead of a download link. My ‘link’ failed three times with Capita blaming their system. Hard copy is better and it works. It takes up to twenty one days to arrive but you will receive it.

    On both forms, I have used Gov. UK’s website for the ruling by the Upper Tribunal Administration Appeals Chamber  to support my claim on seizures without warning and the interpretation of ‘safety’ for the purpose of supervision. 

    Full title: RJ, GMcL and CS vs Secretary of State for Work and Pensions vs RJ (PIP) : [2017] UKUT 105 (AAC); [2017] AACR 32

    It’s long, but well worth reading, especially when you have infrequent seizures as I do. Having a risk assessor for a husband who was able to claim that the nurse who dismissed my epilepsy as a reason for pip had no basis in which to argue that she knew better than a fully qualified health and safety professional helped. 

    One thing that was raised in my first claim interview was who managed my epilepsy care. She mentioned an epilepsy clinic as one of the options. I had never heard of them. Unfortunately, I discovered mine when I had six cluster seizures in one night and was admitted to my local hospital. I did have an epileptic consultant and he had set up an epileptic clinic in his department at the hospital.
    The clinic took over my epileptic care. I speak or message the epilepsy nurses whenever I have an issue and they call after speaking to the consultant. I have a yearly discussion with a doctor and review all my medications through them. Waiting for so long for a decision on my latest claim has caused me to increase my prescription and this was arranged by the epileptic nurses who contacted my gp directly. Having a hospital manage my care seemed to make more impact in my last interview than just using the local doctor. The clinic also wrote a letter to support my claim and to outline the type of epileptic seizures I have and the damage I have sustained as a result of them. 

    I’m not sure if it helps as the DWP like to avoid external cases, but did anyone read the Health and Safety case against Morrisons? They had been warned that one of their employees who has infrequent seizures should not have his locker upstairs. They ignored the warning. He suffered a seizure and fell down the stairs and died. It resulted in over a million pounds fine. No matter what they say, infrequent seizures result in serious consequences for those who ignore or say they aren’t relevant for PIP claims. The courts of appeals and Health and Safety think otherwise.

    One thing that I did have after my first claim was denied and appealed against was photographs after a seizure. I hit a radiator and as my doctor said; the bruising was very impressive. I hope you don’t need this kind of evidence, but take photos if you have a seizure to record any bruises or injuries you may have sustained. I’d even recommend taking pictures of a room if you damaged anything. I threw coffee over a chair and wall one time and hit a leather chair on my last seizure. 
    I do have other issues, along with epilepsy, that are on my claim, but I repeatedly mentioned in my interview that I needed to be supervised to carry out tasks. I am lucky that all my issues are managed by hospital consultants as it appears that they hold more ‘weight’ in deciding whether I should receive PIP or not. I won’t know if it’s true until my decision comes through. I still expect to be refused PIP, but I will appeal. 




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    Dawn · 5 months ago
    I have recently applied and received standard rate for PIP, I suffer both major and minor epilepsy. I made the point that many things are unsafe for me to do without supervision especially when the minor attacks occur. This can be 4 days a week and last from an hour to all day. The return letter said because I hadn't had a major fit for 6 years made my epilepsy not a problem huh! I wish they had to live with it. I've gone 10 years without a fit then had 3 in one month. While talking to the interviewer she only wanted to know how I am on a good day, she kept joking about different things and that was all held against me so beware they do try to trap you
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    Paula · 5 months ago
    Took a four year fight for pip. I have uncontrolled epilepsy, peripheral nerve damage, osteoarthritis, liver disease, mental heath issues following a nervous breakdown, and asthma plus  few other things. I was told epilepsy was not a disability.  Four years, had to keep reapplying after failed tribunals.  I get high rate mobility and standard daily care now. I had the help fron the citizens advice throughout this. Back pay was just over £2000 no backpay for previous years of fighting . I've lost all my confidence I used to work in hospitality now I barely go out. Never stop fighting for what you are entitled to. Before I took so ill I was a full time unpaid carer for my mother who had terminal lung cancer, and a carer for my special needs son. 
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    Angela · 5 months ago
    My husband receives pip for epilepsy and gets high mobility but unfortunately nothing for care, he is waiting at the moment for a decision on his review, he has been waiting since 5th May 23 for them to deal with it, we are hoping that he is awarded some care component, if you have epilepsy it's worth making a claim