Macmillan Cancer Support is asking Benefits and Work readers to support a new campaign, #PayPIPNow.  The charity is calling for the Government to reduce PIP waiting times to 12 weeks, so that PIP claimants, including people living with cancer, get the financial support when they need it the most.

The current average waiting time for PIP for people making a new claim is 20 weeks. That means if you were to apply on 14th September 2022 you could be waiting until 1st February 2023 to receive a payment. This is a shortfall of £3140 for those eligible for the highest rate of the benefit.

While delayed payments will be backdated, the immediate financial impact of cancer means people are facing significant financial difficulty up until this point.

Now with the spiralling cost of living adding a further strain, ensuring everyone has access to the financial support they are entitled to has never been more important. At a time when their health should be their number one priority, too many people are telling Macmillan that money is their biggest worry.

Macmillan told us:

“It is unacceptable that people with cancer are facing these distressingly long waits to receive the financial support they’re entitled to. That’s why we’re calling for the Government to take action to reduce PIP waiting times as a matter of urgency.

 “If you are living with cancer and have experienced a wait of over 12 weeks at the start of your claim and would like to be involved in shaping and running the campaign by taking part in a focus group, please get in touch with the Campaigns Team at Macmillan Cancer Support at This email address is being protected from spambots. You need JavaScript enabled to view it.

“We will be launching a campaign with a petition, targeting the new Minister for Disabled People, Health and Work, in due course. “

We’ll keep readers posted about the progress of the campaign.

Meanwhile, regardless of what your health condition is, please comment below and let us know about your experience of waiting for a decision to be made on your PIP claim.

Comments

Write comments...
or post as a guest
People in conversation:
Loading comment... The comment will be refreshed after 00:00.
  • Thank you for your comment. Comments are moderated before being published.
    Sam Spades · 2 months ago
    Form completed online, October 2023. Now March 2024 and found out my forms still to be assessed. The waiting times need updated.....people could be looking at 6 month for a quick decision or 9 months if it needs looked in to. 
  • Thank you for your comment. Comments are moderated before being published.
    Glen · 3 months ago
    A friend applied for ADP in March 2023,in November 2023 after not hearing anything,they contacted SSS. They were told their application had been mislaid,as of Jan 24 they're still waiting!
  • Thank you for your comment. Comments are moderated before being published.
    Jan · 3 months ago
    I had moved over from Pip to ADP, I then had a review. This took 6 months, as I had asked them to re-assess my award due to changes in my health. They continued to pay mystery award past the review date. I was awarded the same, Standard rate care. However, they didn't give me any more mobility points as I was over 66 and could only give me the same points awarded for Pip before I retired. It seemed a bit shambolic, with people on the other end of the phone unsure of what advice to give. 
  • Thank you for your comment. Comments are moderated before being published.
    Pamela · 3 months ago
    I was told they are taking a year to process renewal claims. I have been waiting 6 months now and I am deteriorating by the day
  • Thank you for your comment. Comments are moderated before being published.
    SICAB · 3 months ago
    ADP is initially claimed (part 1) via phone call followed by offer of phone appt. to complete part 2, alternate face to face appts also offered. Client can ask for paper form to be posted out. However, this results in clients being sidetracked away from seeking impartial advice from CAB and other agencies. Scotland Social Security becoming both gatekeeper and decision maker. Regarding Re-determination, clients who disagree with their award Decision are directed to phone to explain why, again not giving them the encouragement to seek impartial advice. More clients are going to need to access CAB or other agencies to go to HMCTS Appeal, if indeed they have they have the tenacity to hang on in there.
    • Thank you for your comment. Comments are moderated before being published.
      Prudent · 3 months ago
      @SICAB My local CAB will not help with ADP forms as they are not funded to do so. Previously they were funded to help with PIP forms and appeals. This process seems to lack the external checks and balances that were available to PIP applicants. I feel more anxious going through an ADP review than I did for my PIP reviews. I never expected to find a more challenging process than the DWP. My review form has been with them for nearly six months and they are unable to give me even a likely timescale for the review to be completed.
    • Thank you for your comment. Comments are moderated before being published.
      Yasmine · 3 months ago
      @Lassie citizens advice bureau.
    • Thank you for your comment. Comments are moderated before being published.
      A.helpa · 3 months ago
      @Lassie Voiceability.
    • Thank you for your comment. Comments are moderated before being published.
      Lassie · 3 months ago
      @SICAB What agencies can help with an ADP appeal?